Hello all. I just received my diagnosis of Celiac Disease on Feb 25th, which came as a surprise since most of my symptoms (acid reflux, gas, bloating, nausea) were mild compared to y'all's. I'm only a few days into the diet so I haven't noticed much.
However, I have suffered from near 24/7 headaches since I was in high school, and I was wondering if they were gluten-related or not. They reside mainly behind my eyebrows, and feel as if my eyebrow muscles are constantly tense (even if they're not, like if they're being massaged) or that something is trying to push its way out of my head. It mostly feels like a dull ache of pressure, not sharp or stabby. When they're really bad my eyes get all blurry and they hurt as well, my forehead and cheeks hurt worse, and sometimes there is a stabby pain or two coming from my eyes area.
I used to think they were eye-related, since the pain is concentrated near my eyes and my eyes get tired very easily, but I was assured that my prescription glasses are perfect, and I was tested for other headache-causing sight problems to no avail.
Then I thought maybe sinuses, since my cheeks hurt sometimes too, and it seemed to focus around the sinuses. Tried several allergy medicines and sinus headache stuff to no avail.
Then we decided they were sleep-deprivation related, since I have a lot of trouble sleeping at night (including bizarre symptoms such as pre-sleep hallucinations) and never feel fully rested when I get up. A doctor prescribed me 20mg of Elavil a night for the headaches, and it has improved my sleep (no more waking up every few hours) and the headaches have definitely improved as well.
But they don't respond to any pain medications at all, including migraine medicines (I don't think they're migraines), and caffeine makes them worse and makes me sick to my stomach.
Could these begin to resolve on the gluten-free diet? I always assumed that I just had to deal with them for the rest of my life.
I had a positive blood test for celiac in early January of this year but was not able to have a biopsy to confirm until mid March. I had to keep gluten in my diet for two months knowing it was what was making me sick. I did a brief test during that time and limited my gluten intake for about a week. I would basically eat gluten free but include one food that contained gluten everyday. I was shocked to learn that the headaches that I have been suffering for as long as I can remember were being brought on by gluten! Every time I ate gluten I would get a headache within a half an hour.
I've been completely gluten free for two weeks now and my headaches have completely disappeared. I've had maybe two headaches in the last two weeks and they have been a direct result of a accidental "gluttening".
I hope you will have similar results. It really has been wonderful to not be in pain all the time.
Hang in there!