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Member Since 18 Apr 2011
Offline Last Active Sep 23 2014 08:30 AM

#774405 Things People Say To Celiacs

Posted by on 18 February 2012 - 02:35 PM

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.
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#762945 Another Piece Of The Puzzle, 30 Years Late. Do I Laugh Or Cry?

Posted by on 07 January 2012 - 10:01 AM

It's hard to look back at all the years we didn't get to live to our full potentials.

I was always nauseous, never played sports (didn't have the energy), had a hard time concentrating in school, suffered from osteoarthritis and chronic back pain from my early teens, didn't finish my degree because I just couldn't focus even though I knew I was smart enough, suffered from infertility and repeated miscarriages ....

But. Given the choice between laugh and cry, I always choose to laugh. My life is amazing NOW and that's what matters. I still live with a level of pain that would likely send the average person to the ER but it's better than it has been since I was 9.

Yes, I wish I had been diagnosed as a child but right now I am 35, happy, healthy and looking forward to the next 60+ years I have left to me.
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#757008 Who Makes Best Pizza Crust?

Posted by on 15 December 2011 - 01:32 PM

I like the Kinnikinnick crusts. They are thicker than I would have liked in my gluten days and my son thinks they are a bit sweet but the texture is great and I really like them.
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#749465 The Most Annoying Thing About Celiac Is...

Posted by on 21 November 2011 - 08:36 AM

I do have another pet peeve actually.

I would like to go to the store and buy some gluten free cookies/bread/cereal/cake mix/snacks/frozen meals. Not gluten free, corn free, dairy free, egg free, organic, vegan, fat free, peanut free, seed free and fair trade.

It's not that any of those other things are bad but I get annoyed when all the "special diet/allergy" groups are lumped together into one really expensive and substandard product.

I like eggs and dairy and nuts and meat and fat in my food.

Same goes for cookbooks.
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#733317 The Good Over The Bad Of Celiac

Posted by on 23 September 2011 - 10:35 AM

I have learned that I am not a lazy person. I have believed all my life that I just simply wasn't as smart or as driven as everyone else but I was wrong. My food was poisoning me.

I am smart and driven and energetic. I have accomplished things in the past 6 months that I never dreamed I was capable of and I'm just getting started.
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#732779 The What's For Dinner Tonight Chat

Posted by on 21 September 2011 - 02:53 PM

French toast (made with Simona's Challa I baked yesterday) and bacon. It's only 3:50 here and I'm going to go start cooking because I can't wait any longer!
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#730472 A Tattoo To Symbolize The New Me

Posted by on 14 September 2011 - 03:14 PM

Before you get a tatto, remember it is permanant. How will it look when you are 65? Probably all wrinkled and sagging. Sure you want that?

All of me is going to sag. Since my saggy body is unlikely to be on public display when I'm in my old age I don't think a few extra decorations are going to matter much. All my tattoos (already done and planned for the future) mean something special to me. They have marked important events in my life. The births of my children (I have a tattoo for each of them), the loss of 3 unborn babies, marriage, life changes ... I love that my skin is becoming a visual story of my life. I think I'll cherish it just as much when I'm 80.
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#727032 Just Glutened Myself Alot On Purspose To Identify Reactions

Posted by on 01 September 2011 - 08:27 AM

I'm wondering if you are going to come back here complaining of symptoms. I don't think that you were stupid to gluten yourself on purpose. Since you don't have medical testing data to support eliminating gluten, it would seem the intelligent thing to do to be sure.

I agree with Skylark that if you can keep this up for a couple of weeks, get yourself tested. Is that how long a gluten challenge should be, experts? I've heart two slices of bread a day for two weeks.

It would be good to know for sure.

I was told 2-4 servings of high gluten foods for 3-4 months. I tried and lasted until lunch on the first day. Never again.
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#724117 Struggling :(

Posted by on 19 August 2011 - 03:53 PM

I'll add another voice to that call for new friends.

Even one good friend would be better than a whole bunch of "friends" who don't respect you.

My advice to you in no specific order would be:

1. Counselling to deal with both the depression surrounding your celiac and the drinking.

2. Possibly treatment for the alcohol abuse, if you are drinking a lot because it's the only thing that makes you happy then you have a problem. This piece of advice comes from 8 1/2 years of sobriety. Life without drugs and alcohol is great. I did it and you can too.

3. New friends. It's hard to make new friends but perhaps a Celiac support group, a sports club, dance/language/art/fitness classes at the rec centre would be a good place to start.

4. Find ways to make yourself happy that don't involve food or booze. Hobbies are therapeutic and satisfying. I knit, spin, kayak, read, garden, take care of my chickens and bake.

5. Make a plan. Get online and get on the phone and find restaurants in your area that either have gluten free menus or have confirmed with you online that they can come up with gluten free foods. It's nice to walk into a restaurant with friends and be able to order a good meal.

6. Find at least one supportive person in your life and lean on them. Whether it's your wife, child, parent, grandparent, friend, neighbour, counselor... everyone needs someone who really understands them.

Good luck, we're all behind you. Hope things get better soon.
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#723859 Diagnosed Celiac, But Not Allergic To Wheat?

Posted by on 18 August 2011 - 05:56 PM

Gluten intolerance and Celiac are not allergies. You are not allergic to wheat, your body has an autoimmune reaction to the gluten protein found in wheat, barley, rye etc. Now, obviously this means you can't eat wheat, allergic or not.

Allergy means that your body initiates an anaphylactic or histamine reaction to a substance.

Autoimmune means your immune system attacks your own body in various ways when confronted with a substance. Antihistamines and Epipens will not help you in this instance. On the other hand, your throat isn't likely to close up either.

Clear as mud?

And my mom has a soy allergy and her #1 symptom is joint pain.
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#720775 You Know You're Gluten Free If......

Posted by on 04 August 2011 - 10:59 AM

You burn your toast and eat it anyway because those two tiny pieces of bread cost $1.50
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#720774 Oh Crap. Please Let Me Get Off Easy This Time

Posted by on 04 August 2011 - 10:57 AM

What you might want to do to be on the safe side is maybe wear a mask when your feeding them so if that happens again you aren't breathing in the dust through your nose and mouth. Have a great time on your trips and happy birthday to you and your son in advance.

I will next time. I wasn't even feeding them, my oldest son takes care of that. I was making a repair to the shelf that holds their feeder inside the coop at night (we have raccoons so their food dispenser comes in at night and sits on a shelf in the coop.) All I managed to accomplish was spraining my thumb, spilling their food (well,Lily did that) and mildly glutening myself. The shelf is still broken but I'm not going int here again until after my vacation!
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#720735 Oh Crap. Please Let Me Get Off Easy This Time

Posted by on 04 August 2011 - 08:27 AM

Hi everyone.

I took a bunch of digestive enzymes and a muscle relaxants and went to bed. Luckily I seem to have gotten away with it. My worst symptom of a reaction is 10-14 days of intense burning back pain so I am very happy and relieved that I didn't seem to react too badly. I'm a bit fatigued and my back doesn't feel great but that's okay, I can deal with that.

We are going over to Vancouver for 4 days (leaving tomorrow), then I'm home for 3 days during which I have to unpack, throw a birthday party for myself and my 16 year old son, do the laundry and repack and then I fly to San Diego for 6 days. So this would be a very bad time to get glutened.

I'm already so worried about eating in Vancouver because if something goes wrong then my trip to San Diego won't be as much fun. I'm also a bit panicky about eating in San Diego since I am flying and can't drag a cooler with me like I am to Vancouver.

I thought about making my own gluten free chicken feed but was told that a gluten free feed that is high enough in protein for the layers would be really expensive and there is nowhere local that I can even buy the individual components. All the feed/farm stores here sell premade feed and I sure can't afford to feed my chickens out of the bulk bins at the grocery store.
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#720320 Oh Crap. Please Let Me Get Off Easy This Time

Posted by on 02 August 2011 - 02:41 PM

So I'm outside working on the chicken coop when my 2 year old drops the feeder right beside me.

POOF! Big cloud of chicken feed dust erupts right in my face. Couldn't help but inhale it.

I rushed over to the hose and hosed myself down. Washed my face, rinsed my mouth, washed my arms, came in and dumped all my clothes in the washer.

I am leaving for vacation in 3 days, my gluten reactions last up to 2 weeks. Please, please, please let me get off without a reaction just this one time. :(
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#719264 Problems With Soda - Help?

Posted by on 28 July 2011 - 07:37 AM

I'm sensitive to caffiene.

A cup of coffee makes me feel like I've been glutened for several hours as does a can of Coke.

I can handle decaf coffee in small doses and can somehow drink all the tea I like.
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