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Chad Sines

Member Since 19 Apr 2011
Offline Last Active Dec 31 2014 02:23 PM

#755925 Glutened By The Cat's Food

Posted by on 11 December 2011 - 09:09 PM

Isn't it interesting how we often pay more attention to what our pets eat and provide better medical care for pets that we do for ourselves? I know a great many people who feed their pets raw food or expensive quality food with no fillers. Then they bring home pizza and other junk food for themselves and their family..then wonder why they have so many health issues. I am just as guilty in this area.

It is just fascinating that we often are our body's worst enemy.
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#755919 Upper Gi/ribcage Pain

Posted by on 11 December 2011 - 08:56 PM

I had/have off and on upper GI pain right where my GB would be if I still had it..which is right about where my hiatal hernia is. I notice that I have at time a lot of upper GI gas which i suspect it pushing near the hiatal hernia or pushing some acid through sphincter and into that area. A good many GI and others feel that a lot of gas is caused by too much carbohydrate fermentation and recommend lower carbs. Incidentally I feel much better when I am LC altho I so love my mountain dew (throw back, real sugar, no corn syrup)in the morning. I also notice a lot of upper gas/pain/pressure when drinking or eating something with a lot of fructose, such as most soft drinks.

But it looks like your post mentioned rib. I get chest pain near my left breast that is pinpointed with one finger and confirmed not cardiac. Seems to happen after a gluten or soy reaction, but also for the same reasons above.

The slow motility can let food stay in the stomach too long and cause weird issues for some including pressure that can be felt under the rib area.

This is what I hate about GI issues. They mimic so much and the symptoms are very vague.
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#755904 Possibly Celiac, Gi Disagrees

Posted by on 11 December 2011 - 08:19 PM

If going gluten free helps you, then you are on the right track. It is not going to help someone who does not have gluten issues, ie celiac. For many of us, we noticed near immediate improvement in a lot of issues and then some kinda come back hard with a small glutening or for no overt reason. For me, my body goes wonky a lot. Sometimes when i am 100% strict on what i am eating too. It can take a while for some issues to go away. We have people here who talk about certain issues taking months to a year to go away.

I was diagnosed by all the pretty tests as negative and non-celiac despite almost every symptom. Going gluten-free took care of 95% of them so much so that I have current primary care offering to officially diagnose me as celiac confirmed by gluten exclusion. He said the same thing as we see here. The tests are often wrong but it is the only tests they have. He said to trust a positive and doubt the negatives if the symptoms suggest celiac. The tests are negative for a LOT of people even when they have it. That is a big reason that many take so long to be diagnosed.

You have been through the ringer with doctors so there is not a lot left to continue to look for. For me, I had 23 years of doctor tests. They checked everything over and over. lots of money spent, little progress. Going gluten free and then dairy and soy free (many have soy and dairy issues at least short term) took care of virtually everything at a rapid rate. Try it for a week and see if it helps. Like I said earlier, if you are improving gluten-free, then bingo. Consider yourself a celiac and you can get on with your life and getting better.
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#755877 Do You Always Feel Bad When Glutened

Posted by on 11 December 2011 - 07:19 PM

I will pre-assume the scolding, chastising, yelling, and spanking for eating gluten and freely admit you are right. I plead "male" stupidity and stubbornness. But I have a real question.

Do you always feel bad when you eat gluten. Ok. Here is what bad Chad did. I had a cheeseburger with bun yesterday, one for dinner today, and for lunch I had Taco Bell. I might have accidentally eaten a chocolate cookie too. There were some healthy things in between, but you can see that there was a large amount of gluten.

I had a little lower GI issues, sort of, but nothing major. Kinda like what a lot of Taco Bell people might have. No nausea or anything. No heartburn, no symptoms.

Ok, so already fully accepting that I was a dumba.. and that just because you do not feel it damage can be done, how normal is it to have no noticeable ill effects after a significant gluten experience that lasted two days?
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#755871 Glutened By The Cat's Food

Posted by on 11 December 2011 - 07:00 PM

I know a few people try to make their pets vegetarian. They refuse to accept that cats are obligate carnivores. Dogs are mainly carnivores. They do not eat corn and wheat. I like the BARF diet that many use. There is some plant material, but so much better than the junk in most animal foods.
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#755826 Glutened By The Cat's Food

Posted by on 11 December 2011 - 04:28 PM

My smart-elic side almost said "well, stop eating cat food" but my desire to live prevented it. It is so frustrating just how many items have gluten in them. Who would have thought you had to worry about cat food...Then what happens when they lick you or crawl on items, etc. It is a CC revolution.
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#754967 Best Friend Making Fun Of Me?

Posted by on 08 December 2011 - 01:56 PM

A little ribbing from friends is part of the fun of having friends. I flaunt my hamburger patties in from a a vegetarian here all the time. Does she want to kill me...yeah..but then i tell her that she would be harming me, an animal..

No one should ever know everything that people say when they are not around. Most of us share concerns about friends that if they heard could be misconstrued.

Personally, I would just let it go.
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#754777 Going Dairy Free

Posted by on 07 December 2011 - 10:11 PM

If your gut is bad and autoimmune system is on fire, I'd recommend more time for healing, like six or even (Yikes!) 12 months. of avoiding what hurts you. That could just be my experience though, and it seemed like everything I ate was making me ill. I'm doing much better and reintrducing foods now.

I'm only adding this as friendly advice.. maybe a week work's for you, if so, that's great!

Booo. lol. I really need to get serious with no gluten, dairy, and soy. Been too lax here lately.
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#754066 Why Do Some People Feel They *must* Have An Endoscopy?

Posted by on 05 December 2011 - 07:51 PM

Most of us do, some of those here keep throwing the term gluten intolerant out until they get a positive biopsy like they have to guard the celiac club.
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#754038 Why Do Some People Feel They *must* Have An Endoscopy?

Posted by on 05 December 2011 - 06:19 PM

Once you get that single negative on a biopsy, many docs will write off Celiac permanently and never test again. Even here some people think negative biopsy means not Celiac.

Here is what happens: Negative- You are not celiac, just intolerant...add time...still negative- you are intolerant. repeat, repeat...one day maybe if you are lucky and you get enough doctors to test you, you are positive- welcome you can now say you are celiac.

You can't be in their club without a positive biopsy. Pretty sad that we see some pushing the label of gluten intolerance vs celiac until you meet their standards.
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#753745 Why Do Some People Feel They *must* Have An Endoscopy?

Posted by on 04 December 2011 - 03:04 PM

If you need the diagnosis, then yes, absolutely get it. For most of us, we do not need special accommodations or the label. The thing is you can call many GIs and tell them your symptoms and gluten-free helped and they will diagnose you as celiac. I have had a few primary care since then who stated they see the gluten-free diet as the one true diagnostic tool. One even asked if I wanted him to note the diagnosis on my record which I did not.
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#753743 Why Do Some People Feel They *must* Have An Endoscopy?

Posted by on 04 December 2011 - 02:58 PM

Which is exactly why things need to change! But it won't change if we all just drop off the radar, Although - as I pointed out before, I think a dx is not the most important thing -its ruling out all the other terrible things that is more important. Which is why I think testing should happen, and then if all else fails then going gluten free is a good idea. I don't mean 20 years of testing either, I mean bloods, biopsy shows nothing - still feel sick, go gluten free see if it works. Ya know?

I get what you are saying completely and do agree that you should try for testing if possible although it is not essential. Many are without insurance and even with insurance, the cost of multiple testings is very expensive. The thing is many docs will not even biopsy unless u have a positive blood test. I have had three upper endoscopies and biopsies with each; however, I have no idea if they looked for celiac or not as i was essentially told my negative blood test ruled it out as ever being a possibility. And there are also many who had 2-3 negative biopsies before a positive, so a biopsy would potentially keep us unhealthy as that single biopsy rules out celiac forever in the docs mind.

Had I read on this site in March about blood tests or biopsies being necessary for Celiac, then i would never have tried gluten-free. It was the intelligent responses of many saying that tests are often negative and therefore not essential for most. The gluten-free diet is the one fool proof test and many doctors do accept it as proof positive.

We need a more realistic diagnostic plan. Try the blood tests first. If they say yes, then biopsy. If they say no, then try gluten-free. The gluten-free is the true indicator.

The people who shared the near irrelevance of the biopsy and other tests saved my life.
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#753724 Why Do Some People Feel They *must* Have An Endoscopy?

Posted by on 04 December 2011 - 02:09 PM

when and if there is an rx that really works, then it makes sense to get tested. There is no radar to be on at the moment. all people are doing is paying a GI to go in and say "yep, you still got celiac..pay $200..eat gluten-free..come back in 4 months" Chances are slim that there will be a treatment since most will prefer the gluten-free diet over something that alters you immune system. Anyone ever seen people taking meds for autoimmune disorders? often it isn't pretty. They would gladly give it up for a dietary change.

Until there is an rx...makes no sense at all to spend the money (often a lot), have to suffer through tests and if you happen to get one single negative blood test or biopsy, then it is over in their mind. You do not have it..ever..you got IBS. live with it and suck it up. Then 10 years later you might happen to stumble on it yourself and wonder why you had to be so sick for so long simply to appease some doctor or people who refuse to allow you into the celiac sanctum without the almighty biopsy.

Looking at what I (and my insurance) have spent in the last 20 years on GI stuff is easily near $20K or more (probably a lot more). Had someone said try to eat gluten-free 20 years ago and if that works you have celiac, i would have a lot more money, could have got a lot more done. Had I continued to belief the crappy lie of the biopsy message, i would still be suffering or dead now. Thank God there are smart people out there who care more about healing than label defining.

If gluten free eating "cures" you, then you are celiac. period. If you do not like me to say that..tough. :) This is just a tired debate of biopsy is the only true celiac sign.
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#752889 We Need A New Drug

Posted by on 02 December 2011 - 09:57 AM

They would probably use some kind of bonding agent that contained gluten as well as soy. :)
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#751669 Still Angry Sometimes After 2 Years

Posted by on 28 November 2011 - 08:10 PM

Many people with diagnosed celiac with blood tests and biopsies and everything that makes the label inarguable also notice that they seem to become more sensitive to gluten when they stop it. Does that mean they do not have it either? It just does not make sense to me to use the statement to suggest that "non-celiac" will get more sensitive; therefore, they are not celiac when the same thing happens to a diagnosed celiac.

Many have varying degrees of it from massive immediate spells to gradual building up. It makes a lot of sense that with so many varying degrees, they would also show varying stages under lab testing. Add to that that many docs do not even know what to look for.

It just feels careless to me to suggest that someone might not have celiac if the biopsy or blood test does not show it. The treatment is not dangerous, so even if someone is wrong, who cares so long as they get relief. Now granted a person should do what they an to ensure a correct diagnosis within reason and be sure to get checked out if they find they are not improving, but there are a LOT of GIs who will take a positive reaction to going gluten-free as a positive diagnostic test. And yes, some refuse the term unless everything shows it, labs, biopsy, etc.
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