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bartfull

Member Since 08 Jun 2011
Offline Last Active Today, 01:07 PM
*****

#935354 Got A Turkey

Posted by bartfull on 20 November 2014 - 12:37 PM

I say THIS to the corn-free gods:  slapping.gif


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#935139 Am I Just Nervous

Posted by bartfull on 17 November 2014 - 03:37 PM

What she said. :)

 

And do go over to the coping section here to read the Newbie 101 thread. It'll help a LOT!


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#934948 Is Great Value Canned Chunk Chicken Breast gluten-free?

Posted by bartfull on 15 November 2014 - 10:10 AM

If it contained wheat the label would have to say so. It's the law.

 

That being said, there is no law about labeling for barley. I would think it would be on the label anyway though. The only way to know for sure is to call the company and/or check their website. (It's been my experience that emailing is better. They could always deny a person on the phone told you it was gluten-free, but if they put it in writing they had better be right. Not only that, but half the time the people on the phone don't know what they're talking about but the person writing the email has time to double check and make sure.)


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#934475 Does Your School Provide A gluten-free Lunch For Your Kids?

Posted by bartfull on 08 November 2014 - 02:13 PM

I don't think your school is following the guidelines if they took away salad and replaced it with a hot dog. The new menu is supposed to be heavy on fruits and vegetables and low on salt. Hot dogs are notorious for being high sodium.

 

http://health.usnews...ew-school-menus


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#932698 Discouraged By My Dr.

Posted by bartfull on 15 October 2014 - 10:41 AM

I would have a talk with the doctor though and tell her what you told us. Tell her you feel betrayed and lied to. Then tell her she's fired.


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#932397 Diagnosing Dh Rash

Posted by bartfull on 09 October 2014 - 11:56 AM

There are many rashes that LOOK like DH. And dapsone is used for other skin problems besides DH. No reputable doctor would diagnose someone with DH just by looking at it, especially if five biopsies had negative results. You may have been to dozens of doctors but remember, a lot of us had to go through dozens of doctors before we got a correct diagnosis. There are a lot of doctors out there who really don't know anything about celiac (or much else for that matter.)

Oh, and by the way, I AM in my 60's.
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#932388 Diagnosing Dh Rash

Posted by bartfull on 09 October 2014 - 10:52 AM

Mitch, Mitch, Mitch. I'm so sorry you have been mislead to the point you are suffering for it. Please, read these articles (plus the one I linked to earlier from the NIH). National Institutes of Health, The Mayo Clinic, and the University of Chicago know what they are talking about, and yet because your doctor who didn't even do a biopsy on you gives you false information he has not only mislead you about your condition, but I believe he has actually put your life in danger. Celiac will kill a person slowly, but a true allergy can kill a person right NOW.

 

Please, go get a biopsy. And get it from a GOOD dermatologist. SHOW him the links provided here so he will know how to do it right.


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#932380 Diagnosing Dh Rash

Posted by bartfull on 09 October 2014 - 10:21 AM

CELIAC is an autoimmune disease. And DH is the celiac manefested in the skin. And no matter what your doctors may have said, if you haven't had a biopsy, especially with your far from typical for DH symptoms, odds are strongly AGAINST you having actual DH, and strongly in favor to your having a wheat ALLERGY.


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#932377 Diagnosing Dh Rash

Posted by bartfull on 09 October 2014 - 10:04 AM

Mitchgam, pardon me for jumping in here, but you DO realize that celiac is NOT an allergy, don't you? It is an intolerance, which is a totally different thing. It sounds to me that what you are dealing with is a true allergy. Did your doctor do a biopsy of your DH, and if so, how did he do it? Did he take a biopsy of an active lesion or did he biopsy the skin right near an active lesion?

 

Oh, and here is an article from the NIH that explains that it is common for people who remain strictly gluten-free to still have DH flares even two years later: http://celiac.nih.gov/Dermatitis.aspx


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#932138 Kraft Products ... I'm Shocked!

Posted by bartfull on 05 October 2014 - 12:51 PM

OK, I'm done. We are trying to help you but you don't want to be helped. Do what you want. Eat what you want. You are a drowning person who keeps batting away the life preserver people are throwing your way. I wish you well but I'm done beating my head against your brick wall.


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#932066 Kraft Products ... I'm Shocked!

Posted by bartfull on 04 October 2014 - 12:07 PM

SMRI, what you need to remember is that if it has wheat, the law is that it has to say so. So for an ingredient you never heard of, if it is made with or from wheat it'll say something like, "ambirentinutios D (from wheat)" (Pretty cool name I made up, Huh? :lol: )

 

Now rye is something I don't think any of us has ever seen outside of bread or crackers so that one is no worry.

 

Barley is the only one you have to worry about. Mostly you will find it in the ingredient malt. And the thing is, barley is expensive compared to things like corn so if a product DOES contain barley, a company will most likely let you know. It's kind of like they are bragging about what costly ingredients they use.

 

So wheat will always be labeled, rye is a non-issue. If you want to learn about ingredients that may contain barley you could look it up and make a list. Then if you see an ingredient that is on that list, you could either not buy it, or contact the company.

 

I myself am intolerant to corn and they don't have to label for corn. For a while I kept a list of all the things that potentially are made with corn, and I limited my diet so much! After a while I started contacting companies to find out for sure. (For example, xanthan gum is USUALLY grown on corn, but not always. And that shredded cheese we were talking about in the other thread? SOME shredded cheeses have corn starch. Most though are celulose starch.)

 

Anyway, it really isn't as hard as you're making it. I understand the paranoia. I've got that! :lol: But you're limiting yourself in ways you don't have to. Honestly, we've all been through it and we came here for help from the old timers. Some of us have stuck around to pass it forward. There is not a one of us old timers who would give you false information. If we're not sure of a product we'll say so. But if I or Karen or Irish, or any of the members who have been here for a long time tell you something is safe it is because we have done the research. We would NEVER calim something is safe if we were't sure. We don't want YOU to get sick any more than we would want ourselves to. Honestly.


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#932030 Kraft Products ... I'm Shocked!

Posted by bartfull on 04 October 2014 - 07:44 AM

This forum is here to help newbies. "According to my opinion" we DO need to discuss things, and when those of us with years of experience can ease the minds of newbies about the safety of certain products, we have done our job well.

 

When other newbies come here and try to scare people away from perfectly safe products, they are being counterproductive.

 

The bottom line is, no matter what YOU think, Kraft is a great company that is extremely celiac friendly for those who are willing to read labels, and their products are available at reasonable prices.

 

And I must say, I notice you were "diagnosed" by Enterolab. If you had applied the same stringent demands of your "diagnostician" as you do to food companies, you would have learned that Enterolab is a scam. I'm not saying you don't have celiac, but the "test" you had is not recognized by the medical community nor celiac specialists. There are tests available in which the science is solid and has been peer reviewed. I suggest you do better research in the future because when it comes to one's health, shaky science can be dangerous.


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#931988 Kraft Products ... I'm Shocked!

Posted by bartfull on 03 October 2014 - 03:33 PM

Read the law again. They DON'T HAVE TO TEST TO CLAIM SOMETHING IS gluten-free. If enough people complain about a product labeled gluten-free, the FDA can come in and bust them, but until that happens, companies like that coffee substitute and that beer labeled "gluten removed" can continue to claim gluten-free status. So while the new law is a start, it really hasn't changed much for us. We HAVE to read the labels. EVERY TIME.


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#931986 Kraft Products ... I'm Shocked!

Posted by bartfull on 03 October 2014 - 03:29 PM

If you read about the certification process (google it), you will see that it is very costly. That is why cerified gluten-free products cost the consumer about twice (or more) what regular products cost. If I can read a label from a trusted company and see that it is gluten-free, I will buy that product rather than relying on the certified gluten-free label. If I were too lazy to read labels or to do research about which companies to trust for accuracy in labeling, I couldn't afford to eat! I believe it was on the first page of this thread that the list of companies that are trustworthy (Kraft, Unilever, Con-Agra, etc.) was posted. So you don't even need to do the research because it was already done for you!

 

So rather than demanding that these good companies spend all that money for certification just so you won't have to bother reading the labels, let those of us who DO read labels and DO know which companies to trust, continue to buy these products at a reasonable price.


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#931982 Kraft Products ... I'm Shocked!

Posted by bartfull on 03 October 2014 - 03:14 PM

I agree with SMRI. If they're so great, they should test and get certified and prove it. They're a big enough company with plenty of money.

 

 

Fine! Then don't eat their products.


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