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jaywalker

Member Since 06 Apr 2011
Offline Last Active Aug 04 2013 04:16 AM
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Topics I've Started

Is It Worth Making The Inclusion Of Gluten Intolerance Even More Salient?

28 July 2013 - 04:47 AM

Not sure I chose the right sub-forum for this. Please feel free to move it

 

I stopped posting on this forum for about 2 years. I recently returned because Google searches kept throwing me back here, and I realised I could find a lot more answers and  relevant discussion here than anywhere else.

 

Also I realised- crucially- that this forum makes no distinction between Celiac and Gluten Intolerant, except where relevant. 

 

And it's not often very relevant is it? Given that it's  nigh-on impossible to make a clear distinction, in practice, between the two groups (given lack of availabity, and unreliabity  of diagnostic tests) and given that the two groups seem to have identical symptoms, identical co-morbidities, and identical problems in coping with the illness!

 

So, hats off to this forum for recognising all that!

 

But still,   as somebody who's repeatedly  had her symptoms dismissed as  psychogenic, due to failing the blood test, I pretty much ceased to feel as if i had any rightful place on a celiac forum;  especially given the increasing likelihood that I fell into the "intolerence" category (which wasn't really recognised at all, a few years back, when i started on this tortuos journey)

 

I see that the sub-headings on the sub-fora give repeated clues as to the overall stance this forum takes. Again, well done!

 

It would be churlish, I think to suggest a complete name-change. Still, I do wonder if that might be for the best.

 

jay :)


Dietery Advice Badly Needed! How To Live Without Grain?

26 July 2013 - 06:43 PM

In the past two years or so, I've been developing intolerance of all  kinds of foods, inluding fats, nearly all legumes and seemingly all of the non-gluten grains, as well as the gluten ones of course.

 

I'm also vegan ( used to be just veggie, but  intolerences pushed me the whole way)

 

I seem able to tolerate Soya Milk. Often , that's my only source of protein.

 

The NHS referrered me to Dietician who unhelpfully told me that I  must eat grains, or else I'd develop serious deficiencies.

 

She was a bit of an idiot (she told me bananas are not an energy food, but a fruit!) so I'm not altogether certain that's true, but of course it's worrying!

 

Since then, I've ben re-intoducing rice at intervals, then dropping it again whenever the reactions get too severe. Seems my sensitivity diminishes when I'm off it, abd then increases with increasing exposure. Same for other foods, by and large.   But I went for rice because it was the last of the grains to start provoking reactions,  my reactions to rice never got quite  so severe as other reactions, and it is supposed to be easiest to tolerate.

 

Today I suddenly started reacting quite severely to rice again. So that's rice scratched from my diet for the next few month, again. Should I be worried about these deficiencies?

 

Anyway, i'm really sick of this stupid compromise. Any better ideas?