WitchyWomanMember Since 28 Feb 2011
Offline Last Active Mar 22 2011 04:38 AM
I was just recently diagnosed with Celiac Disease. However my stomach issues started with my ovaries cystizing and rupturing in 1997...... They did emergency surgery and while I was in the local hospital I attained MRSA (what a gift!! LOL) and it set into my gut. The MRSA basically ate my intestines up from the outside in, causing the severe diverticulits. After months of IV antibiotics and numerous pain meds and three subsequent abdominal surgeries removing the sigmoid, transverse and transending colon (total of 5 abdominal surgeries from the breast bone down over a three year period..... ) The Dr's basically said you are going to just have to live with this... "D" ten times a day on a good day, bedridden on bad days, severe abdominal pain and too many RX to mention.
I took myself off of a lot of the meds and stopped eating raw vegtables, corn, popcorn, seeds, anything fried or hard to digest.... ect out of my diet and it helped...... but not enough, so I finally requested to see a big city hospital doctor LOL at John Hopkins in Baltimore. I only have a few inches of intestines left and I know, if I don't get whatever is going on under control, I will end up on a bag and I am willing to do anything to avoid that.
I go back up to John Hopkins on March 10th and they are supposed to start me on antibiotics and new RX's. With removing the above foods and then the gluten foods.... LOL it sounds like it leaves me with meats and expensive gluten free foods. So it will be an adjustment.....
I am just feeling a little overwhelmed at this point and I know it sounds strange but I am glad to finally have the Celiac diagnosis so that I can really fight back and hopefully get the "D" and pain under control...... and it is a great feeling to tell my old Dr's that there really was a reason for the pain!!! LOL finally!!!
With being newly diagnosed I am open to any suggestions on how to cope. Your advice would be greatly appreciated!!!!
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I am a social Worker, working with Foster Children. I love to paint and do anything involving art. I love to play on the beach and spend time with family (especially my grandbabies) and friends.