katie-sbb

Having been tested I am not celiac, but I have a severe intolerance to wheat and a moderate reaction to gluten/glaiden

So I am having so much trouble finding ANYONE who can relate.

When I have wheat/gluten I get the oddest symptoms 24-36 hours later.

Please tell me someone can relate!!!! Please!

• dizzy!!!!
• left leg just gets numbish - I present as normal but it's so aggravating
• back ache/stiff joints
• fatigue/no get up and go

Side vent: I went to this other natural dr. who thought it was all bogus and gave me these supplment with other sensitivites I tested positive, INCLUDING a B complex with wheat germ. Needless to say, I don't take those anymore, but it just bugs me how people just stare at me like I'm making these symptom up. Some restaraunts are so cold hearted. I was left with nothing to eat but iceberg lettuce, broccoli & onions the other day. I was nearly in tears because I didn't bring any food w/me.

One of my friends gave up gluten as she gets extremely achy and stiff from eating it, so you're not alone.
Side vent - always think with your own head about anything you ingest!

I have had terrible migraines, gastrointestinal issues and extreme stomach bloating, for as long as i can remember. I have taken pain pills, multiple doctors, been to the chiropractor, had bio feed back therapy, you name i have done it. After many tests, 2008 they found i had white matter brain lesions. This prompted a spinal tap and then a tentative MS diagnoses. I then lost health insurance and did not go back to the doctor until 2 years ago. My doctor retook brain mri's and with lack of significant change thought the ms diagnosis was wrong. At this time, i was having routine migraines, vision problems, balance issues, extreme bloating, chronic diarrhea. My Dr. found that i was deficient in numerous vitamins, and anemic. My blood pressure was off the charts high also. I was 29 years old. Anyway after all this and many new tests, the ms diagnosis was dropped and i was diagnosed in about a two month span of time with diabetes, celiacs disease, and prolonged q t disorder. I have found that after adhering to the gluten-free diet, taking my medications for my heart and diabetes, all my issues are gone. I have also found that if i accidentally eat something that was contaminated with gluten, with in about two hours I will begin to get a headache, with in 4 hours it will become a migraine. This will usually last for about 2-3 days. No medication for pain helps, just time. If you have any suggestions on what i can do to help when this happens, i am all ears!

I had 10 years of migraines before I went gluten-free. Only Zomig (zolmitriptan) worked - it is specific for that nerve. Ask your doctor for a prescription and take it next time you have a gluten accident and feel a migraine starting.

Hello there
Just wondered if anyone else gets this.
I call my severe headaches Migraine but I don't get the flashing lights that I know some people get. I have a terrible headache that feels like my head is in a vice and it lasts for 3 to 8 days so quite significant then !! When I was in my teens and twentys I had permanent headache to varying degrees and was very rarely without one. I don't get them so often now - in fact only when glutened.
Along with them I get awful nausea, feeling spaced out and occasionally as if my head is hot. My DH (which is now mainly scalp only) gets worse and my whole head feels sore.
These headaches seem to make my hair fall out - honest .
Also they make my pupils really small which also causes some light sensitivity - anyone else have this?
Once the actual headache has gone my brain feels bruised and foggy.
Eating anything makes it worse and I have also thought that taking painkillers can aggravate it !!
My stomach won't take any disprin/asprin based painkillers nor codeine so I can only use paracetamol.
They don't get rid of it anyway so I don't usually take anything.

I know I have to sort out cc issues but I have one of these headaches now and just wondered if anyone has any advice please?
(Hope this is in the right section.

I had 10 years of skull splitting migraines before I went gluten-free. It took a few months, but is well worth it. Before that I took Zomig (zolmitriptan), which was a life-saver. Nothing else helped - not even narcotics touched the pain. I still keep some available for gluten accidents.

My experience is similar to Gemini's. I had no perimenopause symptoms at 47 but BAM I was fully past menopause in about 3 months. Very strange. I was so unhealthy and exactly a year later I was diagnosed with celiac. I think I had celiac since I was 18 but it got so much worse between 46 and 48.

I do agree with ravenwoodglass, though, that if you are not fully through menopause and are now gluten free, there is a chance your hormone levels could return to (near) normal. Just as some who are infertile can get regular ovulation after going gluten-free. And that might be better for you because some of the menopause side-effects are bothersome to me.


Good luck to you!

I think going gluten-free may be (unfortunately) reversing my menopause just as I thought I was finishing that little project. Where do I get more medical information on this??

Hello,

I'm new to this forum but I was hoping that this would help me with my questions. I was diagnosed with fibromyalgia and now an autoimmune disorder which may be systemic lupus but docs say they don't have enough evidence of it. Anyways I knew something was wrong with my body when I got continuous aches and pains throughout the 3 or 4 years til now. I have an awful intolerance to gluten which makes my pain 100 times worse. I find that if I eat cookies, cupcakes, anything with wheat or gluten my body just can't handle it and I can hardly move at all. So I have cut gluten and wheat out of my diet but something weird has been happening even though I don't eat it anymore. Yesterday when I woke up in the morning I felt fine, then I went back to bed, and got up, but when I got up the second time I was extremely dizzy, so dizzy I had to make my way back to the bed really fast because I felt so faint, and my body was getting so hot it was so hot that I felt as if I had to open a window, it was cold in my house and cold where I live, and I felt it was so hot that I had to change my pants into shorts and my stomach felt really uneasy. Later on in the day after coming home from a walk I was experiencing this pounding migraine and my muscles and joints where aching so badly. My stomach was feeling queasy again along with the migraine making me feel like I had to vomit, which I indeed did have to vomit quite a bit even though I didn't eat very much at all yesterday. Even before yesterday about a month or two ago I've experienced night sweats, and when I was at a restaurant, I felt like my body was completely overheating and dizzy, and the person I was with wasn't hot at all, and apparently it was just me. I'm only 25, and I'm kind of getting scared. I'm going to go see a doc probably tomorrow but can you get early menopause at the age of 25. I haven't even had any kids yet so I'm freaking out because I don't want to be infertile, I'm not sure if this may be symptoms of fibro and I've talked to some fibro sufferers but I feel like my symptoms are getting kind of scary.

I've had nausea, vomiting, sweats, chill, and dizziness as migraine aura before. I usually have no warning at all. It's only happened a couple of times, but it was so intense, I called into work and presumed it was stomach flu until the headache started.