I too have been one of those sufferers, although my issues have been all over from bone, muscles, organs, neurolgical...I just learned to live with it every day like you say. Crazy how we become so tolerant to living in pain.
An ER doc diagnosed me with "gallbladder spasms" after they couldn't find anything on an ultrasound for my excruciating pain. I'm like, gallbladdeer spasms huh, you think so? Duh, of course the thing is in spasms! But what was causing the spasms??? To me his diagnosis was just another way of saying "we have no idea". He gave me pills and sent me on my way but I never filled them.....
I had these pains for 12 years to the point of lying on the floor for hours and just waiting it out in horrible agony. Sad but I kind of learned to just live with it. Since going gluten free 6 months ago I haven't had any episodes (knock wood!)
I know i was just recently diagnosed with celiacs and also other various organ problems, my gall bladder being one; they found i have pollups in my gall bladder. I would certainly have that looked into. Good luck to you.