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Member Since 09 Feb 2011
Offline Last Active Jun 01 2011 10:54 AM

Posts I've Made

In Topic: Observations We Can All Relate To...

01 June 2011 - 10:54 AM

OMG, the brain processing! That part is just awful, isn't it? My daughter and I both get this, and you should see when we've both eaten the same food and got glutened - we look like two confused drunks having an argument about two different topics at the same time, LOL.

The scary one for me was driving somewhere and suddenly I wouldn't know what street I was on, or where I was supposed to be going, and couldn't remember who was in the car with me until I checked. That started happening a few months before I was diagnosed and scared the crap out of me! I was thinking early senility or alzheimers or something, I swear to god.

Changing my diet was a MUCH better diagnosis than that, thankfully!


OMG...You made me laugh. Love the part about two confused drunks.... I so get what you mean. For some reason, whenever I ate pizza I'd get really bad gluten brain fog. It was always worse with pizza for some reason. I remember once I was driving home from work, I was supposed to meet someone at an intersection to drop off paperwork and I just whizzed by. I was having enough trouble getting home, much less remembering an errand I had just promised to run five minutes before on the phone.

When it got really bad for me, though, was a day I was sitting on the couch and I literally was so brain fogged that I could barely think. I was beyond functioning normally at that point, and I couldn't see my way through the next moment. It was as bad at that moment as it had ever been--and still not knowing why was terrifying. At one point in my life, I sort of got used to the idea that I would die young and would do so never knowing why. What a horrible thing to have to think. This is the point some of us get to in this disease--before diagnosis--and it's truly, truly sad.

I often wonder how many people are out there going crazy at this very minute and not even knowing why. And that something as simple as throwing away a loaf of bread might save them.

As great as it is to have the brain fog behind me, I do feel so sad for all the people in the world who are experiencing it right now and have no idea why....

In Topic: Observations We Can All Relate To...

01 June 2011 - 09:12 AM

Don't give up on sandwiches. Try UDI's bread

I do have UDI's bread..but I don't know. There's something un-bready about it. I hate to sound like a whiner, but think back to those peanut butter and jelly sandwiches with that soft white bread that tasted almost like cotton candy...like Sunbeam bread. That's the only time that I miss wheat the most. Or a hotdog bun---a seriously good hotdog bun. I realize now that some things just aren't as good without the bread----that the bread was a big part of why it tasted the way it did.

And yes, I know what you mean about the brain fog. I remember one day last winter I was so brain fogged I really gave rise to the thought that I was losing my mind. It was horrible. I'd give up peanut butter and jelly not to feel that way again!

In Topic: Gluten Making Me Uproot Myself

04 April 2011 - 07:42 PM

A few thoughts, fellow travel mate.

I am very stubborn. I try to make life work for me. Captian of my ship. Squarely at the wheel. Not going to let a little thing like gluten interfere with my life, right?

But I'm coming around to seeing, as you have, how difficult it is to live a gluten free life. Maybe I'm not in charge after all. Not in this round, anyway.

Having said that, please don't give up your life in Columbia if you really love it that much. Have things shipped in. Budget a package that your mother sends you every month full of good products. Befriend a local butcher, baker, candlestick maker----whomever you need to talk to and see if you can't recruit the right people to make it work. I know how hard it is to be abroad and try to eat gluten-free. Trust me, I know. But it's not impossible---not if your life really works for you where you are. Be creative in your problem solving.

Maybe you've already tried this...and if so... I'll hang up my flag. I am thinking of leaving my travel job for the same reason, but I have a whole lot less control over my environment than you do---as I travel all over, from one place to another quite a bit. If you really can't make it work, then there's no way out, except to move.

But do it when there is no other alternative left open to you. That way, when you move, you won't have any regrets.

In Topic: What's Your Job

04 April 2011 - 07:25 PM

Can't you market yourself as an allergy-aware tour director? If it's hellish for you who knows how to travel, think how daunting it is for someone newly gluten-free who's never stepped outside their state.

Love that idea! :)

In Topic: Celiac And Now Ms

04 April 2011 - 07:23 PM

I hope I'm not too late in replying.

I was diagnosed with MS ten years ago. It's such a long and complex story..but I was pretty sick for many years and had all the symptoms of MS. I was actually on one of the very expensive medications they use to treat MS. I was a big advocate for MS, all the while feeling as though that wasn't the entire story.

What you need to do is go right to Amazon and order the Swank book on MS. Swank was neurologist who believed gluten intolerance had a lot to do with MS. It's called "The Swank Diet" and some people with MS have really healed following his guidelines to a T.

I think I've come to realize that I am really probably just a celiac that never knew, as I can trace these problems to childhood. The MS type symptoms started when I was in my late 20's, but I'm wondering if it was just this wheat thing getting worse.

The first few weeks that I gave up wheat and grains I really felt like a new person, so I urge you continue on this path---no matter what your final diagnosis.

Good luck. Keep in touch...

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