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Member Since 02 Mar 2011
Offline Last Active Sep 01 2014 12:22 PM

#785590 Thought For The Day

Posted by on 05 April 2012 - 06:36 PM

"If the shoe fits, buy it in every color!!"... Author Unknown

Oh yeah,

"If you're tired of shopping, sit down and try on shoes!"... also Author Unknown
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#761280 How Do You Mentally Cope With Celiac?

Posted by on 31 December 2011 - 09:02 PM

For me, it just is what it is. Gotta accept life on life's terms I s'pose.

Actually, I like the fact that I am eating healthier now than I ever had.
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#755589 Upper Gi/ribcage Pain

Posted by on 10 December 2011 - 04:57 PM

Quitting dairy seems to be helping me somewhat - it's been a week & 1/2 or so. Onions I eat frequently - I never thought to suspect them before now.

My new doc thinks that I have IBS, but is open to exploring other causes - like it's more of a symptom than anything. My new GI is at the same clinic - one of her clinical 'interests' is IBS - hope she is open to running a celiac panel.

Thanks for the input! :)
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#753436 Upper Gi/ribcage Pain

Posted by on 03 December 2011 - 06:22 PM

You rock, warrior princess :)

BTW, hungry as I've been, I'm still not tempted by kiki's "savory salmon" ;)
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#753106 Upper Gi/ribcage Pain

Posted by on 02 December 2011 - 08:01 PM

Quick little update here...

- after a couple days completely dairy free my pain lightened up (thanks to advice from wise & caring people here :)

- tried Lactaid milk yesterday & now have my old pain back. Note to self: lactose free isn't good enough ;)

- seeing my GI next week due to bowel change (flat ribbon thin bm since early November).

GI thinks the upper left pain is a pulled muscle or some such thing - maybe he thinks it's in my head. Whatever... I'm taking him OFF of my payroll ;)

- going for a 2nd opinion next week, so hopefully I can post something helpful after that...

I have been working really hard to get into a positive frame of mind - hoping that my body follows along!
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#750583 So How Was Thanksgiving?

Posted by on 25 November 2011 - 05:19 AM

What surprised me is how easy it was :D

In the morning I cooked a plate of all my favorites, took it along & popped it in the microwave while the family was dishing up. We all ate together it was wonderful! I felt NO worries - just 'a part of' :)

Half the people there didn't even notice that I was eating my own food. For the first time in a long time, food was a non-issue.
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#741153 Gluten Ataxia Vs. Neurological Problems Due To Nutritional Deficiencies

Posted by on 23 October 2011 - 03:26 PM

Some of my neurological symptoms are difficulty concentrating, balance issues & forgetfulness.

I have lab orders in for a B12 level check. I have not seen a neurologist yet. Anyway, these symptoms are almost constant - accidentally glutened or not.
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#734008 Chili

Posted by on 25 September 2011 - 04:30 PM

If wheat is used in the processing or an ingredient, it by law, must be listed on the ingredient listing. If you don't see wheat listed, it's not there. ENJOY! :D

Wow, I did not know that! Thank you so much! I've been sitting here salivating over the delicious smells! Yea! Now my roomie doesn't have to eat it all.
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#734000 What's For Breakfast Today?

Posted by on 25 September 2011 - 04:19 PM

1/2 a sweet potato, Jone's brand Canadian bacon, coffee, coffee, and more coffee!
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#733999 Chili

Posted by on 25 September 2011 - 04:10 PM

Hi everyone,

I made chili with "Ol' Hired Hand Six Gun Chili Mixins"... the bag claims "gluten free" but I'm worried about CC.

Anyone ever use this brand? All the ingredients look safe (just spices), but I heard that sometimes wheat is used in stone ground masa flour (another ingredient).
I've searched the Web - can't find any info!

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#718210 Abdominal Cramping Post Ct Scan With Barium

Posted by on 23 July 2011 - 06:59 AM

Here's a couple questions for those out there who've had the "pleasure" of having a CT Scan with Barium Sulfate & the Iodine Sol. IV...

Because I'm prone to severe C, I did about 1/2 of a mild enema when I got home. My colon moves slowly, to say the least. No way I wanted a toxic heavy metal (the Barium) just sitting in there...

So, I had a bout of D after the enema - what looked like white paint appeared in the commode. I'm assuming that was (some of) the Barium.

How do I know if it's all gone? Why am I still having abdominal cramping? I had the test yesterday morning. Are the cramps normal? If so, does anyone know how long they last?

Thanks for any & all help!
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#717011 Constipation & Abdominal Pain/cramps

Posted by on 17 July 2011 - 05:12 PM

Thanks all!

I've been this way (constipated) for longer than I can remember - but during the past 2 weeks or so I've been extra crampy & backed up. It's embarrassing, not to mention painful.

I suppose the coffee I just drank isn't helping any....

I've tried to cut down my caffeine intake - just can't do it. I do love chamomile tea though - will try it tonight.

Exercise - I used to do this daily till this preoccupation with my health took over. My fault for letting that happen, I know. It does irk me that I'm paying for a gym membership that I use maybe once a week. Lately I simply feel terrible. No motivation, too ill, etc...

I needed a reminder to increase my veggie intake. I've been good with fruit, but not so much so with the greens.

Again, thank you for the advice.
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#716962 Constipation & Abdominal Pain/cramps

Posted by on 17 July 2011 - 01:32 PM

I gather that most celiacs have the "big d" as a primary symptom of glutening - as opposed to constipation.

I'm looking for others like me who are dealing with painful, incomplete "evacuations". What helps?

Things I've tried include MiraLax, tons of water, pears, sweet potatoes, Brussels sprouts. I'm also taking 2 vitamin supplements - D and B12. I'm also cutting out dairy, just in case I've become lactose intolerant.

All the doctors I've seen said that my celiac disease presented as "atypical", which is why they didn't suspect it. Everywhere I read about celiac it seems like this particular symptom doesn't fit. There's no doubt that I have it. It was confirmed with an endoscope & blood work.

I just feel different & I'm seeking others with this particular symptom. Please, if anyone can relate I would so much appreciate some advice.

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#680510 Skin Pain And Sensitivity

Posted by on 05 March 2011 - 05:40 AM

Does anyone experience skin pain and sensitivity?

This seems so strange, but every time I'm touched, I just flinch because it irritates my skin. This is especially true of my shoulders and back.

The friction of putting lotion on my shoulders is so bad - I use baby oil instead because I can just pat in on.

It's even in my fingertips! Typing is irritating, washing my hands is too.

What is this?

I don't really want to bring this issue to my doctor - I already feel crazy with all these odd symptoms...

Any and all insights are really appreciated!
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#679814 Bone Pain & Other Odd Things...

Posted by on 02 March 2011 - 03:57 PM

Sure does sound familiar. Since you are done with testing you can start the diet. There is a chance of a false negative on the blood work so if the results do come back negative you would need to do a diet trial anyway. Might as well start now so you can start to heal. Go with mostly unprocessed whole foods and do keep in mind it can take some time to heal. Read as much as you can here and ask any questions you need to.

Thank you for the response - I'm grateful for this site!

I read that it can take up to two years for the intestinal villi to heal. Have others here found that to be the case? If so, is it nonsense for me to supplement with vitamins now? I mean, if I'm not absorbing nutrients then what's the point?
Sorry if the question seems silly - I'm just getting my sea legs here...
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