Thanks for your response. Actually, our primary care first called to tell me that my oldest (who is asymptomatic) had it because her TT number came in just over normal and since my other daughter had full blown celiac, he concluded so did she. Then he called me back to say that after conferring with the pediatric gastro doc, they want to make sure of that by doing a challenge (which doesn't cause her discomfort), they can confirm with confidence it's celiac and not an anomoly. Since my initial diagnosis was later changed because of lack of blood/internal biopsy evidence (only punch biopsy at the rash site), I wondered if I needed something more conclusive as well.
It sounds like you're saying that I needn't bother with additional tests and should assume we're all celiac, correct?
I'm also very curious to know if there's research out there that suggests if you have two kids with celiac, then they must have received it from their parent. (In other words, their parent ALSO has celiac.) Is this true, or just coincidence?
I want to thank all of you who replied to my post. Just having people who know what they're talking about give me advice is so comforting. I will take your advice and go gluten free after the biopsy and also have all immediate family tested. I was tested a few years ago because they thought I had dermatitis herpetiformis...the blood test came back positive but the biopsy came back negative. Now I'm wondering...
Thanks again to you all.
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