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bartfull

Member Since 08 Jun 2011
Online Last Active Today, 03:11 PM
*****

#883753 Gluten Free For A Week, All Symptoms Gone! Possible?

Posted by bartfull on 11 August 2013 - 08:55 AM

Somewhere on this forum is an early post I made stating that after a couple of weeks I felt better than I had since I was a kid. I hope this continues for you but I want to warn you that you may start feeling lousy again in a little while. Many of us do. For some of us, other intolerances rasie their ugly heads. For some, other AI conditions that were being masked by celiac raise their ugly heads. It's almost like that week or two of feeling wonderful is a sign that it IS possible, but it might take a while to get back there.

 

That being said, not all of us have these further problems. I sincerely hope you are one of those who feel great again permanently. But if not, don't give up hope. It might take a little longer to get back to the point you're at now, but you WILL. For now, try to stick to whole foods and skip the gluten-free replacements for a while. Take a good probiotic and some vitamins. It MIGHT not hurt to start a food diary so if you DO go downhill again for a while, you'll be able to single out which food is getting you. Dairy, soy, corn, and nightshades are problematic for some of us. BUT!!! Not ALL of us! You might be one of the lucky ones.

 

Also, read the Newbie 101 thread. It'll help you to ferret out the places gluten can hide and prevent you from getting cross-contaminated.


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#883655 Sad, Frustrated, Need Support

Posted by bartfull on 10 August 2013 - 04:13 PM

I'm so sorry your family is being unsupportive. I hear a lot of that here on this forum and it ticks me off to no end.

 

If you are still "making gluteny food" for your family it sounds to me like you are probably getting cross-contaminated. If you are using the same butter for your kid's sandwich and then using that butter yourself it is almost SURE that you are getting contaminated. You need your own butter, mayo, etc. Even if the knife looks clean, after it has touched bread it will contaminate the whole stick/tub/jar.

 

So, assuming you are getting glutened (and I would put good money on it that you are), you are now finding out one of the nasty facts of celiac disease - that the longer you stay away from gluten, the sicker it will make you when you do have it. It happened to me. My digestive symptoms were so mild I didn't know I had it. After being gluten-free for about a year I got contaminated by someone's cookie crumb. I was nauseous almost but not quite to the point of throwing up. I was so fatigued I just wanted to lie in bed for days. And I had bathroom issues for days.

 

Have you read the Newbie 101 thread? If not, get over there and read it right away.

 

You should probably stick to while foods right now - things like meat and vegetables and fruit. gluten-free foods that are commercially prepared, like breads and cookies are full of calories and have no nutrition. And a lot if not most of them have just as much ohter garbage in them as regular junk food. If there are more than five ingredients in anything I just put it back. Just yesterday I was looking at a gluten-free item in my local health food store and it had all kinds of artificial color and preservatives. Maybe someone like me who has been gluten-free for over two years now could handle that, but you are still healing. You need to treat your digestive system gently.

 

You may also have a lot of vitamin deficiencies. Unfortunately doctors who even get it at all and manage to give a diagnosis, often just tell their patients to stop eating gluten and send them on their way. If you have had celiac for a while you haven't been absorbing the nutrients from your food and most likely DO have deficiencies. Those too can lead to the symptoms you describe.

 

It can be overwhelming at first, especially when it seems that the ones who are supposed to love you are against you. I can't fix that part (unless you send her here so I can slap some sense into her :lol: ) but I can tell you that you have found the best support group anywhere, right here. We will answer any questions you have about the diet, what tests to ask your doctor for, which foods are best, and just about anything else that comes to mind. And if you need a shoulder to cry on or something to kick when you get frustrated, we're here for that too. ((((HUGS))))) to you.


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#883399 Significant Other To Celiac

Posted by bartfull on 07 August 2013 - 01:00 PM

No, Hon, I have not given you "attitude". What I have done is respond to your post honestly. You even went back and edited your original post because you knew that saying he was making your relationship "boring" and that you "couldn't take it" sounded bad. If you look around here at different threads you will find that many of us have had problems with family and friends and spouses who couldn't deal with our illnesses. A lot of us have been hurt by people who supposedly love us, so if I jumped on you, that is why.

 

I don't think there is anyone here who worries about packaging giving us CC. We wash our hands when we cook and we wash our hands before we eat, but other than spilled flour on the checkout counter, I don't think packaging is a big problem. People's gluteny hands touch doorknobs and other surfaces too. We just always wash our hands before putting anything in our mouths. Cleaning with vinnegar though is not any better than just using soap and water. I don't like harsh chemicals so I clean with Dawn dishwashing liquid and water. It does a good job.


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#882861 Anyone Suffered Or Suffer From Asthma/shortness Of Breathe?

Posted by bartfull on 04 August 2013 - 10:48 AM

Envelope adhesive MAY however, contain corn. So any of you who have a corn intolerance or allergy should continue to use water instead of licking them.


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#882189 Can't Buy Good Produce

Posted by bartfull on 31 July 2013 - 02:20 PM

There IS a farmer's market but they only hold it once a month. Some friends have gardens and have promised me some squash soon. I COULD put in a garden if I had time and money. I put in so many hours at my business I don't have much time to weed a garden, and because there are so many deer in town I would have to put up a six foot fence around it. I had thought about buying one of those dog kennel thingys and trying that. Maybe next year.

 

The sprouts are a great idea! I never even thought about them but I love sprouts. Thanks for reminding me!

 

As much as I complain about the food though, I'll never move from here. I moved here 9 years ago from Connecticut because the first time I came through here I KNEW it was where I belonged. And I honestly am happier than I've ever been. I'm surrounded by the most beautiful scenery in the country (IMO - and I have been all OVER this country.) There is no traffic to fight, nobody locks their doors here because the worst crime is an occasional drunk driver or domestic dispute, the people are WONDERFUL, and I love running my business.

 

Even my house - when I saw the wrap around porch I was in love, but when I walked in I noticed the carpeting in the living room was the same as my Mom (who had passed away 8 months previously) had in hers. Then I walked into the master bedroom - same WALLPAPER Mom had! THEN I saw the kitchen - same linoleum! It was like Mom was telling me, "Buy this house." And the kicker was, there's a MAPLE tree in my front yard. Maple trees are RARE out here.

 

Yep, this is my home, rotten produce and all. :D


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#882129 How About A Reward For Avoiding Getting Glutened!

Posted by bartfull on 31 July 2013 - 07:47 AM

I don't WANT no stinkin' kitchen gadget! I don't even LIKE to cook! I want...another new guitar?


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#881937 Cross-Contamination Question, How Safe To We Have To Be?

Posted by bartfull on 30 July 2013 - 09:55 AM

If you can find Planter's almonds you can safely eat them I believe. Planter's is one of the good companies that label for gluten AND label if there is gluten in the facility they were processed in. I eat their cashews every day.

 

You could also buy almonds in the shell.


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#881746 De-Glutening The Kitchen

Posted by bartfull on 29 July 2013 - 10:08 AM

"Basically, if it isn't made of glass or metal (is porous) then it is suspect."

 

Except for cast iron. Cast iron is is pourous so it must be replaced too.

 

As for the cutting boards, if you really want to sand them, make sure you sand them so deeply that ANY cuts are completely gone. Personally I would just buy new ones to use and leave the built-in ones for show. OR buy some of those new thin plastic ones to use on top of the old ones.


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#881730 You Can't Hurry It.

Posted by bartfull on 29 July 2013 - 09:21 AM

Lately I have seen a lot of posts from newbies looking for a way to go quickly. Some want to get past the withdrawal phase, some want to eliminate other foods that they may potentially have intolerances to, even though at first we can get sick from eating just about anything. Some are impatient and want to feel better immediately. Some want to start eating in restaurants right away even though the chance of CC is so much greater when we let others prepare our food. Some want to get back to feeling "normal" in a matter of days.  

 

It doesn't work that way. We need to eliminate gluten, wait for the withdrawal to pass, take probiotics and possibly digestive enzymes, and WAIT. After a while (perhaps three months or so), if we aren't feeling better, we need to do an elimination diet. Skin prick tests are not all that reliable and besides, they are for ALLERGIES, not intolerances. As far as I know, there ARE no tests for intolerances.

 

An elimination diet seems to take forever, but what else do we have if not time? And an elimination diet WILL eventually ferret out our other problem foods if we have them. If we try to take shortcuts all we are doing is prolonging the agony and increasing the confusion.

 

It took us a long time to get as sick as we were and it will take a long time to heal. But if we're patient and keep in mind that we are on the right track we can celebrate every little positive, and give ourselves the time we need to truly get better.


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#881606 Candida Vs Gluten Intolerance

Posted by bartfull on 28 July 2013 - 01:40 PM

Give yourself a few months on the gluten-free diet before trying this. Most likely the gluten-free diet will clear up your problems, but if not you can try a candida diet later. By then you will have a clearer idea of which foods bother you (if any besides gluten), and you can tailor your diet to suit your needs and still get enough nutrition.


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#881417 Going Gluten-Free How Bad What Is At First?

Posted by bartfull on 27 July 2013 - 10:00 AM

I'm going to say this again:

 

You're giving up a lot of things at once - gluten, dairy, weed, and coffee. (COFFEE!!???) Your body is in withdrawal from all four of those things. It's to be expected that you feel lousy right now. PLUS, you have gotten glutened three times in the past month and this early into the diet as far as withdrawal goes, you are starting at square one each time. Just bear with it and give it some more time. If you can avoid getting glutened, by this time in August you should be feeling LOTS better. I know that sounds like a long time but you can handle anything for three or four weeks.

 

Trust me. :)

 

What you are suffering from is withdrawal, plain and simple. If you can get through the next three or four weeks without being glutened, you will be fine. If you keep looking for other reasons for your problems and cutting out other foods and thinking that getting glutened isn't doing THAT much harm, you are just going to prolong your suffering. Withdrawal is common - most of us have gone through EXACTLY what you are going through. After a few weeks we were fine and so will you be.


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#881335 Going Gluten-Free How Bad What Is At First?

Posted by bartfull on 26 July 2013 - 04:34 PM

If gluten were just an irritant to your digestive system an occasional glutening wouldn't be that bad, but each time you get glutened it sets off an immune response. It's like the difference between sneezing from sniffing pepper and sneezing because you have a virus. The pepper irritates your sinuses and so does the virus, but the virus also makes your whole body sick. You may FEEL like the effects don't last more than a few hours, but it takes a lot longer than that for your immune system to go back to normal.


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#881315 Going Gluten-Free How Bad What Is At First?

Posted by bartfull on 26 July 2013 - 03:05 PM

You're giving up a lot of things at once - gluten, dairy, weed, and coffee. (COFFEE!!???) Your body is in withdrawal from all four of those things. It's to be expected that you feel lousy right now. PLUS, you have gotten glutened three times in the past month and this early into the diet as far as withdrawal goes, you are starting at square one each time. Just bear with it and give it some more time. If you can avoid getting glutened, by this time in August you should be feeling LOTS better. I know that sounds like a long time but you can handle anything for three or four weeks.

 

Trust me. :)


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#881239 Scared

Posted by bartfull on 26 July 2013 - 07:51 AM

That soy COULD be what is doing it. I can't tolerate even the slightest bit of soy. And just about ALL soy in the US is now GMO. Besides that, doesn't Ensure have a bunch of corn syrup in it?


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#880733 Scared

Posted by bartfull on 23 July 2013 - 10:12 AM

I just went back and read some of your previous posts so I could get an idea of what is going on with you. It seems you have been gluten-free for a couple of years now and you are sick again. I understand why you are worried, but maybe it's something as simple as a new intolerance you have developed. I'll be praying, crossing my fingers, and sending positive thoughts your way. (((((HUGS)))))


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