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Member Since 14 May 2011
Offline Last Active Apr 16 2014 02:28 PM

Posts I've Made

In Topic: Shaving Help? Looking For Disposable Razors Or Electric Alternatives

16 April 2014 - 02:22 PM

i'm actually very well read on the topic, and i apologize for not finding a more suitable. but i came here looking for razor suggestions, not to defend my diagnoses.


i am well aware that "gluten allergy" is a false term, which is why i didn't use it. perhaps mentioning my allergist made things confusing. it just so happens that my allergist (who i started seeing for asthma) is very knowledgable about celiac disease because he just happened to end up with numerous patients who have allergies (including wheat allergies, obviously) and comorbid celiac.


as for the "gluten molecule" and permeability, gluten is an incredibly bulky protein molecule (thousands of times larger than a small molecule like table salt, or even the average active pharmaceutical ingredient), which is actually a composite of two separate proteins (glutenin and gliadin). The entire gluten molecule need not be present to initiate a reaction, only the portions to which a specific individual is sensitive. (Not that anyone knows which portions those are and to which individuals.)


yes, i've been diagnosed with DH (yes, by actual medical doctors). i do also have allergies (which complicates the razor issue because once i found one with published ingredients, it was gluten-free but not lanolin-free, which is one of my allergens). i was hoping someone had experience with this (just as i've gotten help from others finding other health&beauty products in the past), so i could start with a much shorter list and then eliminate those with my known allergens. it sounds like others don't have experience with this, which is really all i needed to know. thanks.

In Topic: Shaving Help? Looking For Disposable Razors Or Electric Alternatives

16 April 2014 - 12:23 PM


In Topic: Ten Most Annoying Things About Eating Out Gluten Free

16 April 2014 - 11:17 AM

This is a good list! One thing that I would like to add is that once a restaurant informed me that all their tofu has gluten in it, because it's a soy product. What?? Unless it has flavoring added (usually in the form of soy sauce) tofu is definitely gluten free.

i've had this happen too! people get so confused about celiac alongside all the different allergens their customers are concerned about. i was surprised how adamant one restaurant was about this, too.

In Topic: Ten Most Annoying Things About Eating Out Gluten Free

16 April 2014 - 09:51 AM

oh, man.... number 4.


i've had several restaurant employees and owners ask me what happens when i eat gluten.


this is not the time or the place for that discussion, my new friend. not the time or the place.

In Topic: Celiac And Pain Meds

16 April 2014 - 09:32 AM

seconding the posters above. i also take pain medication for chronic pain, and i've called several manufacturers (in the US, the manufacturer, even of generics, should be listed on your bottle, then google the customer service number for that company). You may have to be persistent, and ask for a list of ALL The ingredients in the medication. Then ask again about anything that might be grain-derived. One manufacturer actually took several days to research and get back to me, but usually they can answer right away. I've found it also helps to disclaimer your questions with something like "i understand you don't test your final products for gluten content, so you can't guarantee anything is glutenfree. right now i'm just asking about specific ingredients or potential sources of contamination so my doctor and i can make the most informed decision."


dairy is suspect to me (especially in the early stages of healing), so maybe try taking your meds with a gluten-free and DF snack instead and see how they go down.


for what it's worth, i've actually gone WAY down in my pain medication usage since my intestines are healing up. i am on the much milder hydrocodone, but at one point i was taking 40mg/day, and now i'm usually around 15mg per day. that's even with being a LOT more active than i was at my sickest. (my pain meds are for a spinal cord injury that will only continue to worsen, and won't improve, so i can't say i've healed that up or anything.) i hope you can get some relief, too!


best of luck. this board has been so helpful, i just can't say enough good things about it. you've found a good crowd :)

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