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Chad Sines

Member Since 19 Apr 2011
Offline Last Active Dec 31 2014 02:23 PM

#773807 Saw The Nutritionist

Posted by on 15 February 2012 - 07:03 PM

In my experience most nutritionists simple parrot what they heard in school and fail to accept anything that challenges that view. I am not saying this is one of them; however, I think we put too much stock in their opinions.
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#767925 How To Cope After Negative Blood Results

Posted by on 24 January 2012 - 10:40 PM

I like the SCD; however, my biggest issue with it is that the site and book seem outdated. The other big issue I have is their pushing of the homemade yogurt even if you have a bad reaction to milk. I believe in the book she mentions to go for it unless you are anaphylactic. Many of us have allergic reactions to milk that are not anaphylactic but are also not simple lactose intolerance. One theory they use is that you are depriving the bacteria of food; however, many of the foods they recommend are high in sugars. What's worse is that many are high in fructose, a gi issue for many.

Still, I do think it is worth a trial. I am eating paleo and having good success with that. I do avoid certain foods that SCD says to avoid.

Like with everything, you have to find what works for you and that may be different than what works for me and everybody else.
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#767811 How To Cope After Negative Blood Results

Posted by on 24 January 2012 - 03:10 PM

I read this and said to myself "What is there to cope with?" You do not need any test to tell you if you are on the right track or not. A great many of us here have tested ourselves repeatedly with diet.
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#762360 Just A Vent- In Laws Are Making Fun Of Celiac

Posted by on 04 January 2012 - 05:07 PM

If you start making fun of someone with cancer or Alzheimers, watch how fast they correct you and then ask what the difference is between what you did and what they keep doing.
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#757790 Two Docs With Differing Opinions

Posted by on 18 December 2011 - 11:53 AM

i liked that article. the doctor was speaking about latent celiac and negative biopsy celiac. He even mentioned how the old way of thinking is no longer valid.

Unless i am mistaken and missing something, i do not think a non-celiac (i do not differentiate celiac vs gluten intolerance, allergy, etc since tests fail so often) will have symptom relief with the removal of gluten. And if that is true, then BINGO.

Doctors can do a lot of emotional damage as well. How many of us have been told to live with this IBS or it was in your head or it was .. Things like that stick with you and hamper recovery.
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#757788 Sad For The Child But Not Much I Can Do

Posted by on 18 December 2011 - 11:48 AM

The first year celiac book is a great one IMO. it was the first i read and I loved how it was a good starting guide. i bet you she will come back to you with questions as she reads it.
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#757775 Two Docs With Differing Opinions

Posted by on 18 December 2011 - 10:06 AM

The thing is she mentioned she is getting better gluten-free. That is not going to happen if the diagnosis is wrong. Sure there might be additional issues going on, but a positive response is a great diagnostic tool. I just read an article that someone posted from an MD in the child thread where the doctor even stated using it as the simplest and very effective diagnostic tool for celiac.
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#757485 Two Docs With Differing Opinions

Posted by on 16 December 2011 - 09:48 PM

pretty simple. if being off gluten is working..then...well...you got your answer. every doc has their on beliefs, biases, and proclivities. it sounds to me that you already have your answer but this quack has you bothered a bit.
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#756953 How To Do Deal With Rude Family Member?

Posted by on 15 December 2011 - 09:51 AM

If he is just being a jerk, then bonk him upside the head or provide some distance until he wonders what is up. Then again some people would never notice.

On a cautionary note. The one thing many people do that they should not IMO is to make sure everyone in the world knows about their medical issues all the time. "Oh I can't eat that"... or "don't eat that in front of me." It gets old fast to the rest of the world and can cause some negative reactions over time.. I admit that I was over talking about it in the beginning although I did not care who ate what in front of me. I always had something I could eat with me. That is my responsibility since the disease is mine. We have to make sure this does not consume us and our friends and family.
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#756718 Possibly Celiac, Gi Disagrees

Posted by on 14 December 2011 - 12:04 PM

My first AHA moment even though I did not know it at the time was when I went on Atkins. No breads and it just so happened that I naturally avoided a large amount of gluten added things. I felt phenomenatastical that entire year. Until this year I had always wondered what the key element was. Gall bladder died (confirmed?? by HIDA scan/no stones) on me after a year on the diet(family history) although and here is the kicker. The day those issues started was a time I ate a pizza. Yeah...you can see where i am going in hindsight. A year with literally no cheats at all and then one day I ate a whole pizza. As everyone here knows after being so good, you can react hard to a bad choice. Rapid heart rate, profuse vomiting, etc, etc think I was dead. lol. after about 6 months they took out GB but in the meantime i had lost that momentum and was back to eating carbs aka gluteny things almost immediately after that bad episode because some idiot nurse told me I had destroyed my heart with the diet. Later it was confirmed cardiac was perfect and chemistries were perfect. Just had a severe case of dehydration, but the emotional damage was done. I was off track and with no gallbladder, fats were and still are evil on my GI. I often wondered how things would have been different had I found this sight 6 years ago.

Here is the good thing about celiac. No surgery is required. No meds are required. And although I am not suggesting not going to the doctor (most get what I am saying here), no doctor or diagnosis is required. You have the diagnostic tools and treatment tools at your disposal. You can commit to eliminating all gluten for one week and see how you feel. I also agree with all the posts to avoid dairy and soy as well because I had a lot of issues with those things making me think gluten-free was not working.

I have had a lot of family members and friends contact me about their friends or suggest to their friends to just try the gluten-free for a week or two (relaying my story) to see how they react. It is not dangerous and can arm them for confronting a physician if it helps.
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#756638 Explaining Celiac To People Without Talking About Poop?

Posted by on 14 December 2011 - 08:22 AM

Butt, butt (spelling intended), why would you not want to talk about poop?? Everybody poops. :)

I like the food poisoning explanation. I usually just say upper and lower GI issues. If they probe more, I say that I start out nauseous and it does not end (emphasis added) well.

Ironically, just saying "I have celiac. Eating anything with gluten in it makes me really sick." works 99% of the time except for those who honestly want to know more about it. Many often know friends or family members with it.
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#756078 Possibly Celiac, Gi Disagrees

Posted by on 12 December 2011 - 10:14 AM

I would suggest reading Healthier Without Wheat by Stephen Wagnen. He discusses a lot about how you can test negative for Celiac Disease and still be gluten intolerant.

Eliminate the gluten and try the diet. See if it works. Give it a month. You don't need a prescription to do the diet. Or a special test. And if it doesn't work, you aren't out much money. But if it does work, you may have found the answer to a lot of your health problems. What do you have to lose?

I have not read that one, but now I want to. lol

Here are two that I read at day one and really liked:

Celiac Disease: The First Year by Shepard. It helps you by giving you advice by the day, then week, and then monthly. It helped me develop a starting plan. This is what many need as the beginning is overwhelming and it is easy to get glutened by all the junk it is hidden in.

Gluten-Free Diet by Hassellbeck. I thought she gave some decent advice. Some do not care for her book, but I think she is cute and..well..i am a guy, so just let me have this.
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#755944 Going Dairy Free

Posted by on 11 December 2011 - 09:58 PM

I get the texture issue. I often crave the feeling of bread for a sandwich or a nice tortilla. Too many of the substitutes taste too unnatural for me to appreciate.
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#755942 Just Diagnosed And Feel Like Its The End Of The World!

Posted by on 11 December 2011 - 09:55 PM

I cheat a lot, because I am an idiot and stubborn. That said, learning that I was celiac was one of the best days of my life. I finally had an answer for all the nausea, vomiting, dizziness, chest pain, possibly sinusitis, and a host of other issues. I literally vomited from when I got up till when i went to bed. Thank goodness i worked from home. I rarely left the house for the year before diagnosis due to such severe symptoms. I honestly expected to die. I remember when I started improving after day one of gluten-free and I literally got down on my hands and knees and prayed that I was celiac. I was so excited to finally have an answer and to finally have a way to get better. Being celiac was a miracle from God. I bet you a lot of others on here feel that way as well. Do not get me wrong, I wish I was not celiac and the issues were gone, but to finally have control of my life was a true blessing.

Yeah, you will miss some foods but as much as I cheat, I have to say that rarely is it worth it. And it is never worth it if later in life I cause issues for myself.
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#755941 Do You Always Feel Bad When Glutened

Posted by on 11 December 2011 - 09:49 PM

That is interesting. I always find it interesting when you notice something that does not seem to fit and then you find it is common in others, ie waxing and waning celiac, no symptoms sometimes and near death the other.

But yep. back on the wagon. I good boy again starting....now.
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