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raesue

Member Since 31 May 2011
Offline Last Active Jun 24 2011 08:41 AM
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Posts I've Made

In Topic: The What's For Dinner Tonight Chat

23 June 2011 - 10:54 AM

I'm so glad this thread is here. I was way too lazy to cook before gluten free (like bce?).

I'm making this brown rice pilaf with prosciutto and sun dried tomatoes from the gluten free recipes android app. I've tried the broiled citrus & herb fish recipe from there, and it turned out great, and easy! I couldn't find prosciutto, so I just bought some other ham, hope that works out. I haven't yet thought of what to put over it, might just consider it a dish in itself. Summertime changes my appetite, so the rice pilaf itself with some raw veggies on the side kinda sounds better than a heavy, meaty meal.

In Topic: What Is Normal?

12 June 2011 - 02:52 PM

My daughter's symptoms aren't that bad.... yet. She sounds like I did at her age, though, and I'm pretty miserable at this point. By experimentation with diet, we both seem much better gluten free. When our results came in, I gave her the choice whether to adhere to the diet or not. She chose chicken nuggets from burger king. It was the first gluten meal for both of us in 4 days. She decided to go gluten free after her first trip to the bathroom. The next morning she still wanted gluten food the next morning, and we both had frosted mini wheats. The evening, we lined up at the bathroom at the same time. That night, she complained of hemorrhoid like symptoms. This was two days ago. She has since been with my parents for the weekend, and my mom is to be keeping a food journal for me.
I don't think she's seriously ill at this point, but I believe she is headed that direction. It's just so much easier to be angry and defensive over your child than yourself. I'm afraid it does seem necessary to have her diagnosed to be taken seriously by the school. I realise I could just pack her lunch in future years and be good, but she's starting kindergarten where I know there will be daily snacks in the classroom.

In Topic: What Is Normal?

12 June 2011 - 08:51 AM

What I really want is scientific proof to throw in his face and scream STFU! or maybe I just want to rant. In his mind, no tangible evidence = nothing there

In Topic: What Is Normal?

12 June 2011 - 08:48 AM

I'm wanting to be told something other than "its all in your head". i was even straight called crazy yesterday. my incredibly supportive boyfriend/father of the five year old child occasionally doubled over in pain from cramps thinks a negative blood test is sufficient reason to forget all of this. he even suggested I let him support us and.go back to school or at least begin socializing more with friends to get myself to stop creating health problems for myself and dragging our daughter into it. I'm making sure I'm not just missing something here in that my experiences are lesser or different than those of you who can actually prove something is really going on with you.

In Topic: Negative Blood Tests

12 June 2011 - 07:46 AM

I feel exactly the same way. I wish it were just doctors, though. my boyfriend of nine years is telling me its all in my head. I wanted the test so badly just so I could prove I had a justifiable concern. I read a study someone had mentioned on a forum by Dr Peter green at Columbia. he looked at blood test results for biopsy diagnosed patients and found that in practice, the tests are only 70% accurate. for those without complete villous atrophy, the positives were below 50%. he also found no positive ttgs in that group. apparently the rate of iga deficiency in celiacs is 20%. it really made me feel like the test is practically useless. I'm sorry to hear about your trouble, but its nice to find someone else in the same situation. I think everyone I know is getting tired of hearing about it.