My 11 year old son has been feeling lousy for a few months, stomach pain, diarrhea, very tired and very depressed. Since this was EXACTLY how he was before his diagnosis 4 yrs go, I took him to the GP for bloodwork. Low Vit D, Iron and Zinc, and his ttg is sky high. Last check was about 18 months ago and everything was normal.
We have three celiacs, so the whole house is gluten-free, and we know the drill regarding cross contamination. He is homeschooled, and when he goes to a friends house the parents are very conscientious about how to feed him. We eat out about once a month, at the two places we know take extra precautions to avoid any cc- Pizza Ranch and Red Robin. His sister and I are doing fine, antibodies at zero, and I just had an EGD with no damage...so if he is getting cross contaminated somewhere, it would be unlikely that we wouldn't be also.
I do suspect a sensitivity to both dairy and oats. (dairy seems to cause skin issues, oats make him gassy.) He doesn't eat a ton of things with oats, but definitely has regular exposure to them. The ones he does eat are gluten-free oats.
I know about molecular mimicry, but am a little fuzzy on the science. If that is what is going on, could his exposure to oats and/or dairy cause the increase in antibodies? And if so, is it logical that for approx. 3 years they did NOT cause an issue, but NOW the immune system has become confused?
He will be following up with a GI, waiting for a call back, but am really puzzling over this and would appreciate your insight! Thanks
MitziGMember Since 01 Apr 2011
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Dx via blood and biopsy April 2011, two kids dx at the same time
Dx with Interstitial Cystitis April 2011