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Member Since 14 Feb 2011
Offline Last Active Jan 13 2012 04:20 PM

Posts I've Made

In Topic: Vertigo After Going Gluten Free?

13 January 2012 - 04:03 PM

I've been gluten free for a little over a year now, and I've noticed something that has been occurring the past couple months. Anytime I ride various amusement park rides or even ride an elevator, I get an odd, dizzy feeling. It seems like my field of vision is stretching and moving up and down. Everything seems so slow, and my brain gets foggy, like I cannot think or understand what's going on at that moment.

Before I went gluten free, I've never had problems with dizziness whatsoever. Has anyone else noticed this? Should I talk to my doctor?

It's likely Benign Positional Vertigo. An ENT specialist can confirm it for you. Mine went away after going gluten-free. When you are experiencing it, sitting at the side of your bed and flipping yourself back and forth sideways will induce it, but will also cause your ear to settle down and it will diminish. I also find it is important to keep your ears dry. Make sure you dry them well after showering.

Also, in regards to the later post about dizziness with standing up. Usually that is due to dehydration and therefore your B/P drops a bit when you stand up. Getting drinking some hydrating fluids.

Good luck sorting out the dizziness.

In Topic: Question For Anyone That's Done Skin Allergy Testing

12 May 2011 - 09:51 AM


My son has Celiac and is anaphylactic to soy. We met with an Immune specialist prior to meeting the GI specialist. The Immune specialist insisted on doing the skin prick testing. My son completedly tested negative. Despite having an anaphylactic reaction to soy 1 week before and again 2 weeks after the testing, the dr. was not able to figure out what he was reacting to. I had to figure it out by elimination after the bouts of anaphylaxis, and continued hives post eating minute amounts of soy.

After we learned from my son's GI specialist that the skin prick allergy testing is useless for food ingested allergies. Skin testing is only useful for environmental allergies.

He also had an episode of DH once. It was confined to his scalp and was slightly itchy and irritated. It did not feel like it burned.

Our GI Specialist has also pointed out that those sensitive or allergic to soy are usually sensitive to dairy as well. We have not attempted a retesting of dairy.


In Topic: Something Is Still Not Right :(

06 April 2011 - 10:24 AM

I doubt the skin prick test will give you any clear results. My son had the testing done after his first anaphylaxis and all was negative. He continued to have a second anaphylaxis 3 weeks later.

Then when we saw the GI specialist, he informed us that the skin prick test is waste of time for food ingested allergies/reactions. The skin test is more for airborn allergies.

Hope this helps,

In Topic: Is Anyone Else Seeing A Rise In The Number Of Kids With This?

06 April 2011 - 10:17 AM

Hi all,

We homeschool as well. We have noticed a few that were gluten-free, but I did not pay much attention to it until my son started to have gut symptoms.

I diagnosed him myself, after all different types of milk trial, dairy free and then severe illness with diagnosis of Kawasaki Disease, followed a few months later with anaphylaxis. Then at the same time of his second anaphylaxis episode he basically stopped eating due to continuing painful stomach cramps and diarrhea. During our visit in emerg. (due to anaphylaxis) we finally had a Dr. listen to my questioning the root cause of all his recent illnesses combined. My son was already seeing immunology, cardiology and our family Dr. The emerg. Dr. was the only one who told me that likely I would not find out the root cause in the conventional medical world. However, she did book us to a new Immunolgist and a G. I. specialist (for the first time). But the GI appointment was not until 2 1/2 months later.

This caused me to continue searching... I found out that in Canada one can buy a finger poke Celiac Test Kit. I bought and tested both my son and myself. We were negative. However, then we immediately went on a 20 ppm. gluten free diet, with some slight "C.C.ing" as I was still learning. My son was substantually better within 3 days.

When we finally met the GI. and he heard my son's history, he immediately agreed that he has Celiac and lectured him to never eat gluten again. You could not force my son to eat a bagel or anything else with gluten. He knows the pain it causes.

I think because we are in the homeschool world... I was able to closely watch my son's symptoms and take the time to meticulously prepare foods for him. We have made our household gluten-free (as well as food colour, pesticide, preservative, dairy and soy free), which has made the whole family feel a lot better. I'm so glad I've had the ability to figure this out.

I, as a child, grew up with horrific headaches/migranes that would send me to bed for two days, and then a diagnosis of Ulcerative Colitis at age 17, caused me to lose my colon a few years later. I believe now, that I had Celiac all along, but never once did anyone in the medical world or other, mention the possiblity of a need to remove any foods from my diet.

I believe I experienced everything I did, in order to cause me to watch my son more closely. I told him from very young to be aware of how his body felt and to tell us if he developed stomach cramps etc., which he did.


In Topic: Need Advice

25 March 2011 - 10:59 AM

Hi Jack,

Flour in the air take 2 days to settle. I think you are getting cross contaminated, at the school cafeteria and home.
Perhaps you could speak to your mom about setting up the kitchen, so one area is completely gluten-free and she could limit her meals to non-complete gluten ones. There are so many pizza restarants. Perhaps she could go out and have pizza while out of the house. Tinkiyada and Gogo Quinoa make delicious pastas the whole family can eat. Living without has wonderful recipes that could help your mom make gluten-free pizza instead.

I really believe that getting CC'ed with gluten can change your mood and make you feel ill.

I hope you can work out a happy medium with your mom.

Take care,

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