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bartfull

Member Since 08 Jun 2011
Online Last Active Today, 02:42 PM
*****

Posts I've Made

In Topic: Business Lunch Tomorrow

Yesterday, 02:21 PM

You might be able to get a plain baked potato UNCUT at the restaurant. You should also bring some Lara bars or something similar that you can keep in your purse.

 

I don't know what your job situation is like but your boss really should accomadate your dietary needs. When you get to the restaurant and eat just a potato or nothing at all I'm sure people will ask. Then you can tell them why and I bet your boss will be shamed by these people you're meeting for not insisting on a restaurant you could actually eat at.


In Topic: Going In For Surgery Next Week - Freaking Out At The Hospital...

Yesterday, 02:16 PM

Jello and Gatorade are both gluten-free. MSG is not my idea of something healthy to eat, but it is also gluten-free. Glutamate is not the same thing as gluten.

 

You may have problems with other proteins but it is not because they "mimic gluten". The only proteins that will cause a celiac reaction are the ones in wheat, rye, and barley. Many of us develop further intolerances to things like corn or soy, but that is not the same as a celiac reaction. Caramel coloring is derived from corn. Perhaps you are intolerant to corn, but it isn't causing villi damage like gluten would. (I know - if it makes you feel sick it doesn't matter and you should avoid it.)

 

So were you ever actually tested for celiac? I ask because it sounds like although you may have celiac, there seems to be something else going on too.


In Topic: Newbie Experience; Advice And Thoughts Appreciated

26 May 2015 - 01:17 PM

OK, these are the blood tests the doctor should have done:

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EMA IgA

total serum IgA control test

AGA IgA and AGA IgG (older less reliable tests)

 

There are some folks here who only tested positive on one of these, but they do indeed have celiac.

 

Also some folks are IGA deficient which means the tests are likely to be false negative.

 

Migraines are definitely a possible symptom of celiac. There are 300(!) potential symptoms. And yet some folks have NO symptoms and only discover they have it because they have good doctors who realize it is very common and so they do routine testing.

 

The doctor should have taken between six and eight samples when he did the biopsy. Some doctors only take one or two and they miss the damaged parts.


In Topic: Newbie Experience; Advice And Thoughts Appreciated

26 May 2015 - 11:12 AM

Hi and welcome! :)

So what tests did your doctor do? It might help if you have or can get the results and post them here. Lots of doctors don't do all the tests that are required to really give a diagnosis.

 

But even if he did all the tests and you ARE non-celiac gluten intolerant, you are MORE than welcome here! Lots of our members are in the same boat.

 

The first thing you should do is go to the Newbie 101 thread at the top of the coping section and read it. It would help to take notes and make sure to click on all the links provided too. You may find yourself feeling pretty crummy for a few weeks. Gluten withdrawal can lead to headaches, mood swings, ravenous hunger and an overall feeling of "something's wrong" - the shakes, a dreamlike feeling, whatever. Just know that this is normal and will go away in a week or three.

 

As far as a LOW CAL bread, forget it. gluten-free substitutes all tend to be high in calories and low in nutrition. Stick to whole foods at first - meats, rice/potatoes, veggies and fruit, and nuts. The newbie thread will help you learn to avoid cross-contamination and also help you learn to read labels.

 

Then come on back and ask lots of questions. We're here to help. :)


In Topic: Doctors Selling Info On Celiac?

25 May 2015 - 07:13 AM

None of the information given is available on the internet. Therefore I conclude that this poster "Veritas" is either a friend of Amy Meyers, or possibly Amy Meyers herself. Either way, I encourage this person to read here and LEARN something.


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