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Member Since 04 May 2011
Offline Last Active Private

Posts I've Made

In Topic: How Did Your Dh Start?

01 July 2011 - 12:17 AM

Thanks everyone for all your reply's. Thanks for the pics too.

Poppi, you've had a terrible time of it. Your rash, looks a lot like me daughters 'eczma' does on her legs and arms sometimes when it really flares up.

Both my daughters only started getting eczma like rashes at 18 months of age, which was a few months after introducing wheat to their diet, prior to that they hadn't had much at all.

In Topic: Ttg Levels Gone Down While Eating More Gluten!

29 June 2011 - 11:45 PM

:unsure: what is homolysis?

My tTG has been tested four times in total.

1st time was about 20 months ago and it was borderline then
then two months ago it was raised at 25
then three weeks later on a higher gluten containing diet went up to 26
then last week after about 8 weeks of tonnes of gluten it went down to 7!!!

I feel really stupid exploring the celiac route now. a I didn't have the two common genes b levels in blood weren't that high to begin with c negative biopsy. All the stats say 'highly unlikely' for all of this. But of course, I know from reading in here that it's still possible.

Lots of my symptoms could be put down to celiac, plus the constantly anaemic even when taking supplements thing..... I'm a bit lost again. But am continuing with the diet, but I'm finding it really hard to keep the motivation when preparing all the gluten food for my family and not seeing the result in my recent blood test. I was so shocked when it came back negative, I really expected it to be a lot higher than my last 26 :rolleyes:

In Topic: How Did Your Dh Start?

29 June 2011 - 06:55 PM

just another question regarding the similarity to eczma: is it possible that if someone had DH and it was being treated as eczma, that constant use of a steroid cream would help it?

I'm thinking of my daughter who suffers from 'eczma', but will never forget a couple of years ago, whe broke out all over her hands and feet with what looked like school sores, or ulcers, the Dr said it was the worst case of eczma he's ever seem. It just flared up like that one day, although she always had some degree of eczma on her hands and feet.

In Topic: Ttg Levels Gone Down While Eating More Gluten!

29 June 2011 - 06:50 PM

Well, i have no helpful words of wisdom but we are in the same boat. My son's levels went from 48 (0-19.9 is normal) to 22 with no change in diet at all. Then down to 14 on an 8 week gluten-free diet. So did the drop from 22 to the normal range at 14 have to do with diet, or was it dropping anyway and the diet had nothing to do with it? Interesting about the different labs having different values. But in our case it was the same lab each time. I wonder what the intralab reliability is.

Thanks for posting this though. At least it's not just me. I don't know what to think though :( .

In Topic: Ttg Levels Gone Down While Eating More Gluten!

28 June 2011 - 08:42 PM

my ttg was only an 8 at first test, and after 2 weeks on gluten challenge- it went down to a 7.

did u have the other antibodies tested??? antigliadin? Endomysial Antibody??
actually, if you had a positive on that first TTG- they should know to then check the Endomysial Antibody-

celiac tests are funny- like not always accurate- u really have to listen to your body- and besides your first ttg was positive enough. and YES gluten intolerance can cause malabsorption- & several deficiencies including IRON.

ALSO- being Hypothyroid can cause you to have Low stomach acid, and also to have LOw iron-

thyroid conditions are pretty common in those who are gluten intolerant.

my bold,I was negative for everything else they tested, but I don't think any of my tests have included endomysial antibody. I've had antigliadin though and always comes back fine.

I'm taking note of how I feel, and so far I just feel clearer and brighter, and less bloated. Still have sore joints and fatigue though, will see if being gluten free effects my iron levels in time.

How long do you think it would take to make a positive difference to iron levels IF gluten was the cause?

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