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MissBonnie

Member Since 13 May 2011
Offline Last Active Oct 29 2011 08:33 PM
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Topics I've Started

6 Months Gluten Free And Still Sick

10 September 2011 - 10:32 AM

ok so im 23 and it all started this time last year when i started to feel tired and generally unwell. i got progressively worse to the point where i had such bad dizzy spells i almost had a car accident on my way to work. by december i had to stop working because my nausea and anxiety were dibilitating. i saw 5 doctors who all found nothing and said i just had a virus. i stayed in bed until february when i was home alone one day, hadnt been able to eat one bite for 4 days straight. i could hardly stand up to walk to the bathroom due to my upper abdominal pain and was so weak it would puff me out by the time i got back. i lay down on my bed and called an ambulence. when i got to the hospital they found that i was severely dehydrated, had a dangerously low blood sugar level, and weighed only 38 kilos. i looked anorexic and they had to have a psycholist make sure that i wasnt.

i spent 2 days in hospital getting countless tests and scans to find nothing. then they finally scheduled an endoscopy for a few days later. i was sent home and basically lived on sports drinks to keep me alive. after my endoscopy i started to eat again. they found that the villi in my duodenum were completely flat, but the biopsy didnt show that i was celiac. the doctor put me on a gluten free diet anyway and i started to get a little better. as the months went on my health was like a rollarcoaster. some days i was able to go out and drive to the supermarket etc, and some days i was back to not eating again. i ended up in hospital again and they found nothing and sent me home. i have a wonderful GP and she tested me for everything else under the sun. all my nutrient levels are fantastic, as is my liver and pancreas. but she did find that i have fructose and sucrose malabsorbtion. she referred me to a fantastic dietition who helped me with a gluten, sugar, fructose, and lactose free diet. even though i have stuck to this strict diet and am definitely much better than i was, im still too sick to work or do other normal things. so i had a second endoscopy to check whether my villi are still flattened out or not. that was last week, and they told me that i have "mildy scalloped mucosa" which comes with celiac, and i have to wait for the biopsy results to come back. so now im just wondering why is it that 6 months later i still have scalloping of the duodenum? why am i not healing? or am i just healing slowly? i have an appointment with my GP this week who will contact my gastroenterologist about what they have found. has anyone been through anything this severe with celiac? or am i just really unlucky? id really like some feedback on what you think about all this.. thanks

My Mum Might Be Celiac But Wont Get Tested

30 June 2011 - 09:19 PM

i was diagnosed 4 months ago after 22 years of no problems, i all of a sudden ended up in hospital on a drip close to death from not being able to eat a thing. my mum has always had problems with bloating and pain. and since you are supposed to get celiac from a family memeber im almost certain she has it. she is in denial and wont get tested. im worried she will cause damage like i did and have a huge recovery to look forward to. ive been off work for 6 months now and am still struggling. how do i get her to get tested and she how serious this is??

Recovery Is So Up And Down. Anyone Else Struggle With This?

22 June 2011 - 06:50 PM

i was hospitalized 4 months ago and this is how i found out im celiac. since then i have good days and bad. i just wonder when the bad days will go and i will have only good days. has anyone else been sick for this long? and if so what was the recovery like? im getting really depressed being tied to my bed constantly. any positive thoughts or encouragment would be much appreciated thanks. im 22 if that helps anyone

Could Casein Be Making Me This Sick Still?

11 June 2011 - 02:57 PM

i have been gluten free for 3 months and was getting better but the last 5 weeks ive been bed ridden with pain and nausea. ive even been to hospital and they cant find anything wrong. im lactose free but still drinking lactose free cows milk. could this make me that sick? im at wits end i need to get better :(

Gluten Free For 3 Months And Still Spend Days In Bed From Pain And Nausea

02 June 2011 - 05:58 PM

i was diagnosed end of february and ive been completely gluten free since then. i was in hospital with severe pain and nausea and thats how i found out i was celiac. since then ive been really up and down, but started to get alot better. the past 4 weeks ive been in so much pain. ive barely left bed. could i have cross contaminated? would it last for over 4 weeks? i have just taken dairy out of my diet too and i dont eat corn products either. the soy thing doesnt bother me because nothing ive eaten contains it anyway. i tend to just eat fresh foods. im at a loss as to why a healthy 22 year old like myself has gone through all this pain and why its taking so long to recover. my life is passing me by, ive been sick for a good 8 months now and havent worked for 6. i miss my job, my boyfriend, going out, just being able to do simple things. i cant even plan a holiday right now because i dont know when ill be better. having such a sad day about it all today :(