Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


bartfull

Member Since 08 Jun 2011
Offline Last Active Today, 04:20 PM
*****

#893848 Silent Celiac: Newbie Question

Posted by bartfull on 30 October 2013 - 10:31 AM

OK, first of all, if you get C, you are not "silent". Not all celiacs have D. A lot of them get C instead.

 

So the products you had said "may contain wheat", and not "made in a facility that processes wheat"? I ask because there is a big difference. If something says "...facility..." I don't worry so much. If it says "Made on EQUIPMENT that also processes wheat", I usually pass on it because I don't trust the employees to thoroughly clean that equipment. If it said, "May contain wheat", I would put it back on the shelf.

 

You just have to get into the habit of reading every label, every time. We ALL made mistakes in the beginning. I now keep a small magnifying glass in my purse for those labels in tiny print, and I read the labels, not only on anything new I may consider buying, but even on "old faithfuls" that I buy every week. Sometimes the ingredients change, and this prevents me from being caught.


  • 1


#893739 Amy's Mexican Casserole

Posted by bartfull on 29 October 2013 - 10:26 AM

If I'm not mistaken, quite a few folks here on the forum have had trouble with Amy's products. The health food store I go to sells Amy's pizza, and it is quite a bit cheaper than the Against the Grain pizza that they sell, but I always buy the Against the Grain because I won't take the chance with Amy's. (And besides, the Against the Grain is pretty darned tasty.+


  • 1


#892965 Could Your Retainer Be Preventing Healing? Yes.

Posted by bartfull on 21 October 2013 - 03:39 PM

I'm happy to hear this, not because I want anyone to be glutened by plastic, but because it validates my corn reaction to the corn-based plastics. I think some of the folks here doubted me when I said I had a bad reaction to a bottle of water, and then found out the plastic was made using corn. Even I thought that by the time the corn was made into plastic it shouldn't have any protein left in it. But I DID react, and the fact that this kid reacted to wheat in plastic is kind of comforting to me.


  • 1


#892369 Needing Help In Rehab

Posted by bartfull on 17 October 2013 - 07:50 AM

Tell that dietician she needs to write a book or paper that needs to be required reading for every health care facility in the country!


  • 1


#892208 gluten-free For 6 Years, Worse Than Ever. Help! New Person Here: )

Posted by bartfull on 16 October 2013 - 10:44 AM

Have you had your vitamin levels checked? It sounds like you might be deficient, especially seeing vitamin polls don't ahree with you. And BECAUSE they don't agree with you, I am suspecting corn. That is what most pills use as a filler.


  • 1


#891202 Gluten Challenge Question

Posted by bartfull on 08 October 2013 - 12:52 PM

According to this article, seizure disorder can indeed be associated with celiac. Print the entire article out and show it to your doctor.

http://www.ncbi.nlm....les/PMC2661192/


  • 1


#891093 Newbie Intro

Posted by bartfull on 07 October 2013 - 02:49 PM

You have come to the right place! What your doctor told you is true - up to a point. You DO run the risk of all sorts of nasty "complications" like cancer and lupus and other autoimmune diseases IF you don't stick to a gluten-free diet. And you MAY suffer fertility problems and miscarriages IF you don't stick to the gluten-free diet.

 

But the good news is, if you DO stick to the gluten-free diet, chances are you won't develop other problems, and chances are you can pump out as many children as you want. :o  :lol:

 

I'm glad you read the newbie thread. It's a great place to start. You truly do need to be careful about cross-contamination. It can all seem overwhelming at first, but honestly, there will come a time when you won't even think about it. You will likely go through a period of withdrawal -  and it is a very real, physical withdrawal. You may get headaches and mood swings and constant hunger for a couple of weeks. Then it will settle down.

 

You may also have a few meltdowns at the grocery store. That's when you come here and cry on our shoulders. Between all of us here, we have MILES of shoulders and we're more than glad to comfort you. But there really are SO many foods that are gluten-free naturally - meats, fresh veggies, fresh fruit, rice, potatoes, sweet potatoes, even most potato chips and ice creams. And even though it's best not to go hog wild buying gluten-free substitutes at first, when it comes time for bread, there are some really good ones out there such as Udi's and CANYON BAKEHOUSE. Yeah, they're expensive, but that'll keep you from overdoing it - they are really fattening and have hardly any nutrition. But they make a nice treat when you just feel like having a sandwich.

 

So please, DO go COMPLETELY gluten-free, and please, lean on us here. We're all in the same boat, and those of us who have been at it for a while are living better lives than we ever have. We eat healthier, we feel better, and we are happier, with more energy and MUCH more positive outlooks than we had before.

 

You're going to be fine. Better than fine. And you will live a normal life with children and whatever else you want because you will have the good health with which to pursue these things. :)


  • 1


#890148 Reactions To Non-Gluten Food

Posted by bartfull on 29 September 2013 - 11:02 AM

I have a hard time buying that too.  I guess if you have been suffering all sorts of symptoms, and then get rid of the gluten symptoms you could have the symptoms from your other food intolerances remaining.    But, why would you all of a sudden have much more severe symptoms to another food when you eliminate gluten?  Why would you be able to eat that food when you grow it yourself, but not when you get it from the grocery store?  That makes no sense to me.  In my mind it makes cross contamination the more likely culprit.

Steph, I don't know WHY, but it happened to me. I had mild digestive symptoms and bad psoriasis. When I first went gluten-free, all I ate was whole foods - meat, potatoes, veggies and fruit. My gut symptoms were gone and the psoriasis almost completely healed after YEARS of having it. Then after a few weeks I made some gluten-free cornbread and BAM!! Sick, and the worst psoriasis flare I had ever had. I couldn't even walk! Couldn't pick anything up because just bending my fingers was excruciating. I ditched the corn and it healed again. Now if I get any corn by accident I get sicker than I do with gluten.

 

Before going gluten-free I ate corn several times a week. My psoriasis never flared as badly as it did after going gluten-free. I have no idea why, but at this point it doesn't matter. I just know I'll never eat corn again. Maybe at some point I could get it back, but I'm not even interested in trying it. It limits me so much, but that limit is good, because it keeps me off processed foods. I've never eaten such a healthy diet in my life. If all of a sudden they found a cure for celiac and corn intolerance, I'd STILL keep eating the way I am now. :)


  • 2


#890139 Do You Take Your Celiac Disease Seriously?

Posted by bartfull on 29 September 2013 - 10:16 AM

Oh, we always point people to valid sources that provide the information about celiac myths: Tricia Thompson, Shelly Case, U of C , etc.

as Karen mentioned...and you know what happens?  People argue loudly with us anyway. I cannot tell you how many times someone

has vehemently  told me she was glutened by any of the following: envelopes, stamps, dirty seats on the bus, books, steering wheels,

carpets, pillows, dog hair,semen, walking in the bread aisle, riding the subway, bananas, their next door neighbor who borrowed a rake,  eggs, the post office desk where she used the pen.... (and I am not making any of those up)

 

After awhile, we just say "okay" because they believe it is so and you cannot convince them otherwise.

I think it's very possible to get glutened by YOURSELF if you touch the dirty bus seat that a toddler with gluteny hands and lots of crumb spillage sat in, and then pop food into your mouth. But who in their right mind wouldn't WASH THEIR HANDS before eating after touching a dirty bus seat anyway? That's all it takes to keep from getting glutened, or to prevent illnesses from germs for that matter. WASH YOUR HANDS! :lol:


  • 1


#890024 Do You Take Your Celiac Disease Seriously?

Posted by bartfull on 28 September 2013 - 09:52 AM

Although I don't want to do damage to my gut for fear of cancer and lupus and all of the other horrible things that can happen to a celiac who eats gluten, I'll tell you a "secret". As a smoker, I have to admit that all of those long term scares don't always work. I KNOW smoking can cause horrible things too, but I haven't quit yet.

 

But if smoking could cause DH...

 

Yes, DH is my greatest fear. I have read enough and seen the pictures of those who suffer from it, and I know I too could be one bite of gluten away from having it myself. There is NO WAY I would EVER risk that! So when the long term scare tactics don't work on someone who is playing Russian roulet with their health, I think they should all be required to go to the DH section here and read every post, look at every picture. I'd be willing to bet quite a few of them would wise up and stay STRICTLY gluten-free.


  • 1


#889938 Afraid Things Getting Worse

Posted by bartfull on 27 September 2013 - 01:18 PM

I notice your sig line says gluten-free 5/12, but your post says 5/13. I'm assuming the 13 was a mistake and you have actually been gluten-free since your diagnosis in 2012?

 

But I also notice you also say, "Normally if I accidentally ingest gluten, which I do sometimes because I still don't think about things on accident or whatever the case may be, all symptoms back - headache, the runs, cramps, anxiety, irritable, swollen abdomen, for about 10 days and back to normal."

 

It sounds like you have been getting "accidentally" glutened on a regular basis. If that is the case, you are still doing damage and thus have not healed. Your symptoms will naturally get worse over time. I'm not saying that ALL your current symptoms are gluten related, but they might be. Once the doctors have cleared you of all these other possibilities, it's time to get strict with yourself so you don't keep suffering like this.


  • 1


#888402 Feel Lousy

Posted by bartfull on 14 September 2013 - 12:08 PM

Withdrawal is HARD! I didn't have many symptoms of celiac (or at least I didn't THINK I did until I went gluten-free and my insomnia went away, my brain fog cleared up, my feet stopped swelling, not to mention the psoriasis cleared up as well as my minor bathroom issues.) But during the first couple or three weeks of gluten-free, I felt HORRIBLE. I had a headache every day, I was weak and spacey and shaky, and had a general sense of being unwell.

 

Hang in with it, and you'll start feeling better soon.


  • 1


#888077 Kraft Cheez Whiz

Posted by bartfull on 11 September 2013 - 07:28 AM

Crazy -  I always considered that stuff in the "plastic cheese" category, and would never even consider buying it. But lately I have had a craving for plastic cheese! There is a burger joint locally that had the best tasting, greasy burgers with plastic cheese on them, and every once in a while I would stop there in the old days. Yesterday I wanted one (along with their greasy fries) for lunch. Of course I would never really do it, but I was dreaming!

 

I can't have Cheese Wiz even though it's gluten-free because of the corn intolerance, so please, enjoy some for me!


  • 1


#887185 Blood Test Positive...biopsy Negative.

Posted by bartfull on 04 September 2013 - 12:16 PM

If you've been gluten-free for 2 years you will test negative on the blood tests and the biopsy. Your doctor should KNOW that. And both of them should know that you CAN'T eat a little bread once in a while. They are both idiots, IMO!


  • 1


#886922 New To This! Post-Gluten Recovery Time And Fatigue

Posted by bartfull on 02 September 2013 - 03:21 PM

Your friend with "chronic fatigue" just might have celiac too. If you're really good friends, maybe you can ask her to try a gluten-free diet for a few weeks and see if she notices any improvement.


  • 1