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Member Since 09 Feb 2011
Offline Last Active Jun 29 2012 01:22 PM

Topics I've Started

Going Insane.

20 January 2012 - 06:52 PM

My head hurts enough right now that it is borderline difficult to even find the right words. I have been gluten-free for almost a year and I still have daily symptoms..ranging from mild to severe. I know that nobody is ever 100%, but I don't even feel close. I had colorectal surgery nearly ten weeks ago. It was major surgery, so I know that plays a part. I'm still unable to work or exercise much. But I'm just in pain and discomfort on a daily basis.

Going gluten-free all but eliminated my nausea, vomiting and diarrhea. But the symptoms that remain include brain fog, migraines, tummy distension, gas, constipation, insomnia, depression, anxiety, muscle and joint pain, extreme fatigue.

I am very careful with what I eat. My entire house is gluten-free and I have done tons of research. There is no hidden gluten. But my TTG levels are still over 200. From what I have read, this means my antibodies are still really high. Which generally would mean gluten in the diet...but there is NOT!

I've removed dairy. I have recently tried removing soy and corn...I barely ate any, anyways.

When does this get better? The chronic pain and/or illness is seriously wearing on my psyche. I know I have Celiac Disease, but I don't know why I only seem to be minimally responding to the gluten-free diet. Or is it just taking a really long time? I can't seem to find clear answers other than the Celiac diagnosis. I don't want to cut out any more foods. I'm already feeling depressed about what I've eliminated so far.......which I would NOT feel depressed about if it actually seemed to make a difference! Yes, I am WAY SICKER on gluten, and I will NOT go back.....but my health and quality of life are still not normal...not even functional.

I don't know if I'm really making sense, or what I'm even asking. I'm 29. At this point I'd say I could count how many "good days" I have in a month on one hand. This can't be right!

Gluten Challenge: Tips?!

09 September 2011 - 03:40 PM

So...8 months later and I'm FINALLY getting the colonoscopy and gastroscopy I need before I can get surgery. I've still been quite ill, despite going gluten-free, so there is some concern that more is going on, but it may just be the damage they are planning to repair. While they're messing around in there they want to do a biopsy do get the "DEFINITIVE DIAGNOSIS". So? Gluten Challenge! Well, after merely a day and a half, I understand why it's called a "Challenge"!!!

I'm wondering if anyone has tips for dealing with any of the symptoms? The nausea seems to be the worst for me so far (haven't got to the big "D" yet...), along with a migraine, fogginess, anxiety, and fatigue.

If anyone found great ways to cope with the challenge...please...SHARE!!! :)

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