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Member Since 08 Jun 2011
Offline Last Active Today, 03:47 PM

#895880 DH Photo Bank

Posted by on 14 November 2013 - 11:02 AM

I don't have DH, but the pictures look like it (to me). Actually, what I'm doing here is posting to bring this thread back to the top so that some of our DH victims will see it and respond. I hope you get some answers soon. (((((HUGS)))))) to you and your little one.

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#895455 Amazing Conversations

Posted by on 11 November 2013 - 12:42 PM

Off the top of my head, the sweetest words I've heard re celiac disease were, "Come anyway!" when friends were having a dinner or going out. They know I can't eat, but it's my company they want. :)

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#895125 Questions To Ask The Gi Doc, Especially About Possibility Of It Not Being Cel...

Posted by on 07 November 2013 - 12:28 PM

None of my business, but some of those crappy diseases you fear may be brought on by untreated celiac. Did you know that certain cancers, thyroid problems, lupus, diabetes, and a host of other autoimmune diseases are much more likely to hit an untreated celiac? If things like that run in your family, it might just be that undiagnosed celiac was the underlying cause.

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#894970 Dealing With Getting Glutened?

Posted by on 06 November 2013 - 12:02 PM

Whole foods. Only eat things you have prepared yourself and in your own kitchen. Eventually you will be able to add new things, but for now, keep it simple. Even though you've been at this since June, if you keep getting glutened, you're not healing. Be really strict for another six months or so, then SLOWLY start adding some gluten-free processed foods if you feel that you need them. Against the Grain, Udi's, and any Kraft products that don't list wheat, rye, or barley in their ingredients are safe.


Right now, because you haven't healed, you could easily get sick from eating non-gluten foods. When our guts are all torn up, just about anything can set us off. That's why I say, eat whole foods only for a while. Yeah, it'll be boring, but you can do it. Make big batches and put individual servings in the freezer so you can just microwave your lunch at work. Bring your own bowl and utensils, and make sure you cover it while microwaving it so you don't risk getting CC'd by something a co-worker mic'ed earlier.

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#894151 Sign For The Front Door...

Posted by on 01 November 2013 - 02:15 PM

Not trying to be contentious, HONESTLY I'm not, but didn't we just have a discussion the other day about people thinking allergies are worse than celiac? And didn't most posters say either that celiac was worse because the suffering lasted longer, or think it was insulting for someone to try to "one up" us?


So why is it OK for someone with allergic people in the household to post a sign, but not someone with a one-year-old whom the OP said WOULD pop anything in her mouth, to post a sign?




I think everyone is different, and if someone wants to post a sign, they should do it.

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#893848 Silent Celiac: Newbie Question

Posted by on 30 October 2013 - 10:31 AM

OK, first of all, if you get C, you are not "silent". Not all celiacs have D. A lot of them get C instead.


So the products you had said "may contain wheat", and not "made in a facility that processes wheat"? I ask because there is a big difference. If something says "...facility..." I don't worry so much. If it says "Made on EQUIPMENT that also processes wheat", I usually pass on it because I don't trust the employees to thoroughly clean that equipment. If it said, "May contain wheat", I would put it back on the shelf.


You just have to get into the habit of reading every label, every time. We ALL made mistakes in the beginning. I now keep a small magnifying glass in my purse for those labels in tiny print, and I read the labels, not only on anything new I may consider buying, but even on "old faithfuls" that I buy every week. Sometimes the ingredients change, and this prevents me from being caught.

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#893739 Amy's Mexican Casserole

Posted by on 29 October 2013 - 10:26 AM

If I'm not mistaken, quite a few folks here on the forum have had trouble with Amy's products. The health food store I go to sells Amy's pizza, and it is quite a bit cheaper than the Against the Grain pizza that they sell, but I always buy the Against the Grain because I won't take the chance with Amy's. (And besides, the Against the Grain is pretty darned tasty.+

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#892965 Could Your Retainer Be Preventing Healing? Yes.

Posted by on 21 October 2013 - 03:39 PM

I'm happy to hear this, not because I want anyone to be glutened by plastic, but because it validates my corn reaction to the corn-based plastics. I think some of the folks here doubted me when I said I had a bad reaction to a bottle of water, and then found out the plastic was made using corn. Even I thought that by the time the corn was made into plastic it shouldn't have any protein left in it. But I DID react, and the fact that this kid reacted to wheat in plastic is kind of comforting to me.

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#892369 Needing Help In Rehab

Posted by on 17 October 2013 - 07:50 AM

Tell that dietician she needs to write a book or paper that needs to be required reading for every health care facility in the country!

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#892208 gluten-free For 6 Years, Worse Than Ever. Help! New Person Here: )

Posted by on 16 October 2013 - 10:44 AM

Have you had your vitamin levels checked? It sounds like you might be deficient, especially seeing vitamin polls don't ahree with you. And BECAUSE they don't agree with you, I am suspecting corn. That is what most pills use as a filler.

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#891202 Gluten Challenge Question

Posted by on 08 October 2013 - 12:52 PM

According to this article, seizure disorder can indeed be associated with celiac. Print the entire article out and show it to your doctor.


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#891093 Newbie Intro

Posted by on 07 October 2013 - 02:49 PM

You have come to the right place! What your doctor told you is true - up to a point. You DO run the risk of all sorts of nasty "complications" like cancer and lupus and other autoimmune diseases IF you don't stick to a gluten-free diet. And you MAY suffer fertility problems and miscarriages IF you don't stick to the gluten-free diet.


But the good news is, if you DO stick to the gluten-free diet, chances are you won't develop other problems, and chances are you can pump out as many children as you want. :o  :lol:


I'm glad you read the newbie thread. It's a great place to start. You truly do need to be careful about cross-contamination. It can all seem overwhelming at first, but honestly, there will come a time when you won't even think about it. You will likely go through a period of withdrawal -  and it is a very real, physical withdrawal. You may get headaches and mood swings and constant hunger for a couple of weeks. Then it will settle down.


You may also have a few meltdowns at the grocery store. That's when you come here and cry on our shoulders. Between all of us here, we have MILES of shoulders and we're more than glad to comfort you. But there really are SO many foods that are gluten-free naturally - meats, fresh veggies, fresh fruit, rice, potatoes, sweet potatoes, even most potato chips and ice creams. And even though it's best not to go hog wild buying gluten-free substitutes at first, when it comes time for bread, there are some really good ones out there such as Udi's and CANYON BAKEHOUSE. Yeah, they're expensive, but that'll keep you from overdoing it - they are really fattening and have hardly any nutrition. But they make a nice treat when you just feel like having a sandwich.


So please, DO go COMPLETELY gluten-free, and please, lean on us here. We're all in the same boat, and those of us who have been at it for a while are living better lives than we ever have. We eat healthier, we feel better, and we are happier, with more energy and MUCH more positive outlooks than we had before.


You're going to be fine. Better than fine. And you will live a normal life with children and whatever else you want because you will have the good health with which to pursue these things. :)

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#890148 Reactions To Non-Gluten Food

Posted by on 29 September 2013 - 11:02 AM

I have a hard time buying that too.  I guess if you have been suffering all sorts of symptoms, and then get rid of the gluten symptoms you could have the symptoms from your other food intolerances remaining.    But, why would you all of a sudden have much more severe symptoms to another food when you eliminate gluten?  Why would you be able to eat that food when you grow it yourself, but not when you get it from the grocery store?  That makes no sense to me.  In my mind it makes cross contamination the more likely culprit.

Steph, I don't know WHY, but it happened to me. I had mild digestive symptoms and bad psoriasis. When I first went gluten-free, all I ate was whole foods - meat, potatoes, veggies and fruit. My gut symptoms were gone and the psoriasis almost completely healed after YEARS of having it. Then after a few weeks I made some gluten-free cornbread and BAM!! Sick, and the worst psoriasis flare I had ever had. I couldn't even walk! Couldn't pick anything up because just bending my fingers was excruciating. I ditched the corn and it healed again. Now if I get any corn by accident I get sicker than I do with gluten.


Before going gluten-free I ate corn several times a week. My psoriasis never flared as badly as it did after going gluten-free. I have no idea why, but at this point it doesn't matter. I just know I'll never eat corn again. Maybe at some point I could get it back, but I'm not even interested in trying it. It limits me so much, but that limit is good, because it keeps me off processed foods. I've never eaten such a healthy diet in my life. If all of a sudden they found a cure for celiac and corn intolerance, I'd STILL keep eating the way I am now. :)

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#890139 Do You Take Your Celiac Disease Seriously?

Posted by on 29 September 2013 - 10:16 AM

Oh, we always point people to valid sources that provide the information about celiac myths: Tricia Thompson, Shelly Case, U of C , etc.

as Karen mentioned...and you know what happens?  People argue loudly with us anyway. I cannot tell you how many times someone

has vehemently  told me she was glutened by any of the following: envelopes, stamps, dirty seats on the bus, books, steering wheels,

carpets, pillows, dog hair,semen, walking in the bread aisle, riding the subway, bananas, their next door neighbor who borrowed a rake,  eggs, the post office desk where she used the pen.... (and I am not making any of those up)


After awhile, we just say "okay" because they believe it is so and you cannot convince them otherwise.

I think it's very possible to get glutened by YOURSELF if you touch the dirty bus seat that a toddler with gluteny hands and lots of crumb spillage sat in, and then pop food into your mouth. But who in their right mind wouldn't WASH THEIR HANDS before eating after touching a dirty bus seat anyway? That's all it takes to keep from getting glutened, or to prevent illnesses from germs for that matter. WASH YOUR HANDS! :lol:

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#890024 Do You Take Your Celiac Disease Seriously?

Posted by on 28 September 2013 - 09:52 AM

Although I don't want to do damage to my gut for fear of cancer and lupus and all of the other horrible things that can happen to a celiac who eats gluten, I'll tell you a "secret". As a smoker, I have to admit that all of those long term scares don't always work. I KNOW smoking can cause horrible things too, but I haven't quit yet.


But if smoking could cause DH...


Yes, DH is my greatest fear. I have read enough and seen the pictures of those who suffer from it, and I know I too could be one bite of gluten away from having it myself. There is NO WAY I would EVER risk that! So when the long term scare tactics don't work on someone who is playing Russian roulet with their health, I think they should all be required to go to the DH section here and read every post, look at every picture. I'd be willing to bet quite a few of them would wise up and stay STRICTLY gluten-free.

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