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WhenDee

Member Since 20 Feb 2011
Offline Last Active Nov 24 2011 10:26 AM
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#750453 Caffeine & Autoimmune

Posted by WhenDee on 24 November 2011 - 10:17 AM

It's interesting to me how defensive people get about their coffee!

The same site that mentions his degree ALSO states that the university was accredited when he received his degree, and lost its accreditation 15 years after his graduation, after an administration change.

But it wasn't Cherniske who convinced me. It was all that pesky science he used, and the many, many studies he referenced. I paid most attention to the parts regarding gut and immune problems.

If it isn't for you, or you're too addicted to even consider it, that is nothing to me. I posted because I thought it might help someone. But you don't have to make ugly comments or try to discredit it based on faulty information. You could always just IGNORE the post, you know. You might be discouraging someone else who would really benefit from the info.

I'm willing to try anything to improve my health. I'm not going to compromise it by clinging to a drug addiction. If it turns out going caffeine free doesn't help my stomach, well, at least I'll be sleeping better and have whiter teeth!

PS... Out of curiosity I searched Pubmed (referenced above) and found SEVERAL published studies that say caffeine affects the immune system in numerous negative ways...
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#750446 Blue Bell Ice Cream-Definitely Not Gluten Free

Posted by WhenDee on 24 November 2011 - 09:40 AM

I thought I was getting mystery glutenings all the time, too. But it turns out I have secondary food sensitivities to foods I was suddenly eating a lot more of. Sometimes these mimic gluten in my body's response.

A recent gluten convert should not be eating dairy anyway, or Should at least be limiting it. Either way, I think you should look into other things before you bad mouth a good company. :( BB never bothered me where gluten was concerned, but I checked every single flavor.
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#716529 What Am I Doing?

Posted by WhenDee on 15 July 2011 - 08:11 AM

You're in the angry phase, that's what is wrong with you!

I was happy to be well when I found out that I thought I would never have an "angry" phase. Wrong! I got glutened at a restaurant and the frustration took over for a while. Eating bread or something straight-out would have made me too sick, but I took lots of chances and did gluten myself by mistake several times.

Being gluten free is

HARD!

FRUSTRATING!

ANNOYING!

It takes over everything! You can't just have a cracker on your way out when you're starving. If the store runs out of the ONE brand of whatever-it-is you can eat, you feel like snatching out of other carts and yelling, "you have a choice! I don't! Pick a different kind of potato chips!" Eating out is a minefield. The kids are constantly into MY stuff, hubby is not careful with the bread, I can't use the toaster... agh!

I will never, ever be able to return to Bernalillo, New Mexico and have the most fantastic green chili enchiladas ever conceived by man, my most favorite food ever ever ever ever. That is truly heartbreaking. It makes me want to cry, right now.

The good thing is... this will pass. If you persevere, this will go away, and besides the occasional moment, you'll get used to it and stop being so mad. You'll find new favorites and frequently manage to forget the old ones.

It's like a phase of grief. It seems stupid, but we have to put down a whole way of eating, a way of interacting socially, and pick another way that is hard and frustrating and annoying. Of course we grieve a little, even if it seems selfish and trite.

So grieve, and try not to hurt yourself too much with it. Tomorrow is always a new day.
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#698782 Celiac Pill?

Posted by WhenDee on 11 May 2011 - 10:53 PM

With it only improving things by 15-50%....

And knowing that EVERY MEDICATION has a side effect...

I wouldn't bother with it.

Before I went gluten-free I had vitamin deficiencies & frequent illness. Gluten was destroying my ability to absorb nutrition and it was KILLING me. Literally.

There isn't one thing in the world I want to put in my mouth so badly that I will risk all of that again. For only 50% improvement, at best? So my intestines would only be 50% destroyed? No way.

And I'm wondering how long before they discover the side effect is pancreatic cancer, or dementia, or your teeth falling out, or something equally fun.
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#698778 Celiac Disease And Marijuana. Also Ne1 W/ Bad Smell?

Posted by WhenDee on 11 May 2011 - 10:41 PM

Regarding the smell issue...

It is possible that you are getting rid of toxins... BUT...

If even your doctor said he didn't smell anything, I'm going to guess that you are oversensitive, picking up on behaviors that have nothing to do with you.

I struggle with anxiety, and I can't handle it on my own. I recently tried again, hoping that being gluten-free would have helped (it didn't, really). I noticed that when I was most anxious, I saw everyone else's actions as somehow relating to me. Now that I'm back on a small anxiety med, I can see where other people's actions are related to THEM, not me. Things I took as being directed at me, had nothing to do with me at all.

It sounds like you have some social anxiety. I hope that in your case, because you have no insurance and medication may be too expensive, going gluten-free will help with it. For many people it does. In the meantime, as someone else suggested, try to find a counseling center with sliding-scale fees. Most universities offer one, if you have a college in your area. Call up the psychology department & they can tell you.
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#691543 Husband Going Gluten Free In Support Of My Celiac

Posted by WhenDee on 12 April 2011 - 06:44 AM

This post gives me the weepy glees. What a GREAT HUBBY you have.

W
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#691541 Breaking The Vicious Cycle

Posted by WhenDee on 12 April 2011 - 06:28 AM

You've been given more good advice here already than I have, just adding this:

This is definitely a condition where you have to be your own #1 advocate! My last US doctor was the first to take me seriously (not accuse me of making it all up in my head) and he sat in his office, completely stumped, saying, "I really think you have an autoimmune problem related to your digestive system" - but it NEVER occurred to him to consider Celiac's! So close, so far...

Not to mention knowledge of gluten-related problems is growing almost daily. I guess a doctor would have to basically specialize in it to stay current. So we have to specialize in it ourselves!

Best wishes for you in finding out everything - and quickly, too.

W
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#686789 Snacks

Posted by WhenDee on 25 March 2011 - 07:44 PM

Well, I passed out at the store today which was not one of my finer pregnancy moments... Apparently my blood sugar got too low which makes me wonder, am I not doing enough as far as gluten-free snacks go.

Breakfast:
2 pieces of Udi's with strawberry jam and butter (I'm odd like that)
1 bowl of corn chex with 2% milk
1 small cup of coffee with a tiny bit of milk and sugar

Snack:
1 Larabar
1 String cheese
Water



Woah, baby! That was almost ALL sugar! Don't forget that any starch turns to sugar in your system.

Editing because of your reply:

I found that eating a very small snack with a bit of protein in it every HOUR, and any time I woke up through the night, helped my pregnancy sickness HUGELY. I got this recommendation from a pediatric nurse. It might be 1/3 of a string cheese or 1/8 of a peanut butter sandwich (no jelly) - just a tiny bit of protein to help keep your blood sugar stable. She told me that blood sugar dropping was a big cause of the sickness.

Also, my prenatal vitamins were making me very ill. Which I discovered after going away for a weekend and forgetting them. My doctor switched me to a different one and the morning sickness that had lingered into the 5th month of pregnancy disappeared like magic. (urgh!)
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#686516 Need Advice

Posted by WhenDee on 25 March 2011 - 12:59 AM

Hi Jack...

Just wanted to offer a cyber >>hug<< and offer my empathy for your situation. My celiac symptoms started very early in life and I didn't figure it out until I was nearly 32 years old (just a few months ago).

No one in my family would have done a single thing to assist me, either. Add to this the fact that my accumulating symptoms were labeled as "hypochondria" by at least one of my doctors... and I spent a lot of my life feeling really crappy mentally.

The depression is the worst. A previous poster was right about the B vitamins. You could have other vitamin deficiencies as well - I had several. The b's in particular will make you feel tired & depressed, though.

Keep in mind that you ARE worth it. You are worth it and you owe it to yourself to be as healthy as possible, and to do what you need to do to be healthy. Your mother may be too preoccupied, and you can't do anything about that --> but you can make a choice to surround yourself with people who will genuinely care about you. You're reaching an age where it will all be up to you.

Now that I'm a mom (and interestingly, my daughter may be celiac...) I have found that the best way to heal from the neglect I went through as a kid is to be the person I needed them to be. I am that person for my children -- and you can be, too, for your future spouse, children, friends, etc.

Keep us posted on your doctor visit... wishing you the best.
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#677039 How Many People Are Actually Self-diagnosed?

Posted by WhenDee on 20 February 2011 - 10:58 PM

*Raising hand*

I was sick for 16 years. It took an overseas move and becoming deathly ill with what they thought was a really serious stomach bug. I was on prescription fluids (the kind you would only get in a hospital if you were in the USA) and a pharmacist told me to do a strict elimination diet. Rice only for three days, then a slow introduction, one food at a time, starting with raw veggies. I had been "well" for over a week the first time I ate something with wheat in it and had a total relapse. It was NIGHT and DAY.

My US doctor sat with me in his office saying, "this seems like an auto-immune problem" and "I think all your stomach issues have a single cause, if we could just figure it out". But he didn't make the connection. I just wrote him a letter today, in the hopes that the next Celiac who comes through his office will be diagnosed.

My husband flipped completely out when I was going to have testing done here, in a country with third-world medicine, so I canceled my appointment. He was so amazing, and said, "the difference in you is so clear that I don't care what any doctor says".

In the end it doesn't matter. I know what gluten does to me. For me it was so obvious. Debilitating stomach problems, constant migraines - all gone. Vitamin deficiencies, cured. I know that I have two maternal aunts with diagnosed Celiac's. I believe my daughter has it & I'm taking her gluten-free this week to see if her health improves.

If you know that you aren't ever going to eat gluten again, it really doesn't matter. I am extremely blessed that mine doesn't seem to have turned into multiple intolerances like some celiacs I know, so it's very simple for me. I skip the gluten, I'm healthy. Period. Doctors be darned.
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#677038 Anyone With An Unsupportive Spouse / Family Members / Friends?

Posted by WhenDee on 20 February 2011 - 10:44 PM

In the few days before I was finally diagnosed I was on the couch calmly waiting to die. I was so sick I didn't care anymore.

In my case going gluten-free cleared up so many physical & emotional problems that my long-suffering hubby - who has seen me try EVERYTHING to figure out what was wrong - went from being a huge cynic to my #1 supporter right away. He was rolling his eyes at everything else, but the first time he saw the connection between gluten and my mood, he started asking me about everything I eat. "Are you sure that's gluten free?" The other day he asked about a soup that I thought was fine and saved me from eating gluten!

So #1 - it is VERY serious, and #2 - if you have tried many things before (as many Celiacs do), he may not be a believer until he sees for himself how it's helping. It might take being gluten-free for a while and having your first accidental exposure, where he'll see the dramatic difference.

I hope he'll see for himself soon. I never imagined my hubby would become such a huge support, and it means everything. Seriously - if my cynical eye-rolling hubby can figure it out, I know yours can too!

W
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#677032 Forget Doctors (Or At Lest Mine)

Posted by WhenDee on 20 February 2011 - 10:07 PM

A celiac friend told me her doctor didn't want to gluten-load her to do the testing. "You don't need this diagosis on your insurance, anyway".

I found out I was celiac after moving to the middle east and getting so sick I had camped out on the couch and was waiting to die. What started as a slow elimination diet (starting with nothing but white rice for three days!), meant to help me recover from a severe bug, ended up proving beyond doubt that wheat was my problem. When I tried to have the tests done, my husband flipped out about me having anything invasive done with basically 3rd-world medical care (our med is better than we thought at first, but it's too late now!).

When I found a total cessation of a multitude of seemingly unrelated problems - from acne to migraines to vitamin deficiencies to extreme constipation - that was good enough for me. Now that I've been gluten-free for several months and I see what a small amount does to me, I know for myself. I don't need a doctor to tell me, and I don't need a biopsy to help me eat differently. This summer if my blood work shows that the vitamin deficiencies are corrected, that will be my "100%" proof.

But even if the vitamin deficiencies require further medical care, it doesn't matter. I was sick for over 16 years, and now I am WELL, like a miracle has occurred. A miracle HAS occurred. You don't need a diagnosis for that, or to convince some ignorant doctor. Do what you know is right for you... and find a new doc.
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