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Member Since 08 Jun 2011
Offline Last Active Today, 08:20 AM

#897204 How To Overcome The "wants" + Anxiety

Posted by bartfull on 25 November 2013 - 02:10 PM

If you keep a bag of chocolate chips in the fridge at work I can guarantee some of your co-workers will sneak a few. That would be bad enough for any person, but for a celiac, that means their gluteny hands will contaminate the whole bag. It would be better to have individually wrapped chocolate snacks. Or you could get some Lara Bars. They're small but filling, and they're really good. Come in all kinds of flavors.

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#897196 Finally Diagnosed And Wondering If I Have To Live In A Bubble...

Posted by bartfull on 25 November 2013 - 01:37 PM

Hi! Welcome to the forum. :)


I'm one of those who does not eat in restaurants, but that is because I have additional intolerances. It seem you do too, but there is no such thing as "cross-reactivity", no matter what you may have read on the internet. These other intolerances we have are actually something we have probably had all along, but they were masked by the celiac, kind of the same way a sinus allergy would be masked by a head cold. Once the cold gets better you realize that wasn't the ONLY thing causing your sneezing and runny nose.


Some folks find that after their gut completely heals they can add a lot of these foods back to their diets. Corn has been my biggest problem, but I eventually got corn STARCH back. I also had a major problem with almonds. I tried some a couple of weeks ago and had a MINOR (very mild) reaction. That gives me hope that eventually I may get them back totally. I had trouble with white potatoes and gave them up. Tried them again a year later and had no reaction. Then I went hog wild and ate potatoes every day. After a while I got joint pain (nightshades can tend to do that), so I gave them up again. But even though I got joint pain, my "normal" bad reaction to potatoes never resurfaced.


It can be confusing and frustrating for sure, but if we completely stay away from gluten, I believe there is hope for ALL of us with additional intolerances, that we can get these other foods back - eventually.

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#896951 1St Holiday Season After Dx - How Did You Feel/do/cope?

Posted by bartfull on 23 November 2013 - 09:03 AM


OK, ALL of you who are considering eating someone else's cookin, read this. Click on and read all the links too. And if you think you STILL want to eat something a relative who doesn't have any experience with celiac made, remember, post-glutening you need to take extra probiotics, drink lits of water, and get lots of rest. You WILL need it.
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#896901 1St Holiday Season After Dx - How Did You Feel/do/cope?

Posted by bartfull on 22 November 2013 - 03:50 PM

Both of you need to remember, if you're going to let someone cook for you, that if they use any scratched plastic, wooden spoons, cast iron, teflon, pot holders, strainers, or turkey basters that have been exposed to gluten in the past, you WILL get sick. If any of YOUR food is on the countertop when they decide to bake, the flour dust will settle on it and you WILL get sick. If someone absentmindedly stirs a gluten food and then stirs yours with the same spoon, you WILL get sick.


Think about the learning curve and how impossible it all seemed to you at first. There's just too much chance that a well-meaning person will make a mistake, and just one mistake will ruin the holidays for you and for them. Imagine how bad they would feel if you end up spending the rest of the holiday in the bathroom.


It's your call, but you need to think about it hard. I'd be willing to bet most of us "old-timers" who did our first Thanksgiving allowing someone else to cook for us ended up getting sick.

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#896895 1St Holiday Season After Dx - How Did You Feel/do/cope?

Posted by bartfull on 22 November 2013 - 03:18 PM

They are your family. Explain to them that you're too new to this to take chances, and that you'd feel more comfortable bringing your own food. Tell them how easy it is to cross-contaminate stuff.Explain that even YOU mess up on occasion and you don't expect them to learn in a couple of weeks what YOU haven't even learned yet. Tell them if you bring your own it'll make it easier on everybody - they won't have to be so careful. Tell them that the IMPORTANT thing to you is to spend time with them. Then go and have a good time.


As for food gifts that you can't eat, say thank you, and then donate them to a food bank or give them to a friend. It IS the thught that counts, (even if it SEEMS like something you can't eat is a thoughless gift). Just a gracious thank you, put it away, and then give it away later.

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#896644 Lewey Body Disease (My Mom Just Was Diagnosed With It)

Posted by bartfull on 20 November 2013 - 01:29 PM

Prayers for your Mom, and for you. (((((HUGS)))))

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#896427 How Can You Manage A Gluten Challenge When Cc Affect You So Badly?

Posted by bartfull on 18 November 2013 - 04:22 PM

One does not have to be "properly diagnosed" in order to be really disciplined with their diet. All one has to do is have the desire not to be horribly ill. I don't think any of us here would knowingly eat gluten any more than we would knowingly eat strychnine, "proper diagnosis" or not.

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#896158 My Dog And His Food

Posted by bartfull on 16 November 2013 - 04:19 PM

Mom had a poodle who was born sick. (Poor little thing was rescued from a puppy mill.) She (the dog, not Mom) had severe pancratitis, and her bladder was permiable. She even went to Tufts and has been written up in veterinarian medical journals.


Anyway, Mom cooked for the dog. She ate chicken and she ate hamburger. And later in her life, she had to be on a special, medical dogfood. Well, the dog was used to having her food hot so she wouldn't eat it. Mom went out and bought a new toaster oven and used the old one to heat the dogs food (and let me tell you, it REEKED!) But the dog ate it and between Mom's doting care and the help of the vet (I won't go into how much money Mom spent!), that poor little sick dog lived to be 15!


She died the same day Mom did. As a matter of fact (you can get through this, Barty), as Mom lay dying it seemed that she didn't want to let go. She was worried about who would take care of the dog. I told her "I've got one hand and Jesus is taking your other hand. He's going to take you home to see Daddy, and Buttons is going to meet you there too."


She smiled, and then she died.


True story.

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#895910 After Celiac Diagnoses - Were You Angry?

Posted by bartfull on 14 November 2013 - 01:08 PM

Yeah, there are a lot of foods I miss. I used to start my day with two english muffins. I know I can get gluten-free ones, but I don't want the expense. And I used to love mexican food, but I also have a corn intolerance so I can't eat that anymore. As a matter of fact, there is corn in almost ALL processed foods, so I can't eat any of them. No more grabbing something on the way to work. The INCONVENIENCE is just as bad if not worse than not being able to eat some of the foods I loved.


But I look at eating as a necessary bodily function, like breathing and sleeping. It's something I have to do, I do it, then get on with my day. And the ice cream at the end of the day is my reward. Food, no matter WHAT the food, is not as important to me as LIVING. I concentrate on all of the good things besides food that life has to offer. Music and friends and the beautiful scenery all around me. And to be quite honest, if I could go back to eating the way I used to, I wouldn't. All that artificial crap masquerading as food is not only not good for ANYONE, but I honestly think part of the reason I feel better is not just being gluten-free, but being junk food free.

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#895894 Best Way To Deal With Servers?

Posted by bartfull on 14 November 2013 - 12:10 PM

I don't think Colleen's answer was insensitive. It's just the truth. I have only eaten in restaurants a few times in the past two and a half years. Twice it was at a place that my "son" worked, so I knew he would take care of me. Once was at Outback (they have a gluten-free menu and good ratings from the celiac crowd.)


My son doesn't work at the first restaurant anymore (off to college), so I won't be going there anymore. And Outback was OK. I din't get sick, but the food was nothing to write home about. So now the only place I would risk is a pizza place about 50 miles up the road where one of the family members is celiac, so they do it right. I know several celiacs in my area and they have all eaten there many times without getting sick. I haven't had a chance to get up there yet because I work so many hours, but one of these days I will.


Other than that, I only eat what I cook at home. I still go out and enjoy the company of my friends, I just eat first. (Then have ice cream when I get home. :lol: )

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#895880 DH Photo Bank

Posted by bartfull on 14 November 2013 - 11:02 AM

I don't have DH, but the pictures look like it (to me). Actually, what I'm doing here is posting to bring this thread back to the top so that some of our DH victims will see it and respond. I hope you get some answers soon. (((((HUGS)))))) to you and your little one.

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#895455 Amazing Conversations

Posted by bartfull on 11 November 2013 - 12:42 PM

Off the top of my head, the sweetest words I've heard re celiac disease were, "Come anyway!" when friends were having a dinner or going out. They know I can't eat, but it's my company they want. :)

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#895125 Questions To Ask The Gi Doc, Especially About Possibility Of It Not Being Cel...

Posted by bartfull on 07 November 2013 - 12:28 PM

None of my business, but some of those crappy diseases you fear may be brought on by untreated celiac. Did you know that certain cancers, thyroid problems, lupus, diabetes, and a host of other autoimmune diseases are much more likely to hit an untreated celiac? If things like that run in your family, it might just be that undiagnosed celiac was the underlying cause.

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#894970 Dealing With Getting Glutened?

Posted by bartfull on 06 November 2013 - 12:02 PM

Whole foods. Only eat things you have prepared yourself and in your own kitchen. Eventually you will be able to add new things, but for now, keep it simple. Even though you've been at this since June, if you keep getting glutened, you're not healing. Be really strict for another six months or so, then SLOWLY start adding some gluten-free processed foods if you feel that you need them. Against the Grain, Udi's, and any Kraft products that don't list wheat, rye, or barley in their ingredients are safe.


Right now, because you haven't healed, you could easily get sick from eating non-gluten foods. When our guts are all torn up, just about anything can set us off. That's why I say, eat whole foods only for a while. Yeah, it'll be boring, but you can do it. Make big batches and put individual servings in the freezer so you can just microwave your lunch at work. Bring your own bowl and utensils, and make sure you cover it while microwaving it so you don't risk getting CC'd by something a co-worker mic'ed earlier.

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#894151 Sign For The Front Door...

Posted by bartfull on 01 November 2013 - 02:15 PM

Not trying to be contentious, HONESTLY I'm not, but didn't we just have a discussion the other day about people thinking allergies are worse than celiac? And didn't most posters say either that celiac was worse because the suffering lasted longer, or think it was insulting for someone to try to "one up" us?


So why is it OK for someone with allergic people in the household to post a sign, but not someone with a one-year-old whom the OP said WOULD pop anything in her mouth, to post a sign?




I think everyone is different, and if someone wants to post a sign, they should do it.

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