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Member Since 11 Mar 2011
Offline Last Active Apr 16 2014 02:22 PM

Topics I've Started

Ttg Increased - Please Help! How Am I Getting Cc? So Sick I Had To Go On Medical Leave

21 November 2013 - 06:51 PM



I was diagnosed with Celiac in October 2010. I started out with a TTG IGA value of 33 and managed to get it down to 4 in June of 2012. I retested in February of this year and was surprised that my TTG had doubled to 8. My deamidated gliadin antibodies had also increased from 20 to 26.  Starting around that time, I started feeling really sick with LOTS of brain fog in the mornings. I got even MORE vigilant with my diet than I already was, but my health has not improved.


In June I retested and my TTG IGA had gone down a bit to 6 and deamidated gliadin was down to 17 (from 26). So i thought I was going in the right direction and dismissed gluten as the cause of my current health issues, instead going on an extreme low sulfur, anti-candida diet that consisted only of chicken, sardines, salmon, avocados, and stir-fried zucchini. I ate this EVERY DAY for almost six months.  Today I got my new TTG IGA results back and they have INCREASED again to 8. Deamidated gliadin results are still pending.


I also have Hashimoto's and my anti-thyroid peroxidase antibodies had been steadily dropping in 2012 when my TTG was under control, but now they've gone off the charts again!


This week, I went on disability from work because the brain fog/head pressure and fatigue is excruciating and preventing me from doing my job.


Other than taking a LOT of different supplements I barely eat anything. It's really a shock to me that I'm still seeing problems with gluten.  I'm hoping that if I list out everything that I'm eating, one of the items might jump out as a possible problem to someone.



*Food items in past 6 months:


Real Salt

McCormick's Turmeric

Vita Organic Extra Virgin Olive Oil (I can't find info on this online, I'l be switching to Kirkland brand from now on)

Mary's Chicken Drumsticks (I only get the packages that are labelled gluten free)

Organic Zucchini

Organic Avocados

Crown Prince Boneless Skinless Sardines in Olive Oil (I didn't eat these often and haven't had them in at least a month because i think I might have had a reaction)






Teva Brand Flucanazole (company stated this was gluten free)

Sandoz Ativan (company stated this was gluten free)




Renew Life 50 Billion Ultimate Flora Probiotics

Nordic Naturals Cod Liver Oil

VitaminShoppe Brand N-Aceyl Cysteine

VitaminShoppe Brand Tryptophan

VitaminShoppe Brand Calcium/Magnesium

Solgar Vitamin D3

Solgar Gentle Iron

Solgar Vitamin C

Solgar Chelated Molybdenum

A.C. Grace Unique E

Nutribiotic Grapefruit Seed Extract

Jarrow's sublingual B12

Thorne Pic-Mins

Thorne Riboflavin

Carlson Selenium

Kirkman Zinc

Cardiovascular Research Magnesium Taurate

Life Extension Super K

Life Extension CoQ10



I haven't been too vigilant with the supplements. As long as they say NO GLUTEN, i assume they are ok but maybe I need to call each company and make sure there's no cross contamination?


All my dishes at home are new and separate. I don't wear lipstick and my lotions/facewash/shampoo/conditioner are all gluten free. 


I know sometimes Hashimoto's can cause elevated TTG, but the fact that my deamidated antigliadin antibodies won't go down makes me think it's gluten. Especially since I had managed to get my TTG down to 4 in the past and THAT was what was making my hashi's antibodies go down.


Any insights would be soo appreciated - it's been such a tough year :(  THANKS!!!!

Costco Pharmacy Experience - Possible Cc From Refills

05 July 2013 - 06:01 PM

A few months back, I read about a potential source of CC that I'd never even thought of: pharmacists don't clean the trays between refills unless you specifically ask them to. So for the past few months, I've been asking them to clean the trays before filling my prescriptions to prevent CC. It turns out this might not be enough....


I'm currently taking Nystatin, which are dark red pills. This last time when I went to get my refill, the pharmacist said the pills already had white powder all over them and offered to order a new, unopened bottle for me. Turns out, even if you ask them to clean the tray between refills, it may be too late, because they may have previously poured the pills out onto the tray to fill someone else's prescription and not cleaned the tray during THAT refill and then returned the excess pills back into the bottle. The pharmacist recommended that if I'm really concerned about CC, to always get my prescriptions filled from unopened bottles.

I thought this info might help others, especially those that are more sensitive. I'm not sure if this applies to Costco or all pharmacies in general.



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