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Member Since 08 Jun 2011
Online Last Active Today, 02:24 PM

#950724 How To Help An Asymptomatic Celiac Stop Cheating On A Gluten Free Diet

Posted by on Yesterday, 01:53 PM

You can lead a horse to water but you can't make him drink. Send him to this site and hope he takes a sip.

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#950556 Paper Plates?

Posted by on 27 August 2015 - 11:36 AM

Um, could I make a suggestion? If your husband is the only one in your home who consumes gluten, why not segregate his dishes and YOU wash them by hand? That way the kids can continue using the dishwasher for the gluten-free dishes, and you will be assured there is no contmination. :)

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#950295 Silent Celiac And Hard To Keep The Diet

Posted by on 20 August 2015 - 03:58 PM

Thyroid problems. Lupus. Rheumatoid arthritis. Cancer. MS. Neurological problems.


You risk all of these and much more if you don't go STRICTLY gluten-free.


The good news is there are substitutes for all of your old favorites. Try Udi's multi-grain bread. Bard's beer. And lots of places have gluten-free pizza now, not to mention all of the gluten-free frozen pizzas available. Sure it'll be hard at first, but the payoff is worth it. You may not have any symptoms now but you will have lots of nasty symptoms if you continue eating gluten foods.


And you might just find that you DID have symptoms and didn't even know it. Not all celiacs have gut symptoms. Heck, I had leg cramps, frequent and painful hiccups, rashes, headaches, and lots of other things that went away when I went gluten-free.


I'm sure others will be along soon to chime in, but in the meantime go to the Newbie 101 thread in the coping section. Be sure to click on all the links provided. You will learn a lot about celiac and the diet and cross-contamination.


If the rest of us here can do it, you can too. It really does become second nature. Your future health is depending on you.

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#949904 Gluten Free For Lyme Cure

Posted by on 10 August 2015 - 11:58 AM

OK, first of all there is no such thing as a gluten allergy. You can be allergic to wheat or to rye or to barley, but not to gluten itself.


But allergies are not the same thing as celiac. Celiac is an autoimmune disease. I believe the genetic test you had was probably to see if you had the most common celiac genes. MOST but not all people who have celiac have one or both of the two most common celiac genes. There is at least one member here who has celiac without those genes.


But the gene test doesn't diagnose celiac. It only lets you know if you MAY develop it at some point.


While I am not a fan of GMO's I do know that wheat (at least here in the US) is NOT GMO. Corn is and soy is, but not wheat. And I don't think GMO's cause celiac. As I said, it is a genetic, autoimmune disease.


If you have Lyme disease you have probably been on a long course or heavy antibiotics. Those will destroy your gut flora and can lead to all kinds of digestive problems. You need probiotics. Your doctor should have mentioned that. You can't take them at the same time you take the antibiotics. You should wait at least two hours and then take them.

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#949689 Guilt

Posted by on 03 August 2015 - 12:14 PM

Think about this - because celiac is genetic there is a very strong likelihood that you inherited it from one of your parents. Would you have rather THEY didn't have YOU?


Life is so GOOD, even with celiac! As Not Me said, with scientific advances it's only going to get easier, and as Eloise said, she is glad her parents had her. GO FOR IT! :)

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#949114 Is It Necessary To Get A Diagnosis For Suspected Gluten Ataxia?

Posted by on 21 July 2015 - 06:53 AM

Angelique, Gluten ataxia IS celiac, manifested in the cerebellum, just as DH is celiac manifested in the skin. And it's great for you that you have no digestive symptoms, but there are quite a few folks with gluten ataxia who DO, just as SOME folks with DH get no digestive symptoms while others do.

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#948861 Please Help Me!

Posted by on 15 July 2015 - 01:46 PM

Christina, welcome to the forum. Do you have copies of your test results? Often they don't do the full panel. Also, and this is a biggie, people with DH very often don't show up as positive on blood tests or even the biopsies. DH is celiac manifested in the skin instead of the gut. To get tested for DH you need to find a good dermatologist and have him biopsy clear skin right NEXT To an ACTIVE lesion. If you test positive for DH then you DO have celiac. Go over to the DH section here at the forum and read as much as you can. Our resident experts there can help you.


Even if you have NCGI, you can suffer just as much or more than folks with full blown celiac. You need to be eating gluten to be tested, even for the biopsy, and you can't be on or recently have taken steroids or it will mess up the test. Once you have completed testing, no matter what the results are, you should try going gluten-free. And give it a GOOD try. Be strict and give it a good six months. The Newbie 101 thread in the coping section will teach you how.


I hope you're feeling better soon, and don't be afraid to ask questions. We're here to help. :)

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#948845 Uh-Oh!

Posted by on 15 July 2015 - 12:04 PM

So my friend Bonnie who lives in a senior housing place came in yesterday all sad because they took her friend Harold to hospice. Harold was so worried about what would become of the cat that was his whole world. Well, I said I'd go down and see. If I WAS going to get another cat I wanted an older cat who had lost her "mom". I wanted a little girl kitty with short hair who was an indoor only cat.


Well, Patches is a big boy kitty with long hair, but they told me Patches was shy and didn't like people he didn't know. I walked in and Patches was all over me, head butting me and purring and rolling around on the floor. The people were amazed.


And Patches came home with me. He's HUGE! He must weigh 20 pounds! Black and white and SO affectionate. He's too big to fit in my lap but he likes to lie on the couch next to me with his head in my lap. And he likes to "hold hands". He puts all four of his huge paws against the palm of my hand and then he falls asleep. He likes his belly rubbed. And he eats yogurt. (I got a whole list of instructions from Harold.)


Bonnie went up to see Harold last night and told him she had found a great home with someone who would love Patches and spoil him rotten.


Harold died this morning, and I promised that when Patches dies I will have him cremated and the ashes buried with Harold.


But in the meantime I have a new best friend. :wub: I will miss Grommit forever and I'm sure Patches will miss Harold forever, but we're going to make each other happy for as long as we can. Patches is 12 and a half years old and other than being overweight he's very healthy.


Life is good.

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#948731 Fresh Plain Chicken Breast

Posted by on 13 July 2015 - 01:34 PM

I THINK (but I could be wrong) the labeling law applies to FDA regulated foods but not to USDA foods. Meats are under the jusidiction of the USDA.


I eat lots and lots of chicken. I buy Tyson chicken breasts with the bones still in it. Never had a problem.


The stores also sell big bags with boneless chicken breasts in them but they are full of chemical and other stuff. Besides, they shrink down to about half their size when cooked so they really are no bargain.

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#948714 Solved Food Intolerance By Treating Parasitic Infection?

Posted by on 13 July 2015 - 11:02 AM


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#948601 The Fight Against Omission Beer

Posted by on 10 July 2015 - 04:03 PM

I went to their website. There is a map and they ask you to click on a state. Because the second article I posted says they can only make the gluten-free claim in Oregon, I clicked on Oregon. This is the first thing I read:


We had a mission...

to brew a great
craft beer that happens
to be gluten-free.

Handcrafted beers made from malted
barley, hops, water and yeast.
Where the only thing missing is the
gluten. Well, mission accomplished.
Here’s to great beer for everyone.
21 and over that is.


Even after I exited the site I couldn't get the map to reappear so I could click on a different state to see what it says so I don't know if they make the claim when the beer is shipped out of state.


I'm not trying to argue with you, just trying to find the best info for others. Personally, I wouldn't try it when I can get Bard's for those rare occasions when I feel like having a beer. Come to think of it, other than the sample of Bard's I tried at a gluten-free expo, I haven't had a beer in years. :lol:

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#948550 Taco Shells

Posted by on 09 July 2015 - 03:16 PM

I repeat, YOU are the one who claimed there could be 100 causes of abdominal pain such as you had. It astonishes me that you can insist that gluten CC is the only possible culprit.


It also astonishes me that you have come onto this forum simply to argue with people for caring enough to make helpful and sensible suggestions. But if it DOES turn out to be something else, if the pain reoccurs when you are eating something like plain chicken, or if it occurs when you are not eating anything at all, please go back and see your nine doctors rather than assuming the chicken or the AIR is CC'ed.

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#947489 Very Big Decision To Make But Need Some Distractions

Posted by on 21 June 2015 - 01:05 PM

I have known several people in similar situations (from different causes) who made the same decision you have made. After a while they got tired of it all, and although it may have LOOKED like they gave up the fight, what they were actually doing was accepting what was, and making peace with it.


When I pray, I never ask Him for specific things, I only ask that His will be done, that I can accept His will joyfully, and if by some chance He can use me to accomplish His will, that He go right ahead and make me a tool in His hands. He knows you have great faith in Him, and whatever His will is, you accept it. There is no higher calling than that. 



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#946981 I'm Back And I'm Sick

Posted by on 11 June 2015 - 01:28 PM

Thanks everybody. I've never met any of you but I can honestly say you are some of the finest people in the world. :wub:

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#946151 Doctors Selling Info On Celiac?

Posted by on 25 May 2015 - 07:13 AM

None of the information given is available on the internet. Therefore I conclude that this poster "Veritas" is either a friend of Amy Meyers, or possibly Amy Meyers herself. Either way, I encourage this person to read here and LEARN something.

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