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Member Since 31 May 2011
Offline Last Active Mar 29 2012 07:03 PM

#723894 Celiac Daughter Looking For Pen Pal

Posted by on 18 August 2011 - 07:00 PM

i am probably too old to be her pen pal. but i would like to share my experience with her . i was diagnosed last year. i was so sad and angry i had to suffer so long (twenty some years). i am so relieved that i can feel better by eating the right stuff and that i was right all these years that something was wrong. i wish i had never had gluten. i imagine it could be awkward to be a gluten-free kid since society is so gluten obsessed and addicted to it but it would have felt great to know i could have a high quality of life and not be sick and jeopardize my health by just being gluten-free. if i had never have it i would not know "what i am missing" or had to "give up." i wish i had been diagnosed so young like your daughter to minimize the damage and maximize health. i already loved fruit and it is naturally gluten-free so i can eat it to my heart's content. i liked vegetables till the gluten made it so hard to eat them so getting rid of gluten meant getting to go back to veggies that are so good for me and despite their bad rap i think are pretty good especially with some olive oil and primordial sea salt (which is pink by the way good for you and pretty too). i also can still enjoy meat, fish, beans, seeds, and nuts - and i can better handle meat and fish whereas while i was having gluten it made me feel sick. i think it is easier to be gluten-free today than it used to be and i hope the future will continue to make it even easier. i hope people do not act like you are being a pain by needing to eat what is healthy for u. it sounds like u have great support and that is so helpful. i do not think of myself as abnormal. what is normal for my body is gluten-free. i question if anyone is really meant to eat and properly digest gluten. i hope you have a bright healthy joyful future.

best wishes!
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#723818 Rejoice With Me! I Have Good News...

Posted by on 18 August 2011 - 03:59 PM

yay! i am happy for you! it is also encouraging for those of us who are still struggling and trying to figure out what we need to do to feel better.
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#711133 Has Anyone Achieved Remission Of A Secondary Ai Disease By Treating celiac di...

Posted by on 22 June 2011 - 08:10 PM

i hope you feel better and get relief. one AI is one too many multiple ones are horrible. i agree with the other poster other food allergies seem to flair up the AIs. i understand what you are saying about being depressed and frustrated and having AIs ruin your life. i do not mind having a special diet, but I want to feel better. that is discouraging that you have been gluten-free for 4 years and are still so miserable. hopefully, eliminating the other allergens will help. best wishes!
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#705131 For Future Referance,

Posted by on 02 June 2011 - 06:52 PM

A lot of health problems run in my family, but I was the first one to find out about the gluten intolerance. It seems to me that the unaddressed gluten intolerance made my family more susceptible to health problems. I went undiagnosed with gluten intolerance for many years and instead amassed a variety of other diagnoses. When I went off gluten, many of my health problems resolved. I think the previous posters brought up good points that newly diagnosed people and people who are still struggling are likely to reach out on forums such as this. I think there is also some validity to untreated celiac's causing or increasing the likelihood of other health problems since it keeps the immune system busy on gluten as opposed to real threats and it wears out the body with its constant attack on gluten and decreased ability to absorb the nutrients that are needed for health. I think some other health problems are associated with it because there is still a lot that is not known - effects of other allergies, dairy intolerance, role of soy, cross reactivity, safety of other grains. In addition, there are challenges of cross contamination and not even knowing all the little ridiculous sources of contamination. That would be great if you can find answers in your family medical history, but it could have gone undiagnosed. Even today celiac's is often misdiagnosed or not realized for years and it seems even less likely to have been recognized in previous generations. While we can guess a family member had celiac's it is hard to tell for sure, since many symptoms are similar for a variety of diseases. Some people have obvious digestive symptoms, but others have the damage without the obvious symptoms. Best wishes for good health and finding the answers you are looking for!
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