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Member Since 13 May 2011
Offline Last Active Oct 29 2011 08:33 PM

#701147 Looking To Meet People Who Have Been Bed Ridden From Celiac

Posted by on 20 May 2011 - 10:09 PM

Hang in there. It's been two years since diagnosis for me. When I was at my worst I needed help eating and getting up to use the restroom.

As I progressed, there were little milestones... I could wash my own hair. I could take a shower without a nap afterwards. I could walk down the street. Then around the block. I'm not 100% yet... maybe 50 or 60, but I love the good days (hours, minutes).

Like eatmeat said, many (most?) people need to figure out what works for them in addition to gluten-free. I'm learning to pace myself. Not something I do naturally!

Patience is hard. I struggle with it daily, but I'm getting better. Acceptance without giving up the fight to get better is a fine line to walk, but keep at it. I've found reading and sharing stories here to be very helpful in my healing.


you're right its a very fine line. and wow 2 years is a very long time. i hope you fully recover very soon! well done for your positive attitude. this site has been great i agree. it fills my day a little more instead of being upset and alone sometimes
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#700880 Looking To Meet People Who Have Been Bed Ridden From Celiac

Posted by on 19 May 2011 - 05:46 PM

wow thanks so much for sharing your story! it gives me hope that someone like you can go through that and come out being able to exercise and have no pain. i think i have a corn allergy so i avoid that, and im also about to trial a lactose free diet to see if the pain goes away at all. its so frustrating trying to figure all this out but i guess i will get there..
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#699184 Leg Cramps

Posted by on 13 May 2011 - 07:55 AM

you could be iron deficient which comes along with celiac. this causes muscle cramps and aches. ask for full blood work rather than just a blood test, but particularly get your iron checked.
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