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Member Since 09 Mar 2011
Offline Last Active Jul 09 2011 09:34 AM

Topics I've Started

Not Yet Tested Or Diagnosed

09 March 2011 - 11:36 AM

I'm very new here, but have been reading around and find that I can relate to so many stories! This is going to be long, so I apologize now for that! I am female, 29 years old, not overweight, not diagnosed and have not been tested, but have an appointment scheduled with my Allergist/Immunologist tomorrow, where I will suggest that I get tested for gluten allergy/intolerance/etc. The reason I suspect this may be my answer is that I've been through ten years of primary care docs, specialists, tests, scans, surgeries and frustration, with no good diagnosis, and my symptoms seem to line up with so many things people have said here. My main complaint is severe fatigue, with headaches/migraines being the second worst part, among many other things which I will get into later if anybody wants to read that much.

They have tried to explain this all away by diagnosing sinusitis/rhinitis (allergy tested negative with the skin tests, yet I can't tolerate being off Claritin, or I itch head to toe) and correcting a deviated septum (twice), when that didn't work we moved on to sleep apnea (which runs in my family) and I do have it and it's treated with 100% compliance using an oral appliance (I could not tolerate C-PAP), and when that didn't solve the fatigue my doctors were and are totally stumped. I also have been diagnosed with migraines, PMDD, bioplar disorder and having cold sores with a negative test for HSV 1 & 2. I also recently became aware that I have acid reflux, which I am thinking about going to a GI doc for (tho my PCP suggested OTC Zantac which I have been taking), and wondering if it would help going to one for this gluten problem as well???

Anyway, my other symptoms that have been going on for a long time include insomnia, anxiety, depression, general malaise, daily headaches, bloating, burping, the big "C", mouth ulcers (not like the HSV kind, with a recent frequency), heart palpitations, psoriasis, very cold feet and toes, I'm always hungry (and try to eat "right" which meant including tons of whole grains, but never really feeling better), had extremely low ferritin level 3 years ago with no explanation, and I am ALWAYS getting "sick" (what feels like getting a cold or virus every 2 weeks, which is no way to live, and frequent bacterial infections as well as subsequent yeast infections).

Recently a whole new spectrum of things have started, as well as a lot more stress has been added to my life. A few weeks ago I started developing extreme dry mouth, which encouraged me to drink more, in turn making me run to the bathroom all the time, which also included urgency. I feel foggy all the time and like I have low concentration and feel a bit spacey at times. The anxiety and depression have gotten markedly worse, as well as new joint pain and swelling which my doctor had no explanation for. I feel so much worse in the morning when I wake up, sometimes with anxiety and nausea (which I can't possibly explain whether the nausea is caused by the anxiety or something else, and I'm not pregnant). One thing that I have noticed is a heightened and more sensitive sense of smell, which with my sinus problems, usually I can't smell anything. I have been having mood swings, visual disturbances, chest burning and tightness, heartburn, random sweats and chills, sporadic abdominal pain, been weak and shaky (which seemed like hypoglycemia to me, but my sugars are fine, no diabetes), and a lot of flu-like symptoms without the nasal problems it would come with (sneezing, dripping, extreme congestion).

I have been tested for diabetes and thyroid issues among many other things, and always the tests come back within the normal ranges. The reason I suspect a gluten allergy is because during that diabetes "scare" with the frequent urination and dry mouth, I cut carbs back to see if it would affect anything. And sure enough, it did. When I cut carbs (consequently cutting out all my favorites, like whole wheat pasta, bread and cereal), my urinary symptoms went away and I lost 5 lbs within a week. After getting my non-diabetic results, I slowly added carbs back in, but not those with gluten, only rice and potatoes, etc. Still I felt alright, not great, but alright. Then last week I got a "cold" and got angry and felt bad again and gave up the gluten free eating and yesterday I had 3 slices of bread and some pasta. I woke up this morning feeling like I had the flu ten times over and I was hit by a mack truck. My headache has been unbearable. So, I called and made an appointment with my allergist and I'm crossing my fingers that he hears me out on this.

Does it sound like I'm going in the right direction here? No matter what my blood test results say, I'm going back to gluten free ASAP, because I know I found some relief when I cut carbs and that it can't be a coincidence!

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