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navigatorMember Since 07 May 2011
Offline Last Active Nov 23 2012 09:20 AM
- Group Advanced Members
- Active Posts 395
- Profile Views 4,243
- Member Title Advanced Community Member
- Age 56 years old
- Birthday November 1, 1957
Posted by navigator on 22 February 2012 - 07:34 AM
Posted by navigator on 31 January 2012 - 08:28 AM
I've had my liver function done twice as I'm on statins for familial hypercholesterolemis and it's fine. Both my GP and my GI are aware that I have a glass of wine every night with my dinner and at the weekends I also have either a malt or a glayva after dinner. Both have told me that there is no reason to make any changes to my alcohol copnsumption. It appears that this is another area where people have different levels of sensitivity.
Posted by navigator on 26 January 2012 - 06:33 AM
I found it difficult at the start to distinguish between being glutened and having something else wrong. I've not been well this week - fatigue, hot/cold sweats and joint/muscle ache. My husband questioned if I'd been glutened as fatigue and joint aches are my classic symptons. However, eight months on I felt confident that this was some kind of a virus rather than a glutening. The hot/cold sweats and muscle ache were the give away for me. However, this is the first time when I've felt unwell and i didn't consider glutening. I think it's about getting to know your body better. That takes time and I wouldn't describe it as hypochondria.
I've found this site to be a great help and a source of advice and knowledge. However, I've still got personal responsibilty to do what I can to check out the reliabilty of this advice.
Wishing you well for the future.
Posted by navigator on 26 January 2012 - 06:00 AM
Posted by navigator on 17 January 2012 - 01:18 AM
Posted by navigator on 01 December 2011 - 10:07 AM
It's great that your husband is so supportive . Just remember that if you're keeping the full details of how you're feeling from him you are also not permitting him to be as supportive as he may like to be. I know that you're doing it with the best of intentions but you may be doing him a diservice. Remember you don't need to be strong and that's something that took me 54 years to learn!! If I'd learned sooner, I may not have had to give up my career and not been 54 until I started to heal!
Keep using this forum, not only for advice but somewhere to vent to people who really get what your going through and are here for you
Posted by navigator on 17 November 2011 - 09:35 AM
I agree with psawyer. If that's what it takes to get your Mum tested she should do it.
Posted by navigator on 17 November 2011 - 07:48 AM
I would strongly advise you to get your levels checked.
And what's this about supplements not being a good idea because your a guy - I think bodybuilders take more supplements than most folk so nothing unmanly about it.
Posted by navigator on 17 October 2011 - 11:52 AM
Posted by navigator on 12 October 2011 - 06:48 AM
I'm in Scotland and I'm currently back on gluten for the scope and biopsy. My daughter was diagnosed two years ago and she immediately went gluten free. She had her scope 5 weeks later and doc was unhappy when she informed him of this on the day but he went ahead with the scope. Even with being gluten free, there was still alot of villi damage.
I got the blood test in May, after 9 months wheat free, and although the antibodies were low G.P. told me that due to my daughter,my symptons and that I had been wheat free for so long prior to test,that he considered me to be coeliac. I got a bone density scan and blood tests for vitamins, thyroid, folates and glucose. I didn't want to get scope as it meant 6 weeks back on gluten. He supported my decision not to do this. However, after I resigned from my work due to being summoned to disciplinary hearing as I'd been on sick leave 3 days in January and one month in June (went back to work against G.P's advice and hit rock bottom), he persuaded me that it would be in my best interest to get the scope.
My other daughter got tested after me, had not been gluten free, and tested positive. Due to the high levels of antibodies and family history she did not need to get the scope for diagnosis.
I hate being back on gluten but having agreed to have the scope did not want to risk getting a false negative. To be fair the doc at hospital asked me to try and stay on gluten for as long as possible but that if I felt I had to stop he would still do the scope.
I would keep a close watch on your children wither you have an official diagnosis or not and ask to get them blood tested.
Posted by navigator on 03 October 2011 - 09:26 AM
Posted by navigator on 03 October 2011 - 01:04 AM
Since my daughter was 5 years old I had taken her to doctors and emergency rooms, only to be told that I was an over-anxious mum. When my daughter was eighteen a consultant told her that she was a drama queen and that there was nothing wrong with her.
She was married in March 2009 and four days after she returned from honeymoon she was admitted to hospital. They had no idea what was wrong and ran a battery of tests every day. On the 7th day she was diagnosed as coeliac. She attempted to return to work but her health couldn't cope.
She has been strictly gluten free since then, including toiletries, make-up etc. Her husband eats gluten when he's out of the home but the home is strictly gluten free. After two years she started to show an improvement and just kept improving. I'm very pleased to tell you that she started a college course at the end of August and is healthier than she has been at any time in her life. At her worst she was bed-bound and then spent periods of time in a wheelchair.
Posted by navigator on 16 September 2011 - 04:04 AM
Posted by navigator on 12 July 2011 - 01:29 AM
Dinner tonight is venison haunch steaks from local deer farm.
Posted by navigator on 23 June 2011 - 11:55 PM
I've also had 2 similar experiences at places where I'm not a regular customer. Went to an Italian restaurant in Glasgow and when the waiter took my order into the kitchen(in open view of tables)the chef clapped his hands and gathered kitchen staff around. Informed him that there was coeliac in and that this section of kitchen was not to be used by anyone else to prevent cross-contamination. I thanked staff profusely and told them what a difference this makes to coeliacs.
Last night I was at a Pink Floyd Tribute band gig. The venue does a meal + ticket deal which allows you in 2 hours before doors open to tickets only. We'd bought the tickets before I was diagnosed and I was anxious about it. On gig nights they don't do full menu but a set menus with a choice of 4 starters and mains and 3 desserts. I contacted the booking agency and informed them of my diagnosis. When I got there the waitress was very apologetic that there was only one starter I could have but the chef had just prepared soup for tomorrow which was gluten free, which I could have. The chef had ordered in a gluten free desert from a local baker. I asked her to thank the chef and once again he came out at the end of the meal to speak to me and gave me a recipe for gluten and dairy free muffins.
I agree with sandsurfgirl