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Member Since 08 Jun 2011
Offline Last Active Yesterday, 03:41 PM

#873071 Another Symptom I Didn't Know I Had

Posted by bartfull on 06 June 2013 - 03:12 PM

I just read on another thread that someone smelled amonia sometimes. Well that made me realize that it's been a long time since I smelled automotive exhaust fumes when there really weren't any. Some days were worse than others. I would be here at the shop and it smelled to me as if someone had parked a running car in here. I would go looking and sniffing for the source. Other folks would come in and swear they didn't smell anything.


On really bad days I would go home and smell the same thing there! Sometimes it would go on for three or four days. I smelled it constantly, so strongly that I thought I might be entering early stage Alzheimer's. (I know that phantom smells are one of the symptoms of that.) Then weeks would pass before it would happen again. Winter, summer, it didn't matter.


I had forgotten all about it because I haven't had it happen in so long now. I'm thinking it was another of those celiac symptoms that I didn't know was a symptom.


Anybody else ever have anything like that before going gluten-free?

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#873044 Can Anyone Help Me Get Together A Shopping List?

Posted by bartfull on 06 June 2013 - 12:55 PM

First of all, have you read the Newbie 101 thread? That will help you to avoid cross-contamination, plus a lot of other things. :)


Whole foods are gluten-free. Chicken, beef, pork, fish (as long as they aren't "processed". Potatoes, sweet potatoes, fruits and veggies. Rice. Spices (but not all seasoning mixes). If you must buy processed foods such as salad dressings, look for Kraft. They label everything for gluten. ALL companies in the US have to label for wheat, but they don't for barley (or rye). Kraft does this voluntarily. I believe Con Agra still does this too, and some other companies.


It's best not to go whole hog on gluten-free substitutes at first. There are some pretty good gluten-free breads out there such as Udi's and Canyon Bakehouse, but they don't vitamin fortify their breads so you are essentially getting nothing but taste and empty calories with them. A lot of folks here make their own breads and baked goods out of various mixes of gluten-free flours. Check out the recipe section here and also the What's for Breakfast/Lunch/Dinner threads for more ideas.


Keep in mind that you will have ups and downs. When you are first starting you will probably go through withdrawal for a couple or three weeks and feel lousy - headaches, moodiness, and constant hunger. That's normal. You also might find yourself getting glutening symptoms after eating something that shouldn't by rights bother you at all. (Plain baked sweet potatoes gave me almost instant D at first! Salads did too.) After a few months you will settle down and be able to eat without fear.


Read as much as you can here and you will see that everyone is different. Although you MAY develop intolerances to other foods such as soy, dairy, corn, or nightshades, not everyone does, and some who do manage to get them back with time.


Ask as many questions as come to mind and know that there is SOMEONE here who will most likely have a good answer for you.


Welcome, and I hope you feel better soon!

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#872197 Okay Curious Anyone Feel Sicker In The Summer

Posted by bartfull on 02 June 2013 - 12:34 PM

Humidity used to make me feel weak and shaky and sick. I don't think it was celiac related because I never had bad digestive symptoms from celiac anyway. But sometimes on a really humid day I would be so sick to my stomach I had to go home from work and kneel before the "porceline god".


Now that I live here in the West, I never have that problem, although I think it's funny - when I lived on the East Coast, if I could get my A/C to bring the humidity down to 40%, I felt so good. Now here, if it gets UP to 40% I complain that it is muggy!

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#872054 But It's Not Gluten-Free!

Posted by bartfull on 01 June 2013 - 02:05 PM

The tourist, a confirmed and experienced celiac, was from Denver. I guess in Denver people are a lot more celiac-aware and if something is marked gluten-free, you can count on it BEING gluten-free. But one of these bakers at the market is the same lady I called a few months ago when a friend picked up a "gluten-free" muffin for me. I wasn't about to eat it until I knew how it was made. I explained CC to this baker in detail and told her (nicely) that if a celiac ate her wares, they would get sick. She's STILL hawking this stuff! Ticks me off to no end. KIDS might buy this stuff!


I think there should be a law. If someone made something they declared peanut-free when it really wasn't, they'd get sued at the very least, and probably arrested for endangerment or something. Why do people think celiac isn't to be taken seriously?!

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#871435 Thoughts On Hoda

Posted by bartfull on 29 May 2013 - 11:43 AM

Anyone remember the old make the high school girls carry around a ten pound bag of flour or sugar for a day to get the message across that teenage pregnancy aint as cute as it looks???


I propose all journalists that wish to discuss food allergies and or any "gluten people" :ph34r: issue MUST order and eat completely gluten free / nut free in every every restaurant they visit for one full month :D


Oh...anyone know if those little handy dandy gluten test stripes are available for them to purchase to prove each meal they eat contains no cross-contamination????

AND, if they DO eat anything containing gluten, they must drink an Ex-Lax milkshake every time!!

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#871226 My Only Celiac Friend Started Eating Gluten Again, And I Feel Alone.

Posted by bartfull on 28 May 2013 - 03:23 PM

I understand how you feel. I have a friend who helped me when I was new to this. She is diabetic as well as having celiac, suffers from diabetic retinopathy (she's nearly blind), she has DH, and she just broke her foot and didn't even know it because she couldn't feel it - neuropathy I guess, whether from the celiac or the diabetes, I don't know.


She started eating gluten again at Christmastime. Her DH is out of control, she is so bloated she looks pregnant, and I know the gluten is making her diabetes worse too. But she said she just doesn't have the willpower to get back on her diet.


There is not a thing I can do except pray for her.

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#871170 The New Celiac Drug Is Out There

Posted by bartfull on 28 May 2013 - 12:02 PM

I guess it's because I am such a lousy cook that I can't be fussy, but when I realized I couldn't eat "regular" bread anymore, I went right out and bought some Udi's multi-grain and I really liked it because to me it tasted like french bread. The following week I bought the Canyon Bakehouse San Juan and loved it even more because it tastes like those multi-grain breads in the grocery store with all the nutty little bits in them. Also, the texture is the same as those breads - not dry or crumbly at all. Like I said, my non-gluten-free friends like it better than regular bread too.


I think it's normal to have some anger at first. I did! I was angry and sad and when I tried EnerG bread (the first one I tried), I thought it was the end of the world! After I threw that away and tried the other brands, I was OK with it - at least the bread part.


But honestly, when the folks here tell you you will adjust, it is not only NOT condecending, and it is not only an attempt to give encouragment, but it is simply the TRUTH. If I found out today that I didn't have celiac after all, I would still never go back to eating the way I used to. Honestly. I used to eat JUNK, and now I eat healthy foods. I feel better for it, and I would never ever go back to the "dark side". :)

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#870468 The New Celiac Drug Is Out There

Posted by bartfull on 24 May 2013 - 07:56 AM

ABQ, you're new here so I assume you're fairly new to gluten-free. After a while you won't miss bread at all because if you try some Canyon Bakehouse San Juan 7-grain, you'll see that it tastes BETTER than regular bread. Even my gluten eating friends agree. And if you learn to bake, you can make great tasting breads. (I admit, I have never done it, but I trust the word of others here who have.)


Out for an evening? I bring my own. Travel? There are grocery and health food stores just about everywhere. I bring a George Foreman grill and cook for myself.


I'm not trying to be critical, but I just don't trust drugs. They ALL have side effects, and the drug companies and FDA seem to be using us as guinea pigs when it comes to new drugs. Vioxx was supposed to be so wonderful until they found out it was killing people. Same with Celebrex. And what's the name of that drug Sally Field advertised? It was supposed to prevent osteoporosis, but then they found out that it was causing really nasty long breaks in women's thigh bones. The list goes on and on.


It's an individual choice, but for me, the only drug I take or ever want to take is Tylenol. Even with that, I try to go easy because it can cause liver damage.


Oh yeah, did I mention I am a bit paranoid? BUT - am I paranoid ENOUGH? :lol:

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#870189 The New Celiac Drug Is Out There

Posted by bartfull on 22 May 2013 - 04:28 PM

I'll pass. Why should I take a drug that will cost me money, force me to see a doctor, probably give me side effects, and may even cause real harm (anybody remember the hormone replacement therapy all the doctors wanted us on?), when I can stick to a gluten-free diet for free and with no harmful effects?

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#869196 Mushroom (Neroli) Memorial Thread

Posted by bartfull on 16 May 2013 - 03:53 PM

Oh my. I'm shocked and heartbroken. When I first came here it was Mushroom, Irish, and Skylark who reached out to me with their knowledge and their compassion. I haven't seen Skylark here in a long time either and I'm almost afraid to ask...


Mushroom, I know you have a special place in Heaven. People as kind and giving as you are so rare in this world.


To her family, I thank you for sharing her with us, and you will all be in my prayers.

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#868696 Support Forum Is It?

Posted by bartfull on 14 May 2013 - 12:40 PM

I must have missed the posts you are talking about, but if I said something to offend you, I apologize.


I like to keep in mind that when I have been glutened (or corned), I get incredibly grumpy. If someone here is having a grumpy day, I just figure it must be something they ate. :P

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#866693 Multiple Intolerances And Restaurants?

Posted by bartfull on 03 May 2013 - 03:16 PM

I can't eat most fruit because of my salicylate sensitivity. All I can safely eat are bananas and pears, but the produce here is atrocious. I just don't waste my money on it anymore. The only medication I take is tylenol and I have to have it compounded. For a while there I had gotten to the point where I could tolerate corn starch so I was able to take regular tylenol and even eat Udi's bread.


But I got glutened a few months ago and it knocked me back to square one. I'm hoping that in a few months I will be able to eat Udi's again, and if I'm successful with that, I might give nightshades another try.

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#866678 Multiple Intolerances And Restaurants?

Posted by bartfull on 03 May 2013 - 01:54 PM

It would depend on one's sensitivity, I would think. Most of the corn websites deal with true allergies but there are quite a few members with intolerances like ours. As for me, I am MUCH more sensitive to corn than I am to gluten. I won't touch iodized salt. I have some Morton salt here at the shop which is non-iodized, and I have some sea salt at home that may have a bit of trace iodine but nothing added. I must admit though, I hardly ever even use salt anymore. I used to like it on bananas but I have given up on buying bananas here. They rot before they turn yellow. :angry:

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#866652 Multiple Intolerances And Restaurants?

Posted by bartfull on 03 May 2013 - 12:27 PM

Actually, iodized salt DOES contain corn. Every website dealing with corn allergies says so. Corn is the carrier for the iodine. If they just put iodine in it without a carrier, only parts of the salt would get it. I believe they use corn starch because it also works as an anti-clumping agent.


Here is just one website that shows iodized salt as an allergen: http://www.cornaller...lergen-list.php


As for restaurants, I don't go to them unless I absolutely have to. When I do, I order steak cooked on the charbroiler and ask them to use a clean fork or spatula. I don't get any sides because the chance of CC is too great. I usually bring my own side orders and pay full price for the steak.

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#866243 Obviously A Gluten Issue

Posted by bartfull on 01 May 2013 - 02:11 PM

Ksee, quite a few of us noticed a marked improvement within days. And quite a few who did slid back into strong symptoms after that. In my case, I developed new intolerances (soy, corn, and salicylates). Others just experienced lots of ups and downs as they healed. So if you find that you start feeling sick again, don't think it's because gluten WASN'T your problem. Stick with it and you will see LASTING results.


As for your doctor, if he is that contentious, I would find a new one. Either that or explain to him that he is working for YOU, not the other way around, and if you want to be tested for celiac, he should just do the test.

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