Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 17 Feb 2011
Offline Last Active Jul 03 2011 02:15 PM

Posts I've Made

In Topic: Anyone With An Unsupportive Spouse / Family Members / Friends?

20 February 2011 - 06:00 PM

Pleurisy for years? The kind that is temporary & you take Advil for would be gone. Pleurisy that lasted for years , well, the underlying disease, like TB, would have killed you by now! In my non- medical opinion. :P

I had heart palps that went away once I got my anemia under control. I think my poor heart wasn't getting enough oxygen and was trying so hard to get it to the rest of my body. My pulse & blood pressure went down, too.

Yeah, I really didn't like that doctor. He made me feel stupid every time I went to see him about something. I really like my new doctor, but I don't see him that much. I will tomorrow, though.

In Topic: Anyone With An Unsupportive Spouse / Family Members / Friends?

20 February 2011 - 05:45 PM

Heart issues are actually slightly more common in Celiacs. :-) A number of us feel like we are having palpitations fairly often, even when there is no irregular heart issues. Or the irregularity is so small that it takes a professional and a LOT more invasive tests to diagnose it (I, my father, and my grandmother all had this).

Also, you might want to look up costochondritis - not unusual in celiacs, either. It feels somewhat like a heart attack - almost the same exact symptoms, actually - but it's to do with inflammation around where your ribs meet your sternum. I don't know if it would match what you experienced, but I've had this crop up a few times when I was really having trouble with my glutening issues. Might be worth checking symptoms.

Oh, man! I've had chest pains right around the sternum area. It felt like something was squeezing my chest in that area. I've had those since I was a teenager. I thought they might just be a panic attack, but I've noticed that they have happened when I haven't had any stress at all. Although, many times they happened when I was having quite a bit of stress. I haven't had one for about a year now. One doctor told me I had pleurisy, and he suggested just taking ibuprofen when it happens.

In Topic: Anyone With An Unsupportive Spouse / Family Members / Friends?

20 February 2011 - 04:40 PM

Even if you test negative for celiac, you know you feel better eating gluten free. Remember to listen to your body. I'm very curious to see what will happen over the next decade as people begin to study what it means to be gluten intolerant, not just test positive for celiac. My mom, myself and my 7 year old have all tested negative for celiac (we had all been off gluten for several weeks before the test). My symptoms were pretty moderate compared to my mother's and daughter's. My mom nearly ended up in the emergency room after the waiter in a restaurant insisted the tortillas were gluten free. Even though my mother was skeptical she ate them. And we were convinced my daughter had cancer when we finally took her off gluten. I have a "before" picture of her. I'd love to post it here...maybe someday I will. Anyhow, serious business here. You need to be your own advocate on this journey I'm afraid. I'm fortunate that my husband has been so supportive and has even gone gluten free in the house. I honestly don't know if I could stay married to him if he was making fun of me for my symptoms. And certainly I'd leave if I thought my daughter's health were in jeopardy.

I've already told him that I will keep up the gluten free diet. He'll just have to deal with it. If I test positive for it, I will most definitely get both my daughters tested.

In Topic: Anyone With An Unsupportive Spouse / Family Members / Friends?

20 February 2011 - 04:37 PM

There is clearly something wrong. He should be worried. It could be more serious than celiac disease. You need to go to the doctor right away. If it's affecting your speech and thinking. Also, get a blood test for anemia, B12, and vitamin D. Thyroid would be good to test, too. Even my teenage boys noticed I had no energy and was fading fast.

Let your hub see how tired you are. Leave some things undone because you are tired. You are too tired to do anything but sleep once the kids are in bed. You just don't have the energy to re-paint the dining room or take the kids bike riding. He will have to do it.

I actually leave quite a bit not done. I pretty much do go to sleep once the kids are in bed, if I don't pass out on the couch trying to watch a movie with him. I've actually been talking to his cousin, who has gone through the whole process of being tested for celiac. She doesn't have it, but she understands how serious it could be. She's the one that really convinced me last week to make an appointment. I'm so glad this forum exists! I don't feel like I'm going nuts. I think my husband is so skeptical at this point, because I had pretty bad heart palpitations and chest pains. I wore a heart monitor for a day, but there was nothing abnormal on it. He might think this is just something similar to that, and it's all in my head.

In Topic: Anyone With An Unsupportive Spouse / Family Members / Friends?

20 February 2011 - 03:43 PM

Thanks everyone. Actually, we've been married for 13 years, and we do have 2 daughters. Although, I lost an awful amount of hair during one of the pregnancies and was horribly anemic the whole time. My youngest one has constant headaches and stomach pains, which is part of the reason I started looking into celiac. My grandmother had early osteoporosis, a benign tumor 10 lb. tumor in her abdomen, hair loss and full gray hair in her 20's. I think she may have had it. My aunt was diagnosed with osteoporosis in her early 50's.
I've just been so fatigued lately, and it's so hard to even think straight. It's even affecting my speech. I've always had a little bit of a stammer, but now I sometimes struggle to even come up with the word I want to say. I just draw a blank!
I know my husband sounds like a jerk, but he's just very uneducated about celiac. It's still just a very new possibility. I mean, I haven't even seen the doctor about it, yet. I think I'll just wait to see how the tests come back before I embark on educating my family.

Celiac.com Sponsors: