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Member Since 08 Jun 2011
Offline Last Active Yesterday, 04:13 PM

#938437 What Is Super Sensitive?

Posted by on 14 January 2015 - 10:14 AM

I'm thinking that if you just started with separate butter when your daughter got sick, you may still not be completely gluten-free. All containers of "stuff" like mayo, peanut butter, etc. have to be dedicated to the gluten-free eaters in the house. If you haven't already, go to the coping section here and read the Newbie 101 thread for more ideas.



How about kisses? If a gluten eater doesn't brush well before kissing you you can get glutened. And pet foods can be a problem. Not only do they (most of them) contain gluten that you will breathe in when you pour them into the dish, but your pet is now a source of glutening. Doggy kisses are just as dangerous as people kisses, and kittys may be even worse because they clean themselves with their gluteny tongues. Pet the cat and then pop something into your mouth without washing your hands first, and you are potentially glutening yourself.


As someone mentioned, medications and supplements should all be checked for gluten. Eating out is usually dangerous unless it is a totally gluten-free restaurant. And don't forget to read EVERY label, EVERY time you buy something. Formulas change depending on price and availability of ingredients. I have actually seen it when I buy two of something. It was an ice cream that I used to buy. One container from last week's shipment was as usual, but the second container was from a new shipment and it now contained guar gum. Now guar gum is not a gluten ingredient but it COULD have been. See what I mean?

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#938115 How Many Doctors Does It Take To Diagnose Gluten Sensitivity? - Celiac.com

Posted by on 09 January 2015 - 12:53 PM

How many doctors does it take to diagnose gluten sensitivity? Three. One to call it IBS, one to say gluten sensitivity doesn't exist, and one to claim it's all in your head.

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#937431 Gluten Free Wedding - Help!

Posted by on 27 December 2014 - 01:16 PM



I humbly suggest you elope. You'll save the money you would have spent and you'll save the hassle of food. But if you do decide to do the 50 people wedding, seeing it's going to be at a cabin in the woods how about chili with cornbread, a huge salad, and a gluten-free wedding cake? If you ask others to bring something you KNOW there will be CC at best or downright gluten ingredients at worst.


To save money you could even make the chili a vegetarian type. But even if you decide to put meat in it you won't need that much.

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#937372 How Do You Get And Keep A Job?

Posted by on 26 December 2014 - 04:35 PM

Accidental glutenings don't have to happen. In the three and a half years I have been gluten-free I have only been glutened once and that was back at the beginning. I simply do not eat anything I didn't cook myself. I read every label every time when I go shopping. If I am unsure about an item I put it back. I live alone and cook in bulk so there is always something in the freezer I can grab for a quick meal. If I am going somewhere I plan ahead so I don't have to worry about food.

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#936971 Chef That Wants Your Feedback

Posted by on 16 December 2014 - 04:38 PM

Suggestion: forget about EnerG. Just about everyone here agrees that is the nastiest tasting bread out there. It even smells bad.



Against the Grain is another company that makes great stuff. Not good for those who can't have dairy but perfect for those who can't have grains. And what I love about that company is it is a completely gluten-free facility - to the point that employees are not even allowed to bring gluten foods for their own lunch.


Also, there is a cookbook (fairly new I believe) called "I can't believe it's gluten-free" or something like that. (Hey everybody, you know the one I'm talking about so chime in and correct me because I think I have the name wrong.)

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#936906 Kraft Cheez Whiz

Posted by on 15 December 2014 - 04:36 PM

It sounds like it is very possible that you do have celiac. Could I make a suggestion? Drop ALL dairy for at least six months. The lactaid may help with the lactose portion of dairy but there is also casein in dairy. If your villi are damaged from celiac they can't digest dairy. And there is both milk protein concentrate and whey protein concentrate in that Cheez Wiz. That's a lot of concentrated dairy right there.

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#935917 How Much Can One Person Take? I've Reached My Limit...

Posted by on 02 December 2014 - 10:29 AM

YES!!!!!!!   jumping-for-joy-smiley-emoticon.gif

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#935354 Got A Turkey

Posted by on 20 November 2014 - 12:37 PM

I say THIS to the corn-free gods:  slapping.gif

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#935139 Am I Just Nervous

Posted by on 17 November 2014 - 03:37 PM

What she said. :)


And do go over to the coping section here to read the Newbie 101 thread. It'll help a LOT!

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#934948 Is Great Value Canned Chunk Chicken Breast gluten-free?

Posted by on 15 November 2014 - 10:10 AM

If it contained wheat the label would have to say so. It's the law.


That being said, there is no law about labeling for barley. I would think it would be on the label anyway though. The only way to know for sure is to call the company and/or check their website. (It's been my experience that emailing is better. They could always deny a person on the phone told you it was gluten-free, but if they put it in writing they had better be right. Not only that, but half the time the people on the phone don't know what they're talking about but the person writing the email has time to double check and make sure.)

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#934475 Does Your School Provide A gluten-free Lunch For Your Kids?

Posted by on 08 November 2014 - 02:13 PM

I don't think your school is following the guidelines if they took away salad and replaced it with a hot dog. The new menu is supposed to be heavy on fruits and vegetables and low on salt. Hot dogs are notorious for being high sodium.



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#933898 Overwhelmed By My Intolerances

Posted by on 01 November 2014 - 11:42 AM

When we first start the diet our guts are such a mess just about anything can set us off. Even lettuce gave me major problems at first. We need to concentrate on a few foods that don't bother us and then slowly add things back. Raw veggies are hard to digest, so eat them cooked at first. Processed foods of all types are full of ingredients that may be hard to digest. Stick to plain meats, rice, potatoes, cooked veggies, and a bit of fresh fruit at first. After six months or so you will be surprised at the foods you can add back to your diet.


All that being said, additional intolerances DO happen. Dairy of course is the first thing that should be eliminated because the part of the body that digests dairy is the villi, which on us is damaged. Other common intolerances are soy, corn, nightshades (potatoes, tomatoes, peppers and eggplant). But science has not come up with any kind of reliable test for any of these except dairy. Heck, they don't even have a test for non-celiac gluten intolerance! Elimination diet is the only sure way to find out what bothers you, and as I said, after time and healing most of those foods won't bother you anymore.


So keep your diet simple, keep a food and symptom diary, give it time, and you will soon have a much richer, fuller diet.

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#932698 Discouraged By My Dr.

Posted by on 15 October 2014 - 10:41 AM

I would have a talk with the doctor though and tell her what you told us. Tell her you feel betrayed and lied to. Then tell her she's fired.

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#932397 Diagnosing Dh Rash

Posted by on 09 October 2014 - 11:56 AM

There are many rashes that LOOK like DH. And dapsone is used for other skin problems besides DH. No reputable doctor would diagnose someone with DH just by looking at it, especially if five biopsies had negative results. You may have been to dozens of doctors but remember, a lot of us had to go through dozens of doctors before we got a correct diagnosis. There are a lot of doctors out there who really don't know anything about celiac (or much else for that matter.)

Oh, and by the way, I AM in my 60's.
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#932388 Diagnosing Dh Rash

Posted by on 09 October 2014 - 10:52 AM

Mitch, Mitch, Mitch. I'm so sorry you have been mislead to the point you are suffering for it. Please, read these articles (plus the one I linked to earlier from the NIH). National Institutes of Health, The Mayo Clinic, and the University of Chicago know what they are talking about, and yet because your doctor who didn't even do a biopsy on you gives you false information he has not only mislead you about your condition, but I believe he has actually put your life in danger. Celiac will kill a person slowly, but a true allergy can kill a person right NOW.


Please, go get a biopsy. And get it from a GOOD dermatologist. SHOW him the links provided here so he will know how to do it right.

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