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Stellar003

Member Since 27 Feb 2011
Offline Last Active Mar 22 2011 08:36 AM
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Posts I've Made

In Topic: Biopsy Negative...crying

21 March 2011 - 10:07 AM

Thanks for the information on gluten sensitivity. It looks like there aren't a ton of people
researching it, but it isn't unheard of.
I am so thankful for this forum! It's so good to feel like there are other people who understand.
~Stephanie

In Topic: Biopsy Negative...crying

17 March 2011 - 05:03 AM

Thanks so much guys. I feel better today.
Just felt a little shock to the system when
it seemed I no longer had the support of the medical
community per se. It seems there is a lot to be learned
about all of this. Thank you for your words of support.
It truly helps knowing I am not alone.
:) I have no intention of giving up on gluten free
regardless!

~Stephanie


I know it's hard when you don't tick all the boxes for a clear celiac diagnosis, but as others have said, the positive antibodies really do mean something.

I had positive antibodies (gliadin was about 4 times normal and ttg was about twice normal) and a negative biopsy, but I was convinced by the gastroenterologist that I didn't have celiac so there was no way that gluten was making me sick. He actually told me not to even bother going gluten free.

I wasted another year of my life in sickness and misery before a good dr told me that gluten was the reason I was so sick. She considers me a celiac, and has referred me to other drs as such. I suffered from awful depression, massive deficiencies and horrible gi symptoms, and if I had gone gluten free when the antibodies were first detected I am sure that it wouldn't have been so bad, and it wouldn't have been so hard to regain my health.

I am technically gluten intolerant, but gluten destroyed my health and over 2 years gluten free I am still healing. Please give the diet a very long and thorough trial. I found a few minor symptoms resolved very quickly, but it did take months for my digestion to start to improve and my depression to lift. It's taken even longer to slowly regain my health, but that has been due to other intolerances causing symptoms and messing with my digestion. The point is that you need to see it as a journey with a long timeline, and don't give up if you don't feel amazing in a month or two.

We are finally starting to see some research in to gluten intolerance, and i think in 5-10 years there will be a far greater understanding of the seriousness of our condition. But until then, you will have to listen to your body and the lovely people here and let your own research inform your understanding of your gluten intolerance. It is real, it is serious, and you do have to be 100% gluten free, and avoid all cross contamination.

Good luck and i hope you feel better soon, I know exactly how it feels to be where you are, and it's hard work!


In Topic: Need To Hear A Success Story!

13 March 2011 - 06:09 PM

I wanted to shout for joy this morning while cooking eggs for my husband and a young boy who is staying with us while he gets back on his feet.

I kept exclaiming outloud how great I felt! It has been weeks since I've had enough energy to do anything other than chuck some yoghurt and muesli into a bowl at 6am. This morning, I picked rocket in the garden, caramalized some tomatoes, scrambled some eggs and chucked some sprouts over it all with a wonderful sense of lightness and health!

Seems like a silly thing to be excited about, but I'm super grateful to not be suffering from jointpain, tiredness and dissiness anymore!!

Gluten free is proving its worth more and more! Specially cause I've lost just under 2kg's in the last 2 weeks. :) :)

It's so cool to hear this Brigitte!
I still have times throughout the day where I feel like I need to nap,
But I was telling someone today- something is beginning to feel different.
It's almost like my cells are beginning to feel alive, when I am awake,
I feel more awake than I used to. I used to drag my limbs around all day,
Every step was an effort. I feel so thankful to finally have an answer after so many
Years of feeling partially alive! :)

In Topic: How Can I Handle Watching People Eat All The Things I Want To Eat

13 March 2011 - 05:55 PM

I'm afraid I don't have anything helpful to add Suzanna, but thought I would co-miserate for a moment and admit that I actually gave the bakery the middle finger as I walked by all the goodies lol. On a positive note, I feel my energy level slowly rising....I'd rather eat foam board everyday than walk around like a zombie for another 20 years!
I hope you survive the party...and hope it helps knowing you are not alone!
Stephanie

In Topic: Biopsy Or Not?

13 March 2011 - 10:57 AM

It sounds like you have all the proof you need for sure, but I'd say if you have good insurance it can't hurt to have the biopsy. I just had one and it is a really simple procedure. The worst part for me was the anesthesia hangover feeling (closely followed by the pain of removing the tape from my arm where the had the iv in which is like a free wax job) ;) good Luck to you!