Chad Sines

I think one thing people miss early on is that not every reaction is gluten or CC. Lots of us have multiple food intolerances or just plain old weak stomachs that take time to resolve.

This is weird to hear because they seem to cause me GI issues even though they are gluten-free. Interesting how we are all reacting so differently.

My soy intolerance hits me faster than gluten. I can feel off and if I have too much projectile hurling king of the world!!

I did not have this pre-Celiac, so along with dairy maybe one day this will clear up and I can eat the nasty soy that I did not like to begin with.  

I agree with you completely. I had to make that post so that it was real in my head. I kept going back to the Bs and D every now and then so "they would help me heal" with the same result every time...wrecked system. Vitamin D and the Bs are very, very hard on a lot of us, but they are a bit nudged at times. That fatigue may simply be your worn out body or poor sleep and not a deficiency. You just do not know and taking lots of one vitamin will never answer that questtion.

I hope this does not come off sounding too negative, but I do not think anyone who sees the physician and has been diagnosed for Celiac should be megadosing on any vitamin or taking more than a multi without a test. It just does not really make sense to me. I kind of get it if you are just not going to the doctor although it is ill-advised. The thing is that if you already see the doctor...well..while you are there. Once you have that test, you know for sure what you need or do not need and whether or not it is worth taxing your system to take.

i just have to think that the amount of gluten that could possibly get through that process has to be no more than you would get CC'd with just being alive assuming nothing is added later to it. I think a lot of people's issue with the hard liquor is that their gut is too tender for it. I could be wrong.

i go through cycles of being intolerant of things. The things I never seem to tolerate are dairy, soy, fructose (fruits, sugar drinks, high fructose corn syrup). Steamed veggies are rough. Coconut oil decimates me even in small amounts.

I find that after a few days on the specific carbohydrate diet I really, really get normalized and feeling better although i have never felt completely normal.

I think it is just so personal what foods each of us tolerate except for some common things. Many of us are intolerant of multiple things which means we can eliminate one and have another that is bugging us so we think we are on the wrong track.

i did, but it was deleted fast. someone was quick.

switching topics--

What irks me is the amount of misinformation on the internet regarding celiac. It is so confusing even when you know the facts. I think having this site is very helpful because collectively we are going to have better information that we can have as an individual.

You will never catch me Irish. I have my alarm system hooked up to dump gluten into the ventilation system. Guaranteed to defeat every celiac-er. mwahahaha.

I will sit back with my gluten coffee and laugh.

*so tempted to start another thread labelled "So there is gluten in coffee" but my desire to live outweighs my desire to be mischievous.

Many show negative on the tests or do not feel the biopsy diagnosis is worth the damage to get it back to positive. My docs were very happy to diagnose simply based on symptoms on results from gluten elimination. As they and we all say, there is only one treatment and it is free. No need for any doctor to tell you that you have celiac to get better.

You could simply tell people that you have been diagnosed. Come to think of it, I have never had a single person ask me if this was a self diagnosis or a physician diagnosis or a biopsy diagnosis. I simply say "I have celiac disease, so I will not be able to eat..." Works every time.

Uhmm...Has anyone thought that he may just not understand? My family still gets confused on certain issues. My mom broke down and read a book to better understand it. Most of us did not get it for a while after we heard about it. If he is not a jerk in other areas, then I would be careful to not make any assumptions.

How about just saying "Let me pick the restaurants for this month" or find gluten free things he will like to eat as well.

It amazes me how upset we often get when friends, family, and coworkers do not "get" Celiac. A lot of our posts here revolve around waiters who do not get it, store managers, and other food prep people. But in all honesty how many of us had any clue about Celiac before we realized we had it? Even with all our research since that diagnosis, we are still learning. I have to say despite my medical training I did not get it at all other than the avoid gluten thing. I think we need to learn to give the world a break.

The nutritionist suggested coconut oil and I bought some but haven't added it to my diet yet. Does it TASTE like coconut when you cook with it? I ask because when I was three years old, Mom was making a cake and had coconut out that she was going to put on the frosting. She had her back to me while she was mixing the cake and I ate that whole box of coconut. Then I proceeded to purge the coconut.    A lot. Ever since then I have never even had the desire to eat the stuff.

But I guess I will if I have to.

To me the virgin coconut oil does not taste like coconut at all. Just oily.

In my experience most nutritionists simple parrot what they heard in school and fail to accept anything that challenges that view. I am not saying this is one of them; however, I think we put too much stock in their opinions.

I like the SCD; however, my biggest issue with it is that the site and book seem outdated. The other big issue I have is their pushing of the homemade yogurt even if you have a bad reaction to milk. I believe in the book she mentions to go for it unless you are anaphylactic. Many of us have allergic reactions to milk that are not anaphylactic but are also not simple lactose intolerance. One theory they use is that you are depriving the bacteria of food; however, many of the foods they recommend are high in sugars. What's worse is that many are high in fructose, a gi issue for many.

Still, I do think it is worth a trial. I am eating paleo and having good success with that. I do avoid certain foods that SCD says to avoid.

Like with everything, you have to find what works for you and that may be different than what works for me and everybody else.