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Member Since 11 Apr 2011
Offline Last Active Mar 15 2014 09:51 AM

Posts I've Made

In Topic: How Long Is Gluten Detectable In Your Skin Or Blood After You Go gluten-free?

15 February 2014 - 02:31 PM

I just saw a dermatologist at Women's College Hospital in Toronto three weeks ago and was assured that the antibodies would still be in my skin after three years gluten free.  I had the biopsy done for DH and will get the results on Feb 27.  She was absolutely certain that they stay in your skin for a very long time.  I also read a research article recently that said the average clearing time was close to 12 years.  

In Topic: Does Dh Ever Go Away?

23 September 2013 - 08:59 AM

Hi Abby,


I've had a rash for about 3.5 years now and have been gluten free for 2.5, low iodine for a little over one year.  My skin seems very sensitive to the amount of iodine I eat, and I have occasionally gotten to a really great point of healing and clearing before managing to muck it all up by going on holiday or something.  Of course, then it's like being back at almost square one again for the longest time.


As far as I can tell you, it does seem to have an ebb and flow that sometimes seems to not correspond to anything you are doing/eating.  It really is the most frustrating thing I have experienced.  It's still early days for you, but it sounds like you are really responding well to the changes you've made.  Don't lose hope.  Keep up what you are doing because it should work, even if there is no clear timeline (it's different for each one of us).  For myself, I've been thinking about trying hypnosis to help stop scratching and picking at my skin.  I can see that I'll be covered in scars at the end of this.  If I was ever vain, this has really helped me become a more humble human being.

In Topic: Dermatitis Herpetiformis Question

02 May 2013 - 06:13 AM

Squirmingitch is totally on the money here.  If I were you, I'd give up the gluten this minute and never look back.  Forget about a diagnosis and just run from the gluten.  RUN, my friend!  My sister just told me that she's starting to get a rash on her behind and with our family history of celiac and DH I was kind of surprised she hadn't already quit eating gluten.  I mean, she's SEEN my skin and that should be enough to scare most people off gluten.
It's taken 26 months gluten-free so far to start seeing and believing that my skin is finally healing.  Lots of flares still, but iodine is a big factor in that..
Good luck to you in whatever you decide to do.

In Topic: Can 50 Mg Of Dapsone Really Make Me Feel This Way?

11 April 2013 - 11:30 AM

The dark urine is kind of scary.  I would definitely have stopped taking it at that point.  I've tried twice to take Dapsone at 50mg dose and just couldn't keep at it for more that 10 days because I felt like such crap.  It was slightly better the second time, but it really boiled down to not being able to tolerate exercise (which is a big part of my life).


I hope you are well.

In Topic: DH Photo Bank

21 March 2013 - 05:47 AM

That is NOT DH.


It looks quite mild, but it certainly could be DH.  I get blisters and red spots on my fingers all the time.  The blisters are sometimes very small, just pore sized.  Stingy, burny, itchy and blisters sounds a whole lot like DH to me.

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