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Jules

Member Since 15 Jan 2004
Offline Last Active Nov 14 2008 01:50 PM
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Topics I've Started

Frustrated - Help Please

14 October 2008 - 02:46 AM

Can anyone tell me how long it takes for kids to show signs of improvement.

My 2 year old was diagnosed as having celiac disease in May of 08. She did not test positive in the blood workup but the drs say she showed the early warning stages in her biopsy. We have been working on a gluten free diet (when she does eat something) she is being supported by a G tube really, for almost 6 months and they did another biopsy and I am awaiting the results. My Drs said it could take up to 1 year to see changes. My big question is if she is barely eating (for unknown reasons she stopped in April 08) and what she does eat is gluten free shouldn't we see healing taking place. She never had any of the normal gluten symptoms that I see here. She did not sleep through the night and would fussy in her sleep, she was gaining weight, did not have an extended belly, pooped every day but usually hard. SO with all this said I am still questing her diagnosis........

Thanks for any help anyone can give me.

Bonnie

Is Pediasure A Trigger For Any Of Your Kiddos?

18 September 2008 - 10:46 AM

Just wondering if anyone has found Pediasure to be a trigger for any of your kids (it is suppose to be gluten-free)?

The 2 yr old little girl I work with (I'm an occupational therapist) is NOT allergic to milk or soy products according to the MDs.

Her family and I suspect that there still might be some other additive or something in the Pedisure which is causing her nauseau and/or lack of appetite to the point where she is now G-tube fed to sustain a reasonable weight--unfortunately the only G-tube intake formula suggested by the MDs at this point is Pediasure, so that is her ONLY significant source of food/liquids at this point. Any thoughts are appreciated.

Jules

How Long Is The Healing Process For 2 Year Old?

06 September 2008 - 06:35 PM

I was wondering if anyone could give me an approximate length of time (I know that its different for everyone) that it should take the intestines to heal after going on a strict gluten free diet (with no known gluten mishaps)? The child I am referring to is 2 years old and has been on a gluten-free diet since April.


Thank you.

How Long Does The Healing Process Take?

06 September 2008 - 06:32 PM

I was wondering if anyone could give me an approximate length of time (I know that its different for everyone) that it should take the intestines to heal after going on a strict gluten free diet (with no known gluten mishaps)?

I am an occupational therapist working with the family of a 2 year old little girl who was diagnosed in April with celiacs and has followed a strict gluten free diet since then. She still refuses to eat most foods and when she does eat, its just a bite or two of something and then she's done. I would have thought that after 6 months she would have significantly improved. Her family and I are very concerned and looking for any guidance. The family is of course seeking MD's opinions, etc., but many are taking a "wait and see" attitude. I will post in the babies/children's section as well.

Thank you.

2 Year Old Who Stopped Eating All Foods

05 September 2008 - 03:49 PM

Hi Everyone,

I'm an occupational therapist working with a family that has a two year old daughter who had a series of chronic ear infections and was hospitalized in March/April. Upon returning home from the hospital her family was concerned as she had no appetite and was not eating. Eventually she was put on a G-tube (stomach tube) and is now fed at night via the tube to receive the proper calories to maintain her weight. She has also been diagnosed with Celiacs and her family has had her on a strict gluten free diet (what little food she does eat).

She will often chew food and spit it out and will sometimes go for days without eating at all. She plays with her food but rarely finds any pleasure with food that she tastes. She often requests a food, tries it and acts disappointed as if her taste may be altered in some way. On several occasions she will eat one or two tiny bites and then want to be excused from the table. We are also seeing some behaviors (tantrums, yelling, hitting) that seem out of character for an otherwise sweet little girl.

So here are my questions: For those of you who have had a toddler that refused to eat (or ate very little), how long did this problem last after going completely gluten free? and

Has anyone heard of a loss of taste or altered sense of taste related to Celiacs? and

Why do these kiddos chew and spit out the food?

I would appreciate any feedback. Thank you.

Jules