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Jenniferxgfx

Member Since 14 May 2011
Offline Last Active Apr 16 2014 02:28 PM
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#742102 Banana Allergy?

Posted by Jenniferxgfx on 26 October 2011 - 05:54 PM

I have a latex allergy that's gotten worse over time. I carried my own box of nitrile gloves in college for labs because it was easier than getting the school to provide them. One box lasted a few semesters and I had a lot of labs. Buying your own means you can get the best (textured fingers!) in colors you like and for a few bucks. You'll be the envy of your lab mates ;)

But seriously, take this seriously. What started out as a little rash from gloves now is bordering on anaphylaxis. I never avoided latex fruits before but this week I realized I have NO business eating bananas because I have esophagitis symptoms and a little trouble breathing. I never noticed before because my gluten reactions had me so miserable that the banana reaction was a drop in the bucket. If you can minimize your exposure to latexes, you may have an easier time with accidental exposures later on, especially if you work in a lab someday.

I hope they stop using latex gloves everywhere someday because most folks I know with the allergy have worsened over time, and nitrile is a better barrier in many cases anyway.

Also: some prophylactic Benadryl has helped me in labs on the past. Good luck!
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#739813 Four Months In And Feeling Alone

Posted by Jenniferxgfx on 18 October 2011 - 11:37 PM

I'm 4 months in too! (in a week.) we're like celiac buddies :)

I had a nice appointment with my allergist yesterday, and I asked him about my numb hand every time I'm exposed to gluten. He said from an allergy perspective he had no ideas, but to make sure it's not something else, and to try not to blame the gluten for everything right off the bat. It's easy to do, and I always do it, but he's right. Gluten is the source of a LOT of my problems but it's not always going to be gluten.

But also? It's hard not to think about this all the time. I'm really deeply affected emotionally by this situation. The very basis of my culture's diet is the same thing that was literally killing me. That's heavy stuff and hard to wrap my head around it. I think it'll get easier as I accept it for what it is and get on with my gluten-free life. But this is more than an illness. It's an illness that really thumbs its nose at our culture! So there's more to it than just learning to be glutenfree, I think. I feel like I'm learning how to navigate to world all over again.

I'm sorry if I'm too philosophical for this time of night. :)
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#739430 If I Cheat On My Gluten Free Diet, Could I Be More Likely To Get Type 1 Diabe...

Posted by Jenniferxgfx on 17 October 2011 - 12:48 PM

What a happy ending-- and beginning!! I'm so glad for you :)

Have a wonderful honeymoon!!
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#738926 Shocked! Don't Know What To Think?

Posted by Jenniferxgfx on 15 October 2011 - 11:48 AM

Scientists don't know all the genes associated with celiac (or GI), so there's no way to be sure if someone's got GI or celiac. What matters is if gluten makes you sick, you need to avoid it. The names are just semantics.

Your reactions to gluten are so serious and intestinal it makes me think you're proof there's more genes involved in celiac than the two biggies!
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#738380 If I Cheat On My Gluten Free Diet, Could I Be More Likely To Get Type 1 Diabe...

Posted by Jenniferxgfx on 13 October 2011 - 08:03 AM

I hope the gluten-free cake is amazing!
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#737754 Gluten Reaction?

Posted by Jenniferxgfx on 10 October 2011 - 08:16 PM

My vote is the gluten!
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#737372 If I Cheat On My Gluten Free Diet, Could I Be More Likely To Get Type 1 Diabe...

Posted by Jenniferxgfx on 09 October 2011 - 11:56 AM

I didn't know I had celiac when I got married, but I had chronic pain and GI issues that affected our honeymoon activities... While we expected them, if I'd known then what I'd known now, I'd have gone completely without cake if a gluten-free option wasn't available. Share and feed each other decadent beautiful berries, or chocolates, or anything but those fancy pants special order vegan cupcakes from Freed's in Vegas, which actually weren't very good cupcakes anyway.

That said, YOU are the bride and it is YOUR day with your husband to be. If they won't work around a health concern, in your shoes I'd either have a friend whip up some gluten-free cupcakes just for you and your future husband, or see if another baker would help you out. And I'd make sure everyone knew how inflexible an insensitive that baker was for your special day.

If I could have had my wedding and honeymoon without IBS, GERD, DH, fibromyalgia, chronic fatigue, and sensory overload, I'd have been all over it. I had a wonderful time eating delicious gluteny food for that time, but a dietary inconvenience in exchange for even more quality time with my wonderful partner would have been well worth it. No food feels as good as my partners' companionship feels.

I'm glad you told your fiancÚ before your wedding. I hope you have many happy years with less sickness and more health, and that you're both each others' biggest supporters and cheerleaders.
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#737214 Need Help! My Bro Has Problems

Posted by Jenniferxgfx on 08 October 2011 - 05:05 PM

What about milk? Celiacs often can't digest milk till they heal (sometimes never, too), because of the damage to the small intestine. Also milk tends to be high in iodine, which could aggravate dermatitis herpetiformis, or dh, which could be the rash he's getting.

He might be better served having less pre-made food and more whole foods (cook the chicken yourself, for example, and make tacos at home with known gluten-free ingredients) just because it doesn't take much carelessness for something prepared outside your home to come in contact with gluten. Home cooking should be done with dedicated pans and utensils-- I've been glutened from our old cutting board and old pans I thought I cleaned well enough. (scratched stuff never gets clean).

You're really sweet for helping your brother out. He's really lucky to have you to look out for him. :)
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#734637 Anyone Else Always Hungry?

Posted by Jenniferxgfx on 27 September 2011 - 06:20 PM

I thought I was losing my mind with hunger at first when I went gluten-free. Healthy fats and proteins are the trick, I think! I started using more coconut oil and olive oil (after years of low fat cooking because I thought I just had a fatty food intolerance!), and eating lots of nuts, peanut butter, beans, and hummus, and it helped tremendously.

I also had to get over needing to "be in the mood" for certain foods, and learn to just give my body what it needs. If I'm starving and getting weak with hunger, it doesn't matter what I FEEL like. What I NEED is a spoonful of peanut butter or a lara bar.
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#734486 Is Sleep Overrated For Us Celiacs?

Posted by Jenniferxgfx on 27 September 2011 - 11:14 AM

I love sleep! It's so nice to sleep restfully again!

I may not need as much as I used to, but my 8 hours now is way more restful than the 12-14 I used to get.
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#733943 Tell Me About "gluten Defense" Pills

Posted by Jenniferxgfx on 25 September 2011 - 01:30 PM

Two words: snake oil.

There are NO treatments for preventing a gluten reaction except avoiding gluten.
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#733938 High Fructose Corn Syrup & Corn Byproducts

Posted by Jenniferxgfx on 25 September 2011 - 01:14 PM

I'm pretty sure rice is (generally) processed in totally different ways than corn, oats, and wheat--- all those non-rice grains seem to have a lot of overlap and contamination in the fields, but rice is grown in paddies and in a completely different manner. Corn won't be grown anywhere near where rice is, but wheat might be nearby.

My botany/agriculture knowledge is rusty, but rice seems to be a very different crop, which works in our favor. (some folks are sensitive to rice too, but it seems like a different sensitivity entirely rather than a cc issue.)
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#733106 Deployed In Afghan With Celiac

Posted by Jenniferxgfx on 22 September 2011 - 03:45 PM

Thank you for your service!!

Best of luck with the biopsies. If they're negative, do consider going gluten-free if you can as soon as you're able. Lots of folks have negative tests but their symptoms still improve on a gluten-free diet. (that's my case.) I hope you find some answers and relief soon! It sure sounds like it could be gluten making you ill.
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#732848 Made Myself Sick For Nothing

Posted by Jenniferxgfx on 21 September 2011 - 07:43 PM

Did you have relief going gluten-free? The tests don't matter (and for gluten arent very accurate in some cases), but what really matters is if you felt some relief.

Don't forget, if you want to quit gluten again, you probably will go through withdrawals again, which includes practically irresistible cravings sometimes.

My tests were negative too, and now that I'm gluten-free, I'm seeing how sensitive I am, and how involved the reactions can be (it's been 3 months and I notice improvements of all sizes every day)... I am sure some damages will take years to recover, and that some damage is permanent.

As someone here told me, there just isn't a test sensitive enough for us yet, if avoiding gluten makes us feel better.
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#732823 Skin Trauma: Please Tell Me I'm Not A Hypochondriac

Posted by Jenniferxgfx on 21 September 2011 - 05:42 PM

Just a quick update... I completely forgot I had an appointment with an asthma and allergy specialist scheduled yesterday, and he brought up DH! I went there to try and get some help managing my asthma, since my GP is now retired and I definitely needed an adjustment (I was taking a milk-containing medicine which was making me worse now that I'm gluten-free, so I switched to something that sucked right when my GP retired). He asked about my reactions to the things that I discovered were triggers, and when it came to gluten, I showed him this healed-burn-induced rash of water blisters on my arm, and he said he thought it was DH! I almost fell off my chair. He also noticed the healing spots on my upper arms, and was concerned I was still having outbreaks while on a gluten-free diet, but when I said this was still a huge improvement and continue to see improvements (even the outbreaks are much less severe-- they're just more obvious now, if that makes sense), he seemed pretty convinced it was DH.

He ALSO asked if I ever felt like anything got "stuck" in my throat when I eat, and I almost fell out of my chair AGAIN. This has been one of my most annoying symptoms-- breads and pastas (with gluten) always get *stuck* in my throat, and I can feel whatever it is slowly traveling down to my stomach, where it sits like a brick and I get bad reflux and nausea. Doctors always passed this off as gastroparesis, gave me the dangerous drug Reglan, and told me to suck it up... this doctor is convinced that's completely wrong, and I actually have eosinophilic esophagitis, and it's triggered by the things I already know it's triggered by (gluten, dairy, eggs).

He was completely comfortable not pushing for biopsies or allergen testing, too, between my preference to avoid it and because I'd pretty much done all the legwork myself, figuring out what I react to. He even admitted the best test is the elimination tests I've been doing, and his testing wouldn't be as cheap, comfortable, or accurate.

I'm *still* floored at how well it went. I've had a LOT of bad luck over the years, and a particularly bad experience with a potential GP very recently, and this guy nailed everything right off the bat, with a smile, and in a "Cat in the Hat" necktie! He also changed my asthma medication to something that felt better within an hour (I feel normal!), and GOT ONLINE RIGHT THEN to make sure it didn't contain any gluten or dairy. I'm sort of kicking myself for not trying this route sooner, but after so many Dr. Duds, I guess I just figured an allergist wouldn't believe my reactions, either. But this guy DID!
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