NancyL

Don't get me started on doctors.  I've been chasing them for years trying to get them to tell me what's wrong with me.  My new mantra is that having an MD doesn't grant you common sense.  I have literally been going from doctor to doctor for YEARS... I finally changed endocrinologists because my previous doctor tried to tell me my thyroid cancer wasn't metastatic--I have photographic and diagnostic PROOF that it had spread to a major lymph node, he swore it hadn't spread... UGH UGH UGH... and when his answer to my TSH being 27 was to take an extra pill once a week I was over it.  It was actually my new endocrinologist who figured out (ABOUT FREAKING TIME!!) that I wasn't ABSORBING my medicine.  She was the one who opened my eyes to celiacs, and as soon as I saw this site, I knew... all those things I had been suffering from for so many years... one more UGH and then I'm done ranting.

I understand the ignorance of the general public, but it makes me very sad when doctors perpetuate it.

YOU know when something isn't right with your body... good for you for pushing forward and not taking IBS for an answer.  

Hugs, and feel better!

Thank goodness for the internet because YOUR story needs to be heard!  That is amazing what it took for you to get help.  I'm so glad to read that some of your symptoms are improving and I hope your thyroid meds can start working for you asap.  I think too many of us (ok, me) are too trusting of someone with MD after their name.  My eyes are being opened.  Better late than never.  I think they still serve a valuable service and will continue to see my doctors but I am ready to be more proactive for myself and not take everything they say as "The ONLY" answer.

NANCY: you should just get on the diet- get healthy.. turn your life around- and the next time  u see your docs- you can tell them that everything went away when u went gluten free

That's my hope.    Since I only had gluten for one meal yesterday (in my return to gluten I had some noodles) I'm just going to consider it an OOPS.  I went straight back on gluten free today.

I've had it up to HERE (ummm.. high up) with my Doctor's!  They've for the most part been proactive but they will NOT consider the possibility that I have Celiac's or a gluten intolerance.  My GI doctor insists that I have IBS.  I DO.NOT.HAVE.IBS.!  With IBS your abdominal pain is relieved by having a bm.  MINE isn't!  With IBS you have recurring constipation and then flip to the big "D".  I do NOT have constipation.  I've had the big "D" every day for 2 flipping years!

Sorry, I'm venting.  They're believing the celiac blood work I had done a year ago and basing that off of my "normal" colonoscopy results will look no further.  She said to take probiotics (which I have been for MONTHS) and to take Questran (which I've been taking for weeks).  GRRRRRR  I give up and I am NOT listening to her anymore.  She said I could try a gluten free diet but not to go "overboard" with it because I don't have Celiac?  WHAT?  There is no middle ground.  

I went back on gluten yesterday in anticipation of them retesting me darn it.  I'm going back off of it today in light of them not pursuing this far enough.  I give up.  I need to start listening to me, not them.  If I get improvement then I'm better. If not, then they can try to figure out what else it could be.  In the meantime, I'm forgetting about her and going to think of me!