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Member Since 01 Apr 2011
Offline Last Active Mar 14 2015 10:41 PM

Topics I've Started

Can Oats Or Dairy Raise Antibodies?

11 December 2014 - 10:08 PM

My 11 year old son has been feeling lousy for a few months, stomach pain, diarrhea, very tired and very depressed. Since this was EXACTLY how he was before his diagnosis 4 yrs go, I took him to the GP for bloodwork. Low Vit D, Iron and Zinc, and his ttg is sky high. Last check was about 18 months ago and everything was normal.

We have three celiacs, so the whole house is gluten-free, and we know the drill regarding cross contamination. He is homeschooled, and when he goes to a friends house the parents are very conscientious about how to feed him. We eat out about once a month, at the two places we know take extra precautions to avoid any cc- Pizza Ranch and Red Robin. His sister and I are doing fine, antibodies at zero, and I just had an EGD with no damage...so if he is getting cross contaminated somewhere, it would be unlikely that we wouldn't be also.

I do suspect a sensitivity to both dairy and oats. (dairy seems to cause skin issues, oats make him gassy.) He doesn't eat a ton of things with oats, but definitely has regular exposure to them. The ones he does eat are gluten-free oats.

I know about molecular mimicry, but am a little fuzzy on the science. If that is what is going on, could his exposure to oats and/or dairy cause the increase in antibodies? And if so, is it logical that for approx. 3 years they did NOT cause an issue, but NOW the immune system has become confused?

He will be following up with a GI, waiting for a call back, but am really puzzling over this and would appreciate your insight! Thanks

Is It Possible For A Dx Celiac To Not Have A Problem With Barley?

01 May 2014 - 07:10 AM

Monday I went grocery shopping after getting some heavy duty painkillers at the Dr for a separate issue. (don't worry, I didn't drive) Anyway, never shop for gluten free groceries when you are stoned. I bought two boxes of Kellogs Cocoa Krispies. In my head they were Moms Best Coco Krispies, which are gluten free. Kelloggs however, contains barley malt flavoring.

Tuesday I ate two huge bowls (still apparently under the influence? I dunno)

A couple of hours later my daughter comes screaming "Mom! Did you eat these? They have gluten in them!" 3 celiacs in the house, we know our stuff. Unless we are drugged.

But...I had ZERO reaction. Not an ache, or pain or itch or even a fart. All 3 of us had positive blood work and biopsies done 3 years ago, so I know it didn't go away...(in my dreams). And any time I have had any cross contamination with wheat, I barf my guts out. An accidental restaurant enchilada that was "so good I cant believe it is corn! (because it was wheat!") sent me to the hospital for three days last year. Is it possible for a celiac to be bothered by only certain forms of gluten? Is barley gluten less potent? Or is malt flavoring superheated or something? I'm kind of baffled...

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