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Member Since 28 Mar 2005
Offline Last Active Aug 17 2006 09:30 AM

Topics I've Started


20 December 2005 - 07:55 AM

Listerine contains alcohol - does anyone know what kind of alcohol, or if there are other ingredients that are gluten-free. I contacted the manufacturer (Pfizer), but they're giving me the line that they can't guarantee the product is gluten-free without actually answering my question! How about Scope or any other mouthwash?

Anyone Have Any Vacation Recommendations?

07 December 2005 - 12:50 PM

I've read and searched this message board, but I didn't find anyone's recommendations about where they would/could go for gluten-free travel. I was diagnosed in March, and really haven't traveled since. I want to go somewhere warm this winter - Florida, Caribbean, someplace to escape the Boston winter. But in addition to the complications of finding the time and a place that my wife and two young daughters want to go to, now I have to find a place that can accomodate the gluten-free diet.

Has anyone taken a vacation to someplace warm where you know that gluten-free food was no problem? If you were me, where would you go (both with and without the children)?

Medical Books On Celiac Disease

28 March 2005 - 12:20 PM

I'm looking for a good, informative book on the science of celiac disease - typical symptoms, diagnosis, physiology, treatment, etc. Two books I saw on Amazon that I'm thinking about ordering are:

Celiac Sprue: A Medical Dictionary, Bibliography, And Annotated Research Guide To Internet References - Icon Health Publications; Paperback

The Official Patient's Sourcebook on Celiac Disease: A Revised and Updated Directory for the Internet Age - Icon Health Publications; Paperback

Anyone hear of these? Any other books that jump out? Could even be a chapter in another type of book that deals with medical issues.


Guess How Long I've Had It!

28 March 2005 - 11:27 AM

Just got diagnosed via a biopsy which showed "mild damage" to my intestinal villi. Doctor was 100% positive I had celiac disease. Kind of back-doored into the diagnosis because the GI Dr. was really checking my esophogus for GERD that I've had for 7 years or so, and decided while she was down there to peek around. I had the blood test on Thursday (no results yet), and just started the diet!

So I've lost 15 pounds in the last 6 months (pretty stable before then), and developed upper back pain 15 months ago that hasn't gone away despite a chiropractor and physical therapy - they said I had thoracic outlet syndrome, which is when your nerves are compressed in your shoulders and your arms fall asleep all the time - similar in symptoms to carpel tunnel, but not in physiology.

Won't see the doctor again until May, at which time I'll have the answer (or better, her guess). Given this history, what's your guess as to how long I've had active celiac disease?!!! Best guess wins...!

Also, any thoughts on the relation between celiac disease and my back and shoulder problems and/or GERD would be much appreciated!

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