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Member Since 08 Jun 2011
Offline Last Active Today, 01:01 PM

#931538 How Do You Know You Are gluten-free?

Posted by on 28 September 2014 - 09:31 AM

You're impatient. We all were. We want to feel better right now. But it usually doesn't happen that way.


It takes a while to heal. And giving up dairy for one week probably isn't enough. Keep a food diary. Try to stick to whole foods only.


And give it time.

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#931475 Did You Diagnose Yourself?

Posted by on 27 September 2014 - 03:19 PM

My Mom also had celiac. She was diagnosed back in the 1980's. So when I started having problems I knew. I was in denial for a long time but when my psoriasis got so bad that I couldn't play guitar anymore (I run a music store!) I knew I had better do something. With no insurance I decided to skip testing and just went gluten-free. Like Mom, my psoriasis cleared up. My digestive issues (which were mild) cleared up. My insomnia which had been with me all my life cleared up. Lots of other little problems that I never would have associated with celiac cleared up.


Life is good! :D

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#931269 Dh Sometimes Look Like Poison Ivy?

Posted by on 24 September 2014 - 02:39 PM

DH isn't SIMILAR to celiac, it IS celiac. It's just that DH manifests in the skin rather than the gut. Quite a few folks with DH have no gut symptoms, although some do. Usually if they do, those gut symptoms are milder.


The way to know for sure is to see a dermatologist and have a biopsy of CLEAR skin near an ACTIVE lesion. Read as much as you can in the DH section here. There are some very smart and experienced folks there. Squirming Itch and PricklyPear in particular.

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#930612 Loves To Travel, Are You Ok?

Posted by on 13 September 2014 - 11:36 AM

I just saw this on the news: http://hosted.ap.org...-09-13-12-46-18


Let us know you're OK.

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#930385 Is There A Program That Weeds Out The Bad Stuff

Posted by on 11 September 2014 - 09:57 AM

You've already got one. It's called your brain, and the connection is your eyes. :lol:


Seriously, did you read Karen's post? You can go into a store and pick up two identical packages of the same product, but if one came in last week's shipment and the other in this week's, the ingredients might be different. Companies change their "recipes" all the time, depending on price and availability of ingredients. That's why it is vital that we read the ingredients on every package, every time.

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#930224 Goodbye

Posted by on 10 September 2014 - 07:38 AM

So sorry to hear that. But before you go you should know that untreated celiac can lead to lots of other nasties, from RA to cancer. It might just be (given your family history) that you ALSO have celiac, and perhaps a gluten-free diet will help in your fight with this other problem. Or at least make you feel a little better. (((((HUGS)))))

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#930098 New Here And Need Help With School Policy

Posted by on 09 September 2014 - 10:02 AM

There are quite a few folks here who claim they are so sensitive that they can't eat anything from a facility that also processes wheat without getting a celiac reaction.


I am sure there are kids with peanut allergies who are just as sensitive. And with the potential for kids at school to trade lunches or desserts, plus the potential for kids to not wash their hands before touching their own food and after touching other kid's food or hands, it is only common sense that they MIGHT react. And with peanut allergies being so deadly in some kids, I can understand and even applaud the rule at this school.


Don't we all wish there were rules like that in place for gluten? And although gluten can kill us over the long term, peanuts can kill a highly allergic person instantly. If one mother MIGHT be spared the heartbreak of losing a child due to peanut CC, it is all worth it.



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#930012 How Did You Heal Your Gut? Besides Giving Up Gluten...

Posted by on 08 September 2014 - 02:47 PM

I don't know if probiotics made me heal faster or not, but I do believe they helped. I still take them every day and probably always will.

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#929456 Get Creative Describing Your Symptoms - Zombie Porcupines!

Posted by on 03 September 2014 - 02:28 PM

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot


It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired


My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break


I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated


The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead


For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

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#928274 Safe Wines For Super- Sensitive People?

Posted by on 23 August 2014 - 01:26 PM

If you read the articles again you will see that the first article says wheat has been PROPOSED as a fining agent. After running their test they decided it would not be a GOOD proposal.


The second article says wheat is very rarely used anymore and that wines from those small percentage of wineries who still use it, the wine tests to less than 10 PPM and in most cases, 5 PPM. In order to be labeled gluten-free in this country, (even certified gluten-free foods) any food or drink items must test to 20PPM or less. That would mean there is the POTENTIAL for ANY gluten-free item you buy in the store to have more PPM than any wine you might buy.


So if you feel you might react to 10 PPM or less, you should probably avoid all gluten-free foods on the chance that they might have more. It would be best to just stick to whole foods if you are that sensitive.

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#928240 Safe Wines For Super- Sensitive People?

Posted by on 23 August 2014 - 07:25 AM

If you look up "fining wine", a google search will lead you to many websites from Wiki to wine magazines to wine makers who list potentiial fining agents. Not a single one of them mentions wheat.

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#926219 Are You Happy?

Posted by on 03 August 2014 - 10:36 AM

I have lost all of my family - mother, father, husband, sister, grandparents of course, and quite a few close friends. I never had kids. I am basically alone in the world.


But I moved to the place I have always belonged (but didn't know it) ten years ago. Since then I have been happier than I've ever been in my life. I opened a business and spend my days doing what I love. I have made new and very close friends.


I guess we're not supposed to talk religion here, as on most websites, but I will say I am closer to my Lord than I have ever been. That makes me worry a lot less because I know it's all in His hands.


And I have the key to happiness. That key is gratitude. You can't be unhappy and be grateful at the same time. I'm gratefull that I had the best family anyone could ever hope to have. A lot of people didn't. I'm grateful for every single thing that ever happened in my life because it made me who I am and brought me to the place I am now.


My Dad had very bad asthma that eventually killed him. As his health got worse and worse he found he couldn't do a lot of the things he used to do and love. He said, "Hey, I already had a chance to do those things. Now that I can't do them it frees up time to learn new things." No matter what life throws my way I know that if I can keep that attitude I will always be grateful, and be interested and engaged with life. That will keep me happy until it's time to check out.

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#926106 Don't Know If I Should Leave My Job Or Not!

Posted by on 02 August 2014 - 11:14 AM

Airborne flour gets breathed in. It gets to the back of your throat where you swallow it. I hate to say it, but I think you should quit.

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#925934 Gluten Free, Going Broke

Posted by on 31 July 2014 - 03:01 PM

Money's been really tight for me lately. I stopped going to my local health food store (about the only place to find gluten-free foods where I live) and am saving a bundle. I eat whole foods all day and just have ice cream for my treat. For convenience sake I cook in large batches and freeze the leftovers in individual servings. So I'm not having sandwiches or bread of any type. No pizza. I don't even make pancakes or anything else out of gluten-free flour. I eat meat and potatoes and rice and veggies. I have Planter's cocktail peanuts for a snack. And at the end of the day the ice cream is my reward.


Sounds boring but I'm not suffering at all. I am saving money and calories. :)

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#925806 Is This Dh? My 4 Year Old Has Had This Rash For 3 Years!

Posted by on 30 July 2014 - 02:10 PM

Make sure they do the biopsy on CLEAR skin right next to an ACTIVE lesion. If they biopsy the lesion itself it will turn out false negative. And if the lesion is not active it won't do any good either. Read as much as you can on the DH section for more info.

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