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Member Since 09 Apr 2005
Offline Last Active May 12 2005 12:43 PM

Posts I've Made

In Topic: Enterolab Vs "traditional" Testing

12 May 2005 - 09:50 AM

Hi - In response to your question about whether blood tests can miss celiac disease, check this out -

False Negative Serological Results Increase with Less
Severe Villous Atrophy

Dig Dis Sci. 2004 Apr;49(4):546-50

Celiac.com 08/27/2004 Dr. Peter Green and colleagues
at the Department of Medicine, Columbia University
College of Physicians and Surgeons, New York, New
York, conducted a study designed to determine the
sensitivity of the various serological tests used to
diagnose celiac disease. To do this they looked at 115
adults with biopsy-proven celiac disease who fulfilled
strict criteria which included serological testing at
the time of their diagnosis, and a positive response
to a gluten-free diet. Out of those studied, 71% had
total villous atrophy, and 29% had partial villous
atrophy. Serological results indicated that only 77%
of those with total and 33% of those with partial
villous atrophy actually tested positive for celiac
disease, and it did not matter whether the patients
presented with classical or silent symptoms. All
patients who were positive for anti-tissue
transglutaminase had total villous atrophy. The
researchers conclude:

"Seronegative celiac disease occurs. Endomysial
antibody positivity correlates with more severe
villous atrophy and not mode of presentation of celiac
disease. Serologic tests, in clinical practice, lack
the sensitivity reported in the literature."

Testing here in the US is way behind places like Europe. I personally think that enterolab is a viable alternative to the traditional approach.

Some people feel very strongly that they need an official dx from a doctor, others are comfortable following their instincts regardless of what the doc might say. It's a very personal decision. Your son's enterolab results indicate at least gluten sensitivity, and if it were me I'd try him on the gluten-free diet and see what happens. With kids, you generally see a positive effect in a week or even less. You'll know soon if you're on the right track or not. There's nothing really to lose, and you might gain some piece of mind.

Good luck -
Sue in Denver

In Topic: Just Got "the Gluten Free Gourmet Bakes Bread"

24 April 2005 - 10:59 AM

Hi Laurie - Sorry I didn't reply sooner. I haven't checked this board in a while. My daughter is 13. We just went gluten-free for her in Feb. She had been having severe abdominal cramping and she tested positive for gluten sensitivity - gluten-free has cured her cramping and she is like a new person emotionally. I'm amazed at the difference!

Someone also asked about hot dog buns - I'm going to try using Bette Hagman's Butter Basted Bread recipe (from More From the gluten-free Gourmet) for that. It's the closest I've found to a white bread (or you can make it more "wheaty" by using brown rice flour).


In Topic: Just Got "the Gluten Free Gourmet Bakes Bread"

12 April 2005 - 05:33 AM

Hi - We're new to the world of gluten free living. I made the english muffins from that book this weekend and they were fabulous. My daughter was elated - "real bread!" :)


In Topic: Substitute For Bisquick

11 April 2005 - 05:29 PM

I found a great mix that is gluten free. :lol:
The mix is made by Pamela's products and is called: Ultimate Baking & Pancake mix.
i have only found it a Whole Foods and Wild Oats, but im sure you can also find it elsewere.

happy cooking

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