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Celiac Ninja

Member Since 12 May 2011
Offline Last Active Oct 22 2014 05:01 PM

Posts I've Made

In Topic: Does Anyone Get These Strange Symptoms?

12 August 2014 - 06:27 AM

You DO NOT have to eat gluten to be tested for Celiac! Don't eat gluten.


A CELIAC PANEL is a DNA test which is accurate for doctor to determine if you are a celiac. Celiac disease is genetic therefore being on a gluten free or gluten diet doesn't not make a difference.


There is a long period of fasting for this test for people like us who suffer from malabsorbtion. It will take 4 larger test tubes of blood. So bring snacks after wards to eat immediately. I was tested positive for celiac disease on a gluten diet and off of gluten, your DNA will show it no matter what. It's always going to be there, unfortunately.

In Topic: Many New Food Allergies At Once?

12 August 2014 - 06:00 AM

Ditto only fast forward several years. I'm allergic to nearly everything, according to a naturopath, I plan on getting a poke test for allergies on my back. I'm sure that will entertain the nurses as I swell up and look like the hunchback of Notre dome.


I'm right there with ya for the layering of allergies and symptoms. It's as if my whole cellular structure has revolted. I'm putting a tiny bit of progesterone cream on each day now since I've hit menopausal symptoms again. Not an enjoyable rollercoaster. :S :P


So I'll keep praying for healing, answers, peace, etc. De-stress as much as you can each day. It seems stress for me triggers a lot of the allergic reactions, as if my immune system has PTSD.

In Topic: I Feel Like Hot Garbage

15 July 2014 - 06:08 AM

If you have reactive celiac (not sure on the labeling there) but the general idea is the lining of the intestines will respond as if glutened (to some degree of being glutened) simply by being stressed. It's know as reactive. I definantly would agree about getting glutened from the kids. I got two and they put hands, toes, toys, etc. right up in my face and sometimes straight in my mouth. Very irritating. Do you have gluten enzymes that you can take to help process through what you've gotten in your system?

In Topic: Desperate For An Answer

15 July 2014 - 05:56 AM

That antibodies test, the doctors will know it's name by Celiac Panel. It's going to test your DNA co-signs. Very accurate test. Takes a lot of blood though, so bring water and something gluten free to chow down on afterward if you get faint from giving blood.

In Topic: New Things To Try...

11 July 2014 - 11:08 AM

The ginger drink suggested above is a must :D Reeds ginger soda is a quickie for nausea, diarrhea, vomiting, motion sickness....yadda yadda. Probiotics like greek yogurt, which you might like, is great for gut relief. I get the Wallaby Organic low fat Greek Yogurt that's certified gluten-free.


We have similar gut swelling issues, mines after being glutened. Are you possibly being glutened? Cross contamination? Even spices can have gluten in them, stuff with white vinegar is iffy as well. Maybe check everything thoroughly.