I replied to both the responses from mscurious and mushroom, but I don't see them posted. Thanks so much to both of you! It sucks that we have to go through this, but comforting to know we're not alone. MSCURIOUS...please let me know about biopsy results! Mushroom..thanks for the advice, I will definetely keep that all in mind
Welcome to the board, Mezzo. Keep reading on here - you will find oodles of post about abdomen distention, bloating, gas, heart palpitations. These are all classic gluten intolerance symptoms around here. It is an anxious time waiting for testing results, but even if your tests come back negative that does not mean that gluten is not the culprit. There is both a 20% error rate in the testing for celiac, and also, as is now being recognized by the doctors, a non-celiac gluten intolerance which requires a gluten free diet just as much as celiac disease does. Sorry to be a little joy-germ here , but you may as well know it now as keeping your hopes up until after you get your results. For those who test negative (and many test negative on both blood and biopsy) the only present way of determining whether gluten is a problem is to eliminate it (which is, after all, a lot cheaper than a bunch of tests) You can also do the genetic testing to see if you have the predisposition for celiac, but just having the gene is not diagnostic - many people who carry the gene have no problems with gluten. There are also some other food intolerances that can mimic some of the celiac symptoms, like lactose/casein and corn, also soy, and sometimes we have to eliminate these too and then challenge them to see if they are a problem.
If you eliminate your food intolerances you should not develop any of the side effects that they cause if you do not already have them. That's the good news. It's like quitting smoking - after 5 years you go back to the normal population statistics.
Thank you mushroom for your advice. I will definetely keep that all in mind! My doctor recommended continuing to eat food with gluten for the next week, and going gluten free the following week to see if there's a difference in my symptoms, but after reading how gluten is literally a poison to people with celiac, I am terrified to eat even a piece of bread knowing it's damaging my intestine
Unfortunately, I too suffer from this... as does my sister. I look completely normal in the morning, and can eat one wrong thing and blow up just like someone used a tire pump on my stomach...its EXTREMELY uncomfortable. I think its pretty common... usually referred to here as "bloating"... you'll see it quite often. Hope you have success figuring out what's going on with you. Several of us are still in the "testing phase"... its a long wait. We're here if/when you need us.
MsCurious, I'm sorry you are suffering from this same problem, but truthfully it feels comforting to hear I'm not alone. What kind of tests are you getting done? I got my blood tested and sometime next week I go for an ultrasound. I really hope it doesn't take too long to figure out what's going on, this is just so scary..let me know how it goes with you please! P.S. How old are you? I just turned 25.