Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


shadowicewolf

Member Since 11 May 2011
Offline Last Active Yesterday, 07:39 PM
-----

#867219 Can It Happen This Quick?

Posted by shadowicewolf on 07 May 2013 - 04:13 AM

regular rice crispies are not gluten free. I believe it has barley malt in them.

 

Everyone is different, including their reactions.


  • 1


#867007 Dental Visits And Allergic Reactions

Posted by shadowicewolf on 05 May 2013 - 07:36 PM

Hmmm...

 

That really screams a nerve issue then.

 

I have had a tooth that had to be surgically brought up (cutting into gum to expose, after healing a bracket for the braces is put on to 'pull' it up). For the longest time and every once in a while, it was very sensitive. Nothing like a tooth throbbing for no reason. This was probably due to the braces and even after. I'll notice it if i don't wear my retainer enough (due to teeth trying to move about despite the fact its been about 6 or so years since i had braces).

 

I've also heard that gritting and grinding teeth (either one can do this) can cause pain similar to what you describe. However, if the dentist hasn't noticed it (it would show by teeth wearing down and such), then that probably isn't it.

 

Do you have any issues with the enamel on your teeth?

 

I'm just rambling ideas for ya. Sometimes tossing ideas back and forth helps :)


  • 1


#866971 The What's For Dinner Tonight Chat

Posted by shadowicewolf on 05 May 2013 - 11:18 AM

Well i just put the cake in the oven.

 

I subbed oil for butter and it appeared to be a bit more thinner. However, in the past it has always been a bit more dryer when it was like that, so maybe this fixes that issue.


  • 1


#864463 The What's For Dinner Tonight Chat

Posted by shadowicewolf on 20 April 2013 - 07:52 PM

Hi Shadow!

How are you - never heard after your fall.

Mac and Cheese works - seems to be a theme this week ;)

Still kinda sore, lol. I'll be fine though. :)

 

Indeed, it is. :lol:


  • 1


#862748 Gluten Withdrawal-Does Everyone Go Through It?

Posted by shadowicewolf on 09 April 2013 - 09:13 PM

Ah, I went through it. Mood swings, the whole deal.


  • 1


#861655 Saw Gi Today, "i Think It's Just Ibs" Grrrr

Posted by shadowicewolf on 03 April 2013 - 05:36 AM

IBS is a symptom not a diagnosis. IBS is a part of celiac.


  • 1


#861631 Need A Break From Cooking All The Time!

Posted by shadowicewolf on 02 April 2013 - 09:32 PM

Make big meals on weekends and freeze the leftovers. Make extra of sauce, freeze, and reheat with pasta.


  • 1


#860730 I Got Glutened, Quasi-On Purpose. Bad Cathy...

Posted by shadowicewolf on 26 March 2013 - 07:43 PM

Please bump if this isn't the right forum/thread.

 

I have been gluten-free for more than two months, and I can honestly say I feel the difference.  I never had (discernible) tummy troubles, but tons of "other" issues.  The most concrete difference is my mood, my focus, and my energy level.   Eating at home is fine; DH and children are more than supportive, and we are working (slowly) toward testing the kids and having a completely gluten-free home.

 

So this weekend, I had a chance to see some old friends, and we went to Buffalo Wild Wings.  I knew right off the bat most things would be off-limits, so I settled on something "safe:"  chips and "molten buffalo dip."  Little did I know (and failed to ask), the fryers are multi-use, and the cheese dip came out in a deep-fried flour tortilla bowl.  

 

I decided to run a test, as I had no idea what kind of symptoms I might exhibit, should I be accidentally glutened.  Long story short, I found out.  In addition to the cross-contamination from the bowl, the cheese dip was evidently loaded with gluten.

 

The next morning, I thought I had a hangover.  I only had two ciders!  I felt hot, flushed, almost like a fever.  My ankles got sweaty!  After a bit, I was sick to my stomach.  I honestly though (hoped?) it was stomach flu, but no one else in my house got it, including two small ones who must stay in constant physical contact with me.  My mom, who is Celiac/DH, was sure immediately that I had gotten glutened.

 

I felt like crap the rest of the day, and the following day was a little rough for this high school teacher.  I finally feel like I'm on top of it (two days post-glutening), although I"m still really tired.  Despite my fatigue, my sleep has been poor, and it's been harder to fall asleep.

 

Sorry for the ramble -- I just didn't know where else to turn!  I know I can't be 100% sure, but I really do feel that I got glutened -- and suffered the consequences.  And no, before you ask, I will NEVER do that again!!

 

And a small post-script:  My MIL sent a lovely package of chocolates for us and the kids -- some of it has gluten, but all labels warn of cross-contamination on machinery.  Rats.  South Bend Chocolate Factory goodies.... *sigh*  That's OK.  I need to lose weight anyways, right?

 

Love and good health to all,

Cathy

Early in my diet i cheated 3 times... :ph34r: Never again...


  • 1


#859861 Calling It Celiac?

Posted by shadowicewolf on 21 March 2013 - 07:51 PM

No, sadly you really can't. For any school things you need to have a doctor diagnose it. :( Class room accommodations and such are the reasoning.

 

Luckily it falls under the ADA (Americans with disabilities act) if you are in the US.

 

I've heard of young children getting diagnosed without testing on the basis of a failed gluten trail failing if their symptoms were severe enough.

 

Furthermore, it could alternatively be NCGI (non-celiac gluten intolerance) which mimics celiac disease without the antibodies and the intestine damage.

 

A good start I think would be to have the genetic test done. Celiac is a genetic disease. The two alleles that are commonly found are the HLA-DQ2 and HLA-DQ8. It could give you a good idea of where to start.


  • 1


#859712 I Was Diagnosed With Celiac

Posted by shadowicewolf on 21 March 2013 - 04:37 AM

Celiac has a wide range, from stomach aches to constipation.

 

Yes, it is very possible. Celiac can go "silent" (no symptoms) and still be doing damage, regardless of how much gluten has been eaten.


  • 1


#859431 The What's For Dinner Tonight Chat

Posted by shadowicewolf on 19 March 2013 - 06:08 PM

Soup was made instead. Its simmering at the moment.


  • 1


#859393 Eye Discomfort

Posted by shadowicewolf on 19 March 2013 - 04:27 PM

Did your eyes swell at all when you had your reaction?

 

If so, they could still be sensitive.

 

Glasses are heavy? Wow, they've changed so much that you can get ones that are almost feather light and feel like nothing. I was surprised when i went to get my last pair. I opted out of getting those, but still.


  • 1


#859383 The What's For Dinner Tonight Chat

Posted by shadowicewolf on 19 March 2013 - 03:22 PM

That's the basic idea of this thread...we all talk food and general conversation -- much like we would if we were dining in each other's homes -- my husband likes to lurk in this thread because we both cook -- he just doesn't post -- that's a good point -- if there is anyone else reading along...

 

What are you having for dinner tonight?

Indeed.

 

I've decided to cook it up like ya would with beef strips used in wraps.


  • 1


#859321 Between A Rock And A Hard Place

Posted by shadowicewolf on 19 March 2013 - 10:07 AM

Bring your own lunch and supplies? Think of it like a picnic. Or alternatively, you could eat before hand.


  • 1


#859268 Negative Biospy! So Confused Please Help

Posted by shadowicewolf on 19 March 2013 - 05:26 AM


What? So people have inconclusive tests and follow up tests come back negative while their not so related to Celiac symptoms DO NOT improve on a gluten free diet and you think that it means they are just in denial about having Celiac? This, as many of your posts do, shows how little you know about the blood tests or OTHER diseases/issues that go on in the intestinal tract. So if someone has a positive TTG, negative biopsy, no improvement on a gluten free diet, return to gluten with no symptoms and have follow up tests while eating gluten for several weeks which come back negative they have Celiac? Did you really type that out, look at it, and thought it made sense? In the case you just described there are SEVERAL diseases that can elevate a blood test, so instead of looking at other things like Crohn's, autoimmune liver the person should just fixate on a single blood test and disregard that they do not improve on a gluten free diet while ignoring a more logical cause that could do them harm if not treated? Yeah, that makes a lot of sense. 

Sounds like your "Doctors say anything over 10 on blood test is early diagnosis of Celiac." Kristin, please ignore Takala, he/she likes to just make ridiculous blanket statements, really makes it sound like everyone has Celiac.

What researchers are now starting to notice as the TTG tests have been around on the market longer and more research/clinical trials have been completed is that it is not as specific to Celiac as once thought. That being said you COULD still have Celiac that was missed, especially if you noticed symptom improvement that quickly. There is a long list of intestinal issues that can elevate the blood tests including infections. It is hard to say in your case since you went off gluten and only ate a bit prior to the endoscopy, the damage could have been so minimal that it was missed but it is important to know what is going on in your body not to miss anything that can cause complications if left ignored.

The list of TTG elevations includes (but is not limited to):
Celiac
Thyroid autoimmune, both hashimoto's and Graves
Autoimmune liver
Type 1 diabetes
Infections - Surprisingly both intestinal and no intestinal - http://www.ncbi.nlm....les/PMC2810390/
Chronic liver cirrhosis - http://www.ncbi.nlm....ubmed/15936306 
Congestive heart failure - http://consults.blog...celiac-disease/
Crohns
Ulcerative Colitis
A few other intestinal issues that I can't recall right now
Pretty much any other autoimmune disease


I linked a few articles to give you a better understanding, I have quite a few more if you need more info on a specific cause. The causes of most elevations would be pretty obvious like infections and their sudden onset of symptoms, congestive heart failure, type 1 diabetes. Some however are not so obvious and that is why anyone with any understanding of blood tests will tell you that the TTG IgA is not solely specific to Celiac. It is important to also have the titre, in high tires other causes are less likely where as mild elevations need to be looked at further. It is unfortunate that your doctor told you to go gluten free before getting more tests in as now you are left wondering. Hopefully you find your answer soon and if going gluten free makes you feel better than do it, who is to tell you otherwise?

On the reverse side, if you test negative to all of the other possibilities outside of celiac, than its likely that you do have it.


  • 1