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Member Since 17 Feb 2011
Offline Last Active Jul 03 2011 02:15 PM

#676951 Anyone With An Unsupportive Spouse / Family Members / Friends?

Posted by on 20 February 2011 - 04:40 PM

Even if you test negative for celiac, you know you feel better eating gluten free. Remember to listen to your body. I'm very curious to see what will happen over the next decade as people begin to study what it means to be gluten intolerant, not just test positive for celiac. My mom, myself and my 7 year old have all tested negative for celiac (we had all been off gluten for several weeks before the test). My symptoms were pretty moderate compared to my mother's and daughter's. My mom nearly ended up in the emergency room after the waiter in a restaurant insisted the tortillas were gluten free. Even though my mother was skeptical she ate them. And we were convinced my daughter had cancer when we finally took her off gluten. I have a "before" picture of her. I'd love to post it here...maybe someday I will. Anyhow, serious business here. You need to be your own advocate on this journey I'm afraid. I'm fortunate that my husband has been so supportive and has even gone gluten free in the house. I honestly don't know if I could stay married to him if he was making fun of me for my symptoms. And certainly I'd leave if I thought my daughter's health were in jeopardy.

I've already told him that I will keep up the gluten free diet. He'll just have to deal with it. If I test positive for it, I will most definitely get both my daughters tested.
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#676926 Anyone With An Unsupportive Spouse / Family Members / Friends?

Posted by on 20 February 2011 - 03:43 PM

Thanks everyone. Actually, we've been married for 13 years, and we do have 2 daughters. Although, I lost an awful amount of hair during one of the pregnancies and was horribly anemic the whole time. My youngest one has constant headaches and stomach pains, which is part of the reason I started looking into celiac. My grandmother had early osteoporosis, a benign tumor 10 lb. tumor in her abdomen, hair loss and full gray hair in her 20's. I think she may have had it. My aunt was diagnosed with osteoporosis in her early 50's.
I've just been so fatigued lately, and it's so hard to even think straight. It's even affecting my speech. I've always had a little bit of a stammer, but now I sometimes struggle to even come up with the word I want to say. I just draw a blank!
I know my husband sounds like a jerk, but he's just very uneducated about celiac. It's still just a very new possibility. I mean, I haven't even seen the doctor about it, yet. I think I'll just wait to see how the tests come back before I embark on educating my family.
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