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Sarah Alli

Member Since 18 Jun 2011
Offline Last Active Dec 12 2012 06:59 PM
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#727969 Celiac Attack, Has This Happened To You?

Posted by Sarah Alli on 05 September 2011 - 03:49 PM

Sorry if this post sounds like whining......just getting sick of the pain, any advice is much appreciated.

Thank you



Yikes. Take your temperature- if you have anything resembling a fever go straight back to the hospital and this time demand a CT scan. More than likely it is just the celiac, but you really don't want to take any chances if there's a possibility of ruptured appendix or (if you're a lady) ovarian torsion.
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#727095 I Hate The Word "disease"

Posted by Sarah Alli on 01 September 2011 - 12:28 PM

I had pretty severe asthma- unquestionably a disease- growing up. It never bothered me or made me feel inferior, it was almost a badge of pride for some reason. I had my special inhalers and breathing machines and could leave class to go to the nurse whenever I wanted!
I think you underestimate your daughter. She'll do just fine. After all, a disease is only abnormal functioning... and we're all a little abnormal.
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#727093 Lab Results-Confused

Posted by Sarah Alli on 01 September 2011 - 11:53 AM

It doesn't seem to complicated to me. It's been my experience that radiologists, pathologists, etc only report what they see, they don't diagnose. So...

FINAL DIAGNOSIS DUODENUM BIOPSY: FLATTENED MUCOSA WITH CHRONIC INFLAMMATION (SEE
MICROSCOPIC).

This is not a diagnosis in the normal sense. This is a description of the damage to your intestine.

PATHOLOGIST: Mullen MD, Dennis L. Electronically Signed: 08/29/2011
SOURCE A) a. duodenum

Seems straightforward. This was a duodenal endoscopy.

PRE-OPERATIVE DIAGNOSIS celiac disease

This is what your doctor suspected you had, your diagnosis before the endoscopy.

MICROSCOPIC EXAMINATION This flattened mucosa includes only a few blunt villi. The lamina propria
shows a mixed inflammatory cell infiltrate. The differential diagnosis
includes celiac disease, peptic ulcer disease, and nonspecific duodenitis.

This is the important part. As others have said, there's flattened mucosa but only a few blunted intestinal villi, etc. Then, the pathologist lists the diseases that can cause that damage.

Since you went for the endoscopy to confirm Celiac, and have results consistent with Celiac, this is almost certainly a positive result. You should call the doctor who sent you for the endoscopy to get his/her feedback and to make sure you've ruled out peptic ulcers as a causative agent.
It's sometimes easier to think of a result like this as not really designed for you to read. It's really intended for your doctor which is why it seems unclear. Call your doctor to discuss, and stop eating gluten if you haven't already.
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#717657 The What's For Dinner Tonight Chat

Posted by Sarah Alli on 20 July 2011 - 01:44 PM

Pretty darned simple tonight:

Homemade Buckwheat Pasta with Pumpkinseed Pesto and Pecorino
Greens with Grapefruit Tarragon Vinaigrette
Brandied Deviled Eggs
Burnt Caramel Mousse


For most people, "pretty darned simple" is a bowl of chex. :P
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#715977 Odd Benefits Of Going Gluten Free

Posted by Sarah Alli on 12 July 2011 - 03:22 PM

I have had a problem called cytolytic vaginosis for well over a year. It is fairly horrible and makes life somewhat miserable (and sex impossible) for 2 weeks out of every month. Last month is was better and this month.... GONE! :D Yippee!


I would kill to get your results. The last gyno I saw told me my pain was vestibulitis and said, "good luck!" My PCP suggested it was probably related to my chronic abdominal pain. I never considered that it might be related to my possible gluten intolerance... it's good to know other people have seen results on gluten-free diets.


:lol: :lol: yuck....and no more of those "pink and blue icing roses" either...


Eeeewww... thinking about storebrand cake is making me feel ill. It's my birthday and my sweet ole' mamma ordered me a chocolate cake from a local gluten free bakery. I'm pretty excited.
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#715968 The What's For Dinner Tonight Chat

Posted by Sarah Alli on 12 July 2011 - 02:51 PM

Does anybody else have those times when you're supposed to eat and you just cant's care about eating? :ph34r:


Yes, and other times I feel absolutely ravenous. I eat pretty much the same thing for breakfast each morning but some days I'm eying the sack lunch by 11am. Other days, like today, I skip lunch entirely because I just don't feel hungry. I usually try to have a bit of something, a handful of nuts or a piece of fruit, though.
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