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Celiac Ninja

Member Since 12 May 2011
Offline Last Active Feb 22 2015 05:28 PM

Topics I've Started

Level Headed Doctor In Phoenix Az

15 February 2015 - 07:13 PM

Need a level headed doctor in Phoenix, AZ. Last one I went to tried to tell me I didn't have celiac even though I've had two DNA panels. She was not wise.

Certified Gluten Free Carob Powder

27 December 2014 - 09:12 AM



Sunfood has Certified Gluten Free Carob Powder. Their packaging is 6 years old, so it says otherwise. I called, they confirmed it is a certified (tested) gluten free and packaged in a gluten free facility. It has not given me a problem at all. I have been searching for something that is an alternative to chocolate, being I am allergic to caffeine. So here it is! Sunfood carob powder!


It works as a 1:1 ratio replacing chocolate powder. I've made pudding, syrup, and it can go into cookies, muffins, cake mixes, etc.

Caffine Allergy

07 December 2014 - 10:01 AM

I am allergic to caffeine.

 I only have a few but they are clearly too irritating for me to consume caffeine and enjoy caffeine. The only ones that I don't experience are the flu like symptoms, the swollen eyes, my tongue doesn't swell and no cold sweats. The rest bugs me for the rest of the day, and the next morning I feel hung over! Big time hate caffeine. Found this out after quitting caffeine for months then sipped it daily and increased it. Symptoms increased and before long I hated what I was drinking.



Here are all symptoms possible for people with caffeine allergy.

  1. Skin problems such as hives, eczema, rashes, acne, severe itching
  2. Headaches/ migraines
  3. Anxiety and panic attacks
  4. Can’t focus or concentrate
  5. Tongue, glands, or throat swelling
  6. Heart racing/ palpitations
  7. Angry, irritable, bad mood
  8. Fatigue
  9. Dizziness
  10. Extreme jitters
  11. Chest Pain
  12. Depression
  13. Numbness in face, hands, or feet
  14. Muscle pain
  15. Shortness of breath/ tightness of chest
  16. Delusions/ hallucinations
  17. Flu/ cold like symptoms
  18. Vision problems
  19. Cold sweats
  20. Eyes swollen shut

So...now I want chocolate.....it's that time of the month again. But...the caffeine!!! lol Noooooo!

So I'm looking for a certified gluten free carob instead. Or I'll have to encourage my liver to produce the caffeine enzymes that it isn't. There's a whole new study.

Celiac Disease And Hormone Imbalance?

07 November 2014 - 03:06 PM

No matter how strict my diet is, I seem to loose too much weight, it almost always is worse around this time of year...October-November. That happens to be when I was first diagnosed with cancer 10 years ago (I was 20 years old), now I am 30. I have gotten married which supposedly would put on a couple pounds right?? The old saying goes something like, once you settle down your tend to start gaining weight. Well, not for me evidently. I've had two kids too. Got really heavy for me, went from 118-170 with my first, almost that for my second. BUT STILL I have lost my breast fat, they are less than an A cup, my periods are wacky still, I've been trying to regulate this obnoxious phenomenon of turning into a 12 year old little girl again with progesterone cream, applying it everyday. Was suppose to get hormone therapy after cancer treatments but have read many negative experiences of that with unwanted side affects. Then got diagnosed celiac soon after cancer treatments were over, got hormone tests three times since then and they have always been wacky! The only hormones that are not affected are the testosterone and the DHEA.


SO I've been reading more, I don't have Hashimotos, I just don't meet the symptoms. I might have Crohns but I'm already doing the best I can for that. My thyroid checked out okay from tests done in the past when I had much worse symptoms then now. I've had a full body MRI when I was 20 and nothing extra was found invading my important organs, e.a. tumors around the pituitary or ovarian cancer.


Not really finding a realistic direction to search in here.


Anyone have this experience?

Anyone have suggestions to research?

Anyone been through hormone therapy successfully and what side effects/experiences did you have during/afterward?


Anxiety Attack

12 August 2014 - 06:45 AM

It seem my anxiety attack has brought on adrenal fatigue and progesterone drops.

I lost a bunch of weight, having menopausal symptoms and feeling the same adrenal fatigue as before.

Hands are dumb, dropping stuff, tingling in hands and feet, muscle weakness. I've got two kids to take care of and this is just not convenient.

I'm wondering...with my stress issues...I've been seeing a counselor yes, I'm told to stay away from the stuff that's causing these attacks and that would be my relatives at the moment.

I'm wondering...would pot help me with my anxiety and my autoimmune disorder?

Maybe help calm my over reactive body down so I can gain some weight and sleep better?

So far nothing of a gluten free diet for the last 9 yeas isn't saving my carcass.

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