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Member Since 08 Jun 2011
Offline Last Active Today, 11:08 AM

#949114 Is It Necessary To Get A Diagnosis For Suspected Gluten Ataxia?

Posted by on 21 July 2015 - 06:53 AM

Angelique, Gluten ataxia IS celiac, manifested in the cerebellum, just as DH is celiac manifested in the skin. And it's great for you that you have no digestive symptoms, but there are quite a few folks with gluten ataxia who DO, just as SOME folks with DH get no digestive symptoms while others do.

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#948929 A Dream Come True Thanks To My Sisters

Posted by on 16 July 2015 - 10:06 AM

I'm so glad for you, sweet girl. When will you be going? You'll have to tell us all about it. (((((HUGS)))))

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#948861 Please Help Me!

Posted by on 15 July 2015 - 01:46 PM

Christina, welcome to the forum. Do you have copies of your test results? Often they don't do the full panel. Also, and this is a biggie, people with DH very often don't show up as positive on blood tests or even the biopsies. DH is celiac manifested in the skin instead of the gut. To get tested for DH you need to find a good dermatologist and have him biopsy clear skin right NEXT To an ACTIVE lesion. If you test positive for DH then you DO have celiac. Go over to the DH section here at the forum and read as much as you can. Our resident experts there can help you.


Even if you have NCGI, you can suffer just as much or more than folks with full blown celiac. You need to be eating gluten to be tested, even for the biopsy, and you can't be on or recently have taken steroids or it will mess up the test. Once you have completed testing, no matter what the results are, you should try going gluten-free. And give it a GOOD try. Be strict and give it a good six months. The Newbie 101 thread in the coping section will teach you how.


I hope you're feeling better soon, and don't be afraid to ask questions. We're here to help. :)

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#948731 Fresh Plain Chicken Breast

Posted by on 13 July 2015 - 01:34 PM

I THINK (but I could be wrong) the labeling law applies to FDA regulated foods but not to USDA foods. Meats are under the jusidiction of the USDA.


I eat lots and lots of chicken. I buy Tyson chicken breasts with the bones still in it. Never had a problem.


The stores also sell big bags with boneless chicken breasts in them but they are full of chemical and other stuff. Besides, they shrink down to about half their size when cooked so they really are no bargain.

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#948714 Solved Food Intolerance By Treating Parasitic Infection?

Posted by on 13 July 2015 - 11:02 AM


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#948601 The Fight Against Omission Beer

Posted by on 10 July 2015 - 04:03 PM

I went to their website. There is a map and they ask you to click on a state. Because the second article I posted says they can only make the gluten-free claim in Oregon, I clicked on Oregon. This is the first thing I read:


We had a mission...

to brew a great
craft beer that happens
to be gluten-free.

Handcrafted beers made from malted
barley, hops, water and yeast.
Where the only thing missing is the
gluten. Well, mission accomplished.
Here’s to great beer for everyone.
21 and over that is.


Even after I exited the site I couldn't get the map to reappear so I could click on a different state to see what it says so I don't know if they make the claim when the beer is shipped out of state.


I'm not trying to argue with you, just trying to find the best info for others. Personally, I wouldn't try it when I can get Bard's for those rare occasions when I feel like having a beer. Come to think of it, other than the sample of Bard's I tried at a gluten-free expo, I haven't had a beer in years. :lol:

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#948550 Taco Shells

Posted by on 09 July 2015 - 03:16 PM

I repeat, YOU are the one who claimed there could be 100 causes of abdominal pain such as you had. It astonishes me that you can insist that gluten CC is the only possible culprit.


It also astonishes me that you have come onto this forum simply to argue with people for caring enough to make helpful and sensible suggestions. But if it DOES turn out to be something else, if the pain reoccurs when you are eating something like plain chicken, or if it occurs when you are not eating anything at all, please go back and see your nine doctors rather than assuming the chicken or the AIR is CC'ed.

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#947489 Very Big Decision To Make But Need Some Distractions

Posted by on 21 June 2015 - 01:05 PM

I have known several people in similar situations (from different causes) who made the same decision you have made. After a while they got tired of it all, and although it may have LOOKED like they gave up the fight, what they were actually doing was accepting what was, and making peace with it.


When I pray, I never ask Him for specific things, I only ask that His will be done, that I can accept His will joyfully, and if by some chance He can use me to accomplish His will, that He go right ahead and make me a tool in His hands. He knows you have great faith in Him, and whatever His will is, you accept it. There is no higher calling than that. 



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#946981 I'm Back And I'm Sick

Posted by on 11 June 2015 - 01:28 PM

Thanks everybody. I've never met any of you but I can honestly say you are some of the finest people in the world. :wub:

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#946151 Doctors Selling Info On Celiac?

Posted by on 25 May 2015 - 07:13 AM

None of the information given is available on the internet. Therefore I conclude that this poster "Veritas" is either a friend of Amy Meyers, or possibly Amy Meyers herself. Either way, I encourage this person to read here and LEARN something.

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#945373 Wheat Cat Litter

Posted by on 09 May 2015 - 11:14 AM

Yes, you most likely breathed in some of the dust and swallowed it. Wear a mask or bandana or something, then exit the room.

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#944025 Caramel Coloring?

Posted by on 14 April 2015 - 12:09 PM

BUT! There are several supersensitives here on this forum and not one of them has ever claimed to have a gluten reaction to Coke or Pepsi. That indicates that whatever you are reacting to gives you a reaction that is SIMILAR to a glutening, but it is not a true glutening.

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#943956 My Celiac Disease Is Causing Stressful Family Conflict

Posted by on 13 April 2015 - 10:33 AM

And if you DO end up moving back in, get a little apartment sized fridge to keep in your room. Get a plastic tote for non-refrigerated items and keep that in your room too. Bring your own pots and pans and keep those in your room. When it's time to cook, take your stuff out into the kitchen and cook away. Sit right down and eat with your parents. Wash your own dishes first using your own dishcloth. Take your stuff back to your room.


That may sound drastic, but if your Dad is getting dementia is would be the safest thing. It would also be the most loving thing. Cherish your parents and give them as much love as you can while you can.

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#942440 This Is Why Corn Causes Gluten Like Symptoms

Posted by on 18 March 2015 - 10:34 AM

There are many, many, in fact MOST, celiacs who can eat corn with no problem. I used to have bad reactions to corn myself, but now that my gut finally healed I can eat it again. Now don't get me wrong, I do not like the very idea of genetically modified foods, but I am absolutely sure that there is no wheat gluten in corn, any more than there is gluten in blueberries or almonds or any of the other many foods that made me sick before my gut healed. (I can eat them all now.)


And the reason celiacs have trouble with dairy is simply because the part of our bodies that produce the enzyme that digest dairy is the part of us that is damaged. It has nothing whatsoever to do with what the cows eat.


I'd love to find out who the maker of this movie is and what his/her credentials are.

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#942083 Super Itchy Rash Going On 4 Years Now

Posted by on 13 March 2015 - 10:35 AM

Chefwife8, please, listen to SquirmingItch. She knows what she's talking about. Our "friend" Mitchgam is totally mistaken and unfortunately he holds on tight to his false beliefs and refuses to listen to reason.


If you have any doubts about that, read his posts here:


Pay particular attention to the thread titled "Diagnosing DH rash" and the one "DH sometimes looks like poison ivy". Mitchgam has an allergy to wheat that he insists on calling DH. He is wrong.

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