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kennessee

Member Since 03 Feb 2011
Offline Last Active Feb 24 2011 12:02 PM
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Topics I've Started

Test Results Back

08 February 2011 - 10:24 AM

The doctor called today and said that the results for my 4.5 year old were normal and he tested negative for celiac disease. The dr. wants me to keep him on the appetite stimulant and see how much he weighs at his 5 year appt. I am not sure how I feel about this. I guess I was kind of hoping he'd test positive because then that would explain why he has no appetite and has a really slow weight gain. I've been telling myself for years that he gains slowly because he didn't gain the first two months and his father was a slow weight gainer too. His dad weighed 18lbs at 1 year. My son weighed 16lbs at 1 year. I am more worried about his lack of appetite. Without the appetite stimulant, I would have remind him to eat and spoon food in his mouth to get him to eat an adequate amount. I thought my 3 year old for sure had celiac as well b/c he is 30lbs at 3 and has a somewhat distended belly. I always thought it was a toddler belly. Last night, after dinner( which was frozen chicken nuggets and french fries ), his belly was very distended starting right below his sternum and bulging out. It was completely hard... no soft spots at all. He's been like this since forever. He woke up and his belly wasn't as distended anymore. This all so confusing to me. I thought about putting them on a gluten-free diet for a couple months to see how they do but I wouldn't even know where to start. Maybe they are just going to be skinny kids?! I'm so tired of stressing about my 4 year old's weight.

Possible Celiac- 4 Year Old

03 February 2011 - 09:30 PM

Hi! We've been dealing with weight and eating issues with my son his whole life. He had pyloric stenosis as a baby that was misdiagnosed as reflux. By the time the dr's figured it out, he was already 2 months old and hadn't gained any weight since birth. After the surgery, he still gained incredibly slowly. Showed no interest in eating whatsoever. I figured it was because he spent those first 2 months non-stop projectile vomiting 3-4x a day. Who would want to eat after that? Pedi said put cereal in his bottle. I figured things would get better when we started solids, nope. He would only eat fruits and veggies. He was labeled failure to thrive. Weighed 16lbs at 12 months. The eating problems continued all through out his life. I didn't know what was wrong. His dad is 6' and 165. I'm barely 5'1 and 110. I figured he was destined to be a skinny child. Blood tests came back fine. We were sent to a GI who didn't do any tests and basically said he would be skinny because my husband and I were.

Well, now my son will be turning 5 in April and he is 33 lbs and 41in tall. My 3 yr old is a little on the short side... I think 36 in and he has started to slow on weight gain too. He's 29-30lbs. Our new pediatrician has tried my 4 year old on appetite stimulants which does make him eat but even with the help of those, he has only gained 1 lb this month. I asked the pedi about food allergies twice now and he seems to just brush me off every time. We have an appt tomorrow and I'm just going to ask for a referral. Do I see a GI or Allergist if I want him tested for Celiac? Here's a list of "symptoms" that I notice in him. I understand that people with celiac disease all present different symptoms. His are:

-No appetite, I have to coerce him to eat at every meal. He doesn't even want snacks unless it's fruit or something.
-Low weight gain-"failure to thrive"
-He had eczema when he was an infant till about the age of 2. Now his calfs feel like sandpaper... kinda rough.
-Dark circles under his eyes sometimes
-Poops everyday sometimes 2-3 times a day. His poop is more loose than I would consider normal. It's not diarrhea but just mushy looking and like it breaks apart easily-floaty pieces, etc
-Constant, non stop clogged nose. Hard boogers. I can clean his nose out and it usually results in a nose bleed and the next morning it is clogged again. ( Could be due to adenoids though)
-Fights a lot with his brother. Very mouthy to me ( Could just be a kid thing..?)
- He doesn't sleep well. He still sleeps in my room. If I put him in his room, he wanders in my room and crawls into my bed. He is a mouth breather, snores, thrashes around, yells and talks in his sleep. He would cry in his sleep when he was an infant as well.

These may not all be symptoms of celiac disease, but these are all things that concern me about my son right now. My 3 year old is starting to be a picky eater right now but he shows an interest in eating still, unlike his older brother. I asked my 4 year old why he doesn't like to eat. He told me it hurts his throat. Tonight in bed, he told me he thought he had to puke and his stomach hurt. I hope my pediatrician gives me the referral. If anything, for my piece of mind that an allergy isn't causing his slow weight gain.