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bartfull

Member Since 08 Jun 2011
Offline Last Active Apr 10 2014 11:43 AM
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Posts I've Made

In Topic: Genetic Factors And Triggers

09 April 2014 - 04:18 PM

Irish, I'm not trying to argue with you. Honestly. :) I'm just pointing out why some folks believed one could have celiac without the genes - because we read it here. Now we know better. But any newbies (or even "oldbies" like myself) could click on many threads and get the wrong idea. That second thread I posted was only a month old and in it, even one of the mods said it was possible.

 

I guess I was just trying to smooth things out on this thread because it looked like it was getting a bit heated. Someone had the wrong info, but they got it here so they believed it.  Some other folks had the latest, most up-to-date info that refutes previous info from this site. Personally, I feel like I learn something new every day here and I'm grateful that you and some of the other long-time members continue to educate us all. :)


In Topic: Genetic Factors And Triggers

09 April 2014 - 03:31 PM

And here's a recent thread where people had a DIFFERENT gene.

 

http://www.celiac.co...ow/#entry908882

 

(I think I'm posting these in a way to defend myself because I have told people, based on what I have read here, that some folks who DON'T have the gene(s) go on to develop celiac. I HATE it when it turns out I've been giving inaccurate info!)


In Topic: Genetic Factors And Triggers

09 April 2014 - 02:30 PM

Hi all! :)

 

I don't want to get into the middle of a disagreement, but I will say that I read here on this site, that not everyone who tests positive for celiac tests positive for the genes. I know I have read it from several different posters over the years. I looked it up and the first one I found was from back in 2011.

 

http://www.celiac.co...tive-gene-test/

 

You'll notice in the sixth post, there is a quote from Dr. F. made in 2009 in which he says ALMOST 100% of people with celiac have a gene for celiac. Now, that was a long time ago and the research may now show that EVERYBODY with celiac has one or more of the genes, but I DO understand why some folks question that since there have been so many posts right here (including this one that quotes Dr. F.) on our favorite website that say otherwise.

 

I guess the moral of the story is, we are still learning every day and what research shows to be true today may be disproven by the research of tomorrow.

 

And we shouldn't be getting mad at each other over it. (I haven't been glutened in a long time and my grouchiness is in remission. It has been replaced by a "group hug" condition.)

 

Love you guys. All of you. :wub:


In Topic: Still Not Taken Seriously?

08 April 2014 - 01:48 PM

As a waitress and fellow celiac, I'm kind of scared by everyone saying they get salads when they go out. Salads are some of the most likely things to be contaminated! In every restaurant I've worked the station that the salads are made is the same place they make wraps, appetizers, and possibly sandwiches. And when they're busy their hands that have touched flour tortillas and fried food go right in the lettuce and other veggies. It depends on the restaurant, of course, but I see enough that I'd never eat a salad at any place I've worked.

I have mentioned the same thing a few times. I worked in restaurants for years and I never saw a salad station I would trust.


In Topic: Worse Before It Gets Better?

08 April 2014 - 12:39 PM

Whoa. First of all, hops is not a gluten problem. The gluten in beer comes from barley and sometimes wheat.

 

It seems you have been jerked around by doctors. If you were diagnosed by blood test in 2011, you HAVE celiac. A negative biopsy could be either because you stopped eating gluten after being diagnosed the first time, or because they didn't take enough samples to get a true reading.

 

Yes, CC could definitely be the cause of your still being sick. If you are still getting gluten exposure it makes sense that dairy still bothers you, and if you have had repeat celiac tests that show you are still producing antibodies, that means you ARE still ingesting gluten. Go to the coping section here and read the newbie 101 thread. You will learn there how to avoid CC and hopefully that will get you back on the path to good health.