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Member Since 08 Jun 2011
Offline Last Active Yesterday, 04:23 PM

#885620 Horrible Relapse After More Than 3 Years

Posted by bartfull on 24 August 2013 - 01:54 PM

I think eating just fruits, veggies, and apple juice might be prolonging the problem. Those will give anyone D if that's all they are eating. Get some chicken or turkey and eat that. Maybe some potatoes.

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#884447 Second Guessing Diagnosis

Posted by bartfull on 15 August 2013 - 11:30 AM

Also, make sure they do at least EIGHT samples when they do your biopsy. Some "Doctors" only do two or three, and as the damage is often spotty, they miss the damaged parts.

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#884333 Kind Of A Silly Question But Do Children Need Gluten Foods?

Posted by bartfull on 14 August 2013 - 01:11 PM

Not at all! If you feed them the same nutritious foods that you eat they will be fine. The only thing I know of that is truly nutritious about gluten is the bread because it is vitamin fortified. If you give your kids a good multi-vitamin, they will get everything they need and avoid a lot of garbage they DON'T need. Most of the processed gluten foods are full of chemical preservatives, colors, and flavorings. That's not to say there isn't some of that same garbage in some of the gluten-free processed foods, but if you stick to mostly whole foods and do your own baking you will have more control and better tasting food.

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#883926 Terrified

Posted by bartfull on 12 August 2013 - 07:36 AM

OK, take a deep breath. Relax. It's going to be OK.


You need to read the Newbie 101 thread. It will explain a lot. You need to have all your own condiments - things that a knife or spoon might double dip in such as mayo, mustard, butter. You need to have your own toaster. You need to stop using any wooden spoons, cutting boards, scratched teflon or plastic containers and get your own. You can mark them. It's easiest if you have your own cabinet to keep your stuff in.


Sponges can retain gluten so it's a good idea to have your own. The drying rack should be no problem because the dishes are clean. It wouldn't hurt to have your own section of coutertop to prepare your food on, but if that's not possible, just make sure you wash the area well before using it. As for doorknobs and light switches, all you need to do is wash your hands before eating or preparing food. That's a good practice for anyone, gluten-free or not, to prevent colds or other illnesses.


Some processed foods are truly safe for us if we learn to read labels. Kraft for example, will always put the source of any of their ingredients - you might see something like, "malt (from barley)" on their labels. If you do, you know it's not safe. The law in the US is that ANYTHING that contains wheat must be labeled, and hardly anything uses rye, so barley is the one you have to watch out for.


It's a good idea though when you first start to stay away from processed foods, not because they are dangerous per say, but because simple plain whole foods - meat, veggies, fruit, are easier for a healing gut to handle. Once you are feeling better, there are lots of gluten-free foods you can find in health food stores and in some grocery stores. Udi's makes good bread and desserts. Against the Grain makes a great frozen pizza and breads. Canyon Bakehouse makes my favorite bread of all. There are cookies and Lara Bars (they come in all different flavors and are similar to granola bars or in some cases, cookies). And of course there is rice, there are gluten-free pastas, tortillas, and TONS of other foods that are safe.


You need to talk to your family and get them on board. If THEY are careful with their gluten foods, YOU will be that much safer from CC. They should also be tested because celiac runs in families.


Make sure you check any medications or supplements you are taking to see if they are gluten-free.


Have I left anything out? Probably, but there will be other folks coming along with more helpful tips. In the meantime, welcome to the board. Ask lots of questions and don't hesitate to rant or cry on our shoulders. We have all been there. But rest assured that it does get easier - to the point that it becomes second nature. Every one of us "old timers" have been scared and sad and angry at the beginning. Now we're easy going, happy and HEALTHY. You will be too. :)

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#883753 Gluten Free For A Week, All Symptoms Gone! Possible?

Posted by bartfull on 11 August 2013 - 08:55 AM

Somewhere on this forum is an early post I made stating that after a couple of weeks I felt better than I had since I was a kid. I hope this continues for you but I want to warn you that you may start feeling lousy again in a little while. Many of us do. For some of us, other intolerances rasie their ugly heads. For some, other AI conditions that were being masked by celiac raise their ugly heads. It's almost like that week or two of feeling wonderful is a sign that it IS possible, but it might take a while to get back there.


That being said, not all of us have these further problems. I sincerely hope you are one of those who feel great again permanently. But if not, don't give up hope. It might take a little longer to get back to the point you're at now, but you WILL. For now, try to stick to whole foods and skip the gluten-free replacements for a while. Take a good probiotic and some vitamins. It MIGHT not hurt to start a food diary so if you DO go downhill again for a while, you'll be able to single out which food is getting you. Dairy, soy, corn, and nightshades are problematic for some of us. BUT!!! Not ALL of us! You might be one of the lucky ones.


Also, read the Newbie 101 thread. It'll help you to ferret out the places gluten can hide and prevent you from getting cross-contaminated.

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#883655 Sad, Frustrated, Need Support

Posted by bartfull on 10 August 2013 - 04:13 PM

I'm so sorry your family is being unsupportive. I hear a lot of that here on this forum and it ticks me off to no end.


If you are still "making gluteny food" for your family it sounds to me like you are probably getting cross-contaminated. If you are using the same butter for your kid's sandwich and then using that butter yourself it is almost SURE that you are getting contaminated. You need your own butter, mayo, etc. Even if the knife looks clean, after it has touched bread it will contaminate the whole stick/tub/jar.


So, assuming you are getting glutened (and I would put good money on it that you are), you are now finding out one of the nasty facts of celiac disease - that the longer you stay away from gluten, the sicker it will make you when you do have it. It happened to me. My digestive symptoms were so mild I didn't know I had it. After being gluten-free for about a year I got contaminated by someone's cookie crumb. I was nauseous almost but not quite to the point of throwing up. I was so fatigued I just wanted to lie in bed for days. And I had bathroom issues for days.


Have you read the Newbie 101 thread? If not, get over there and read it right away.


You should probably stick to while foods right now - things like meat and vegetables and fruit. gluten-free foods that are commercially prepared, like breads and cookies are full of calories and have no nutrition. And a lot if not most of them have just as much ohter garbage in them as regular junk food. If there are more than five ingredients in anything I just put it back. Just yesterday I was looking at a gluten-free item in my local health food store and it had all kinds of artificial color and preservatives. Maybe someone like me who has been gluten-free for over two years now could handle that, but you are still healing. You need to treat your digestive system gently.


You may also have a lot of vitamin deficiencies. Unfortunately doctors who even get it at all and manage to give a diagnosis, often just tell their patients to stop eating gluten and send them on their way. If you have had celiac for a while you haven't been absorbing the nutrients from your food and most likely DO have deficiencies. Those too can lead to the symptoms you describe.


It can be overwhelming at first, especially when it seems that the ones who are supposed to love you are against you. I can't fix that part (unless you send her here so I can slap some sense into her :lol: ) but I can tell you that you have found the best support group anywhere, right here. We will answer any questions you have about the diet, what tests to ask your doctor for, which foods are best, and just about anything else that comes to mind. And if you need a shoulder to cry on or something to kick when you get frustrated, we're here for that too. ((((HUGS))))) to you.

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#883399 Significant Other To Celiac

Posted by bartfull on 07 August 2013 - 01:00 PM

No, Hon, I have not given you "attitude". What I have done is respond to your post honestly. You even went back and edited your original post because you knew that saying he was making your relationship "boring" and that you "couldn't take it" sounded bad. If you look around here at different threads you will find that many of us have had problems with family and friends and spouses who couldn't deal with our illnesses. A lot of us have been hurt by people who supposedly love us, so if I jumped on you, that is why.


I don't think there is anyone here who worries about packaging giving us CC. We wash our hands when we cook and we wash our hands before we eat, but other than spilled flour on the checkout counter, I don't think packaging is a big problem. People's gluteny hands touch doorknobs and other surfaces too. We just always wash our hands before putting anything in our mouths. Cleaning with vinnegar though is not any better than just using soap and water. I don't like harsh chemicals so I clean with Dawn dishwashing liquid and water. It does a good job.

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#882861 Anyone Suffered Or Suffer From Asthma/shortness Of Breathe?

Posted by bartfull on 04 August 2013 - 10:48 AM

Envelope adhesive MAY however, contain corn. So any of you who have a corn intolerance or allergy should continue to use water instead of licking them.

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#882189 Can't Buy Good Produce

Posted by bartfull on 31 July 2013 - 02:20 PM

There IS a farmer's market but they only hold it once a month. Some friends have gardens and have promised me some squash soon. I COULD put in a garden if I had time and money. I put in so many hours at my business I don't have much time to weed a garden, and because there are so many deer in town I would have to put up a six foot fence around it. I had thought about buying one of those dog kennel thingys and trying that. Maybe next year.


The sprouts are a great idea! I never even thought about them but I love sprouts. Thanks for reminding me!


As much as I complain about the food though, I'll never move from here. I moved here 9 years ago from Connecticut because the first time I came through here I KNEW it was where I belonged. And I honestly am happier than I've ever been. I'm surrounded by the most beautiful scenery in the country (IMO - and I have been all OVER this country.) There is no traffic to fight, nobody locks their doors here because the worst crime is an occasional drunk driver or domestic dispute, the people are WONDERFUL, and I love running my business.


Even my house - when I saw the wrap around porch I was in love, but when I walked in I noticed the carpeting in the living room was the same as my Mom (who had passed away 8 months previously) had in hers. Then I walked into the master bedroom - same WALLPAPER Mom had! THEN I saw the kitchen - same linoleum! It was like Mom was telling me, "Buy this house." And the kicker was, there's a MAPLE tree in my front yard. Maple trees are RARE out here.


Yep, this is my home, rotten produce and all. :D

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#882129 How About A Reward For Avoiding Getting Glutened!

Posted by bartfull on 31 July 2013 - 07:47 AM

I don't WANT no stinkin' kitchen gadget! I don't even LIKE to cook! I want...another new guitar?

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#881937 Cross-Contamination Question, How Safe To We Have To Be?

Posted by bartfull on 30 July 2013 - 09:55 AM

If you can find Planter's almonds you can safely eat them I believe. Planter's is one of the good companies that label for gluten AND label if there is gluten in the facility they were processed in. I eat their cashews every day.


You could also buy almonds in the shell.

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#881746 De-Glutening The Kitchen

Posted by bartfull on 29 July 2013 - 10:08 AM

"Basically, if it isn't made of glass or metal (is porous) then it is suspect."


Except for cast iron. Cast iron is is pourous so it must be replaced too.


As for the cutting boards, if you really want to sand them, make sure you sand them so deeply that ANY cuts are completely gone. Personally I would just buy new ones to use and leave the built-in ones for show. OR buy some of those new thin plastic ones to use on top of the old ones.

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#881730 You Can't Hurry It.

Posted by bartfull on 29 July 2013 - 09:21 AM

Lately I have seen a lot of posts from newbies looking for a way to go quickly. Some want to get past the withdrawal phase, some want to eliminate other foods that they may potentially have intolerances to, even though at first we can get sick from eating just about anything. Some are impatient and want to feel better immediately. Some want to start eating in restaurants right away even though the chance of CC is so much greater when we let others prepare our food. Some want to get back to feeling "normal" in a matter of days.  


It doesn't work that way. We need to eliminate gluten, wait for the withdrawal to pass, take probiotics and possibly digestive enzymes, and WAIT. After a while (perhaps three months or so), if we aren't feeling better, we need to do an elimination diet. Skin prick tests are not all that reliable and besides, they are for ALLERGIES, not intolerances. As far as I know, there ARE no tests for intolerances.


An elimination diet seems to take forever, but what else do we have if not time? And an elimination diet WILL eventually ferret out our other problem foods if we have them. If we try to take shortcuts all we are doing is prolonging the agony and increasing the confusion.


It took us a long time to get as sick as we were and it will take a long time to heal. But if we're patient and keep in mind that we are on the right track we can celebrate every little positive, and give ourselves the time we need to truly get better.

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#881606 Candida Vs Gluten Intolerance

Posted by bartfull on 28 July 2013 - 01:40 PM

Give yourself a few months on the gluten-free diet before trying this. Most likely the gluten-free diet will clear up your problems, but if not you can try a candida diet later. By then you will have a clearer idea of which foods bother you (if any besides gluten), and you can tailor your diet to suit your needs and still get enough nutrition.

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#881417 Going Gluten-Free How Bad What Is At First?

Posted by bartfull on 27 July 2013 - 10:00 AM

I'm going to say this again:


You're giving up a lot of things at once - gluten, dairy, weed, and coffee. (COFFEE!!???) Your body is in withdrawal from all four of those things. It's to be expected that you feel lousy right now. PLUS, you have gotten glutened three times in the past month and this early into the diet as far as withdrawal goes, you are starting at square one each time. Just bear with it and give it some more time. If you can avoid getting glutened, by this time in August you should be feeling LOTS better. I know that sounds like a long time but you can handle anything for three or four weeks.


Trust me. :)


What you are suffering from is withdrawal, plain and simple. If you can get through the next three or four weeks without being glutened, you will be fine. If you keep looking for other reasons for your problems and cutting out other foods and thinking that getting glutened isn't doing THAT much harm, you are just going to prolong your suffering. Withdrawal is common - most of us have gone through EXACTLY what you are going through. After a few weeks we were fine and so will you be.

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