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Member Since 08 Jun 2011
Online Last Active Today, 08:57 AM

#903275 Mother And Son Intolerant

Posted by on 20 January 2014 - 11:02 AM

Well, first of all, the gluten thing is not an allergy. If you have celiac, that is an autoimmune disease. And if you don't have celiac, but a sensitivity to gluten, that is called non-celiac gluten intolerance. The difference is that with celiac there is intestinal damage, and with NCGI, there isn't. It seems obvious to me based on your response to the diet that you have one or the other.


Also, be aware that celiac runs in families. You probably should both be tested. That would mean going back on gluten because the tests will show false negative if you aren't eating it. These are the tests you should ask for:


tTG IgA and tTG IgG



total serum IgA control test

AGA IgA and AGA IgG (older less reliable tests)


And it is not uncommon to see improvement so soon. It usually takes a long time (months, and in some cases, a couple of years) to see complete healing, but most people see enough improvement within days to let them know they are on the right track.

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#903271 Family Glutening Me In gluten-free Household

Posted by on 20 January 2014 - 10:49 AM

It sounds to me like your Dad is clueless about gluten, and your brother is actually "anti-gluten-free". With your brother's attitude, do you think it's possible he is deliberately sabotaging you? I agree with the others that the cap dropping on the floor shouldn't gluten you, but if your brother is annoyed by having to eat gluten-free in the house, maybe he is sneaking gluten into things just to try to get even?

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#902968 New Member- Intro

Posted by on 16 January 2014 - 04:08 PM

Hyperparathyroidism can be caused by low levels of calcium and vitamin D. Because you had celiac for a long time, you haven't been absorbing nutrients from your food the way you should. My Mom, who also had celiac had hyperparathyroidism and had surgery for it. After that she was OK. :)


But you should ask your doctor to test all your vitamin and mineral levels. You could quite possibly be low on others, especially B12.

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#902944 Gluten-Free Girl Scout Cookies - Horrible!

Posted by on 16 January 2014 - 01:25 PM

I just looked up Pamela's cookies and I didn't see a thin mint, but their double chocolate mini cookies are really good. I haven't tried all the flavors because a lot of them have corn (which I am intolerant to), but if the rest of their stuff is as good as these chocolate mini's, I bet you'll be delighted. Maybe you could make some sort of mint "dip" to use with them.


Or you could google gluten-free thin mint recipes and make your own.

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#902379 Was Better But Now Sicker Than Ever - Help!

Posted by on 11 January 2014 - 03:01 PM

Yes, it is the same stuff. (I know because I helped a friend texture his walls a while back). Even though the texture is wet when it is sprayed I am sure the dust got into the air when they were mixing it, and some even when they sprayed. I'm not saying that is the whole problem, but I'm sure if she was in the house when it was being done she would have been affected.

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#902353 Was Better But Now Sicker Than Ever - Help!

Posted by on 11 January 2014 - 01:27 PM

AHA! Sheet rock dust! And the compound they use! They all have gluten. If she breathed that in it would get in the back of her thoat and she would swallow it. If that is the case it would explain the elevated antbodies.

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#901225 Feeling Better But Still Not 100% Since Going gluten-free

Posted by on 02 January 2014 - 08:31 AM

There's no proof that there are no little green men on Mars, so should we all keep and "open mind" about that too? Or more to the point, should we tell people who are hearing voices in their heads that it just might be the little green men on Mars who are sending them messages? Don't you think it would be kinder and more productive if we sent them to a psychiatrist and got them on medication instead?


We need to be RESPONSIBLE. Telling people to consider something that has no scientific basis - NONE - is not being responsible, it is being reckless with OTHER PEOPLE'S health.


Rejecting this crackpot theory is not being narrow-minded, it is using common sense. This "theory" should NEVER even be suggested to newbies, any more than the little green men "theory" should be suggested to schizophrenics. It is cruel, it is dangerous, and it is wrong.

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#900990 Health And Beauty Aid Overhaul...

Posted by on 30 December 2013 - 12:00 PM

NYC (New York Color) lipstick is gluten-free and it is 2-3 dollars at Family Dollar. I'm sure you can also find it at other stores.

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#900539 One Advantage Of Celiac, No Need To Shave Legs

Posted by on 23 December 2013 - 01:09 PM

I'm 59. Now that I've FINALLY found some vitamins I can take, maybe it'll grow back, but if it doesn't I won't mind.

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#900531 One Advantage Of Celiac, No Need To Shave Legs

Posted by on 23 December 2013 - 12:09 PM

I used to have legs like a gorilla. Now I no longer have to shave them AT ALL.

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#899985 How Do You Deal With The "haters"?

Posted by on 17 December 2013 - 10:49 AM

I think it's a side effect of the "fad". There are so many people now who choose to eat "gluten-free" because they think it will make them lose weight or look cool or whatever it is that motivates them.


But back in the old days (1980's) when my Mom was diagnosed, she got the same reaction. I will NEVER forget that horrible woman at a potluck Mom and I attended who said to Mom, "What's the matter, our food isn't good enough for you?" When Mom tried to explain that she had celiac and that anything with wheat would make her really ill, the woman replied, "That's ridiculous!" I wanted to hit her. I mean I REALLY wanted to hit her.


I don't know what the answer is. I guess just keep in mind that there are people who are like that. No matter WHAT the issue is, some people will have a nasty attitude about it. Then come here and we will commiserate with you.

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#899893 Envelope Glue

Posted by on 16 December 2013 - 02:35 PM

Last week I went to the post office to get a money order to buy a guitar. I had the envelope already addressed and stamped so all I had to do was drop the money order in it and stick it in the mail. I looked around for a sponge like they used to have at post offices and there was none. A lady in line asked what was wrong. I told her I was "allergic to corn" and that the envelope glue was made from it.


She licked it for me. :)

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#899273 Pissed Off

Posted by on 11 December 2013 - 03:29 PM

Your most likely are NOT allergic to gluten, You are INTOLERANT to it. An allergic reaction usually involves breathing. An intolerance, sensitivity, or out an out celiac involves your digestions (and a WHOLE lot of other symptoms). Some of us either don't have major digestive symptoms, or we do along with skin rashes, brain fog, fatigue, headaches, and the list goes on and on.


When you say you are native, do you mean Native American? I am part Lakota, but I get my celiac disease from my Mom's (German) side.


Anyway, it sounds to me like you might well have either celiac, or what they call non-celiac gluten intolerance. The symptoms are the same for both although they claim that celiac is the only one that causes actual damage to your small intestine. Either way, a gluten-free diet is the only way to put those symptoms to an end.

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#899250 My Son Needs Help.....

Posted by on 11 December 2013 - 12:51 PM

Poor kid!


First of all, depression is one of the many symptoms of celiac. And on top of that, because he isn't absorbing things, he's not getting the full benefit of his meds. As he starts to heal not only will the meds work better, but he may find that he doesn't need them at all. Seratonin is made in the small intestine, and his is damaged. As it heals he'll start making it and his mood will improve.


Now, for the diet. It is a VERY hard adjustment for adults to make, but for a depressed teenager it has got to be worse. I think every one of us here had meltdowns at first. So let him have his period of mourning/anger/distress.


But he HAS to eat! Find him some good gluten-free bread. Udi's is good, and Canyon Bakehouse is even better. There are also good gluten-free pizzas on the market. I like Against The Grain. It'll be different from what he's used to, but after a while he'll start to like it. If he doesn't like fruits and veggies (neither do I), maybe you can chop them really finely and mix them into other foods. For instance, you can buy gluten-free pasta and put some finely chopped broccoli into the sauce.


You can get gluten-free pie crust and make him a sweet potato pie - tastes like pumpkin pie but with lots more nutrition. Some gluten-free cookies are pretty bad, but if he likes chocolate, get him some Udi's Double Chocolate muffins. They are beyond good! I mean, they are more delicious than any gluten chocolate cake type thing I've ever had. And if you could get him to try some of those crackers I know he'd be pleasantly surprised. Crackers are easy to make gluten-free and delicious at the same time.


Also, if you go to the breakfast/lunch/dinner threads here you will find recipes posted for just about anything you can imagine.


AND! He can still eat ice cream and potato chips. A healthier snack would be nuts. I buy the giant economy size can of Planter's (a brand that is safe) cashews because I eat a LOT of them.


Have you been to the Newbie 101 page yet? It's in the coping section here, and it will give you lots of tips on keeping him safe from cross-contamination.


So yeah, give him time, give him some of his favorite snacks that are already gluten-free, sneak some veggies in when you can, and watch his depression lift.


And give him a (((((HUG))))) from me.

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#898599 Amazing Lectures At The Gluten Summit

Posted by on 07 December 2013 - 10:47 AM

I wonder what trolls eat.

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