It sounds like you might have a good doctor. I'm guessing if the blood tests are positive he wants you in there so he can schedule an endoscopy with biopsy. If that is the case you really need to still be eating gluten. Let him know you stopped and he'll probably have you eat gluten for a few more weeks before the test.
Hi Joshua. This is a really old thread and most of the people who wrote aren't here anymore. But to answer your question, I think you are going through gluten withdrawal. I had similar feelings when I went through it, along with mood swings, headaches, ravenous hunger, and just an overall feeling that something was wrong. You should be coming out of it soon and start feeling good again. Hang in there!
It sure sounds to me like you have celiac. It's too bad you couldn't have been tested before you got pregnant but I agree, you shouldn't try a gluten challenge right now.
To answer your questions, it is very common for folks with celiac to have problems with dairy, at least at first. The villi, the part that digests our food, is damaged, and it is also the part that releases an enzyme that breaks down dairy. It isn't working right now. A lot of us have to give up dairy for about six months or so and then as healing takes place, we get it back. I'm concerned though that being pregnant, you need dairy. I think you should be taking heavy calcium and vitamin D supplements to make up for it because when we are pregnant the babies kind of leach the calcium out of our bodies. Now, I am NOT a doctor, so please, consult with your doctor about this.
Digestive enzymes (and probiotics too) have helped many of us feel better. They don't cure celiac, but they do make us feel better. Once again, because you are expecting, consult your doctor before taking anything.
You experienced something very common when you went off gluten. I call it the "honeymoon". I went through it myself. After about two or three weeks I felt better than I ever had, and then I started feeling crappy again. For some folks it's because the celiac symptoms masked our intolerances to other things. Dairy, soy, and corn are all common things some of us are intolerant to. Not everyone has further intolerances, and a lot of us get thoses foods back once they heal.
What COULD be happening to you is, you just feel crummy because you haven't healed yet, you could have further intolerances, of you could still be getting glutened. There is a thread in the coping section here called Newbie 101. It'll teach you all sorts of things about celiac, the diet, and how to avoid cross-contamination. For example, if your husband eats gluten or drinks beer and then kisses you, you just got glutened. If you use the same butter, peanut butter, mayo, etc. that gluten eaters dip their knives into, you have just been cross-contaminated. You need a separate toaster. You need your own cutting boards, wooden spoons, strainers, colanders, etc. You can't use cast iron or scratched teflon pans if they once held gluten.
And you need to check your meds and supplements. Some may contain gluten. Most importantly, you need to wash your hands every single time before you put anything in your mouth. And read every single label every single time you buy something. It sounds overwhelming and to be honest, it is at first. BUT!!! I PROMISE it will get easier - to the point that you hardly ever think about it. It becomes second nature.
Oh yeah, and celiac runs in families. It is a good idea to get all of your kids tested too.
So read the Newbie thread, then come back and ask lots of questions. And make sure to check with your doctor about any changes to your diet while you are pregnant.