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fairydust81

Member Since 26 Jun 2011
Offline Last Active Jul 09 2011 09:24 AM
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Posts I've Made

In Topic: I'd Expect This From A Non-Coeliac - But Not A Fellow Coeliac!

04 July 2011 - 02:17 PM

The easiest thing to do is to make extra at dinner, and pack it for lunch the next day in some sort of container with a re usable ice gel pack. You can also make up a big batch of plain rice on weekends, another batch of something like beans or a casserole (for example, a lot of Indian-style chicken in yogurt curried sauces can be made gluten free, or rice pasta with gluten-free tomato sauce), cook 5 servings of some sort of meat patty or chicken, boil some eggs to make hard boiled eggs, bake 5 potatoes, bake a loaf or a round small skillet of gluten free bread, etc, and then you have it reserved for the week. You can take a resealable storage container and throw in a bit of fresh salad or vegetable with a bit of olive oil and vinegar dressing. Add in a piece of fruit and it's no big deal.


Many thanks for the ideas, I really am hopeless, i can manage preparing food for my daughter so I should take a leaf out of her book (she was born with a bowel malformation and underwent so many surgeries and endured a temporary colostomy, she is now 7 and will only eat healthy, refuses to eat junk (processed food) as she has learnt that anything like that will cause her constipation, she also controls her own laxatives now lol...), will have a clear out in the kitchen in a couple of weeks and go shopping again (husband normally does the shopping)...

In Topic: Desperate For Help

04 July 2011 - 02:13 PM

I really feel for you, it's so awful what you have been through...

It is always possible to have false negatives and like other diseases even people with coeliac, still with gluten in their diet can have negative bloods - rheumatoid arthritis for example, you can have all the outward symptoms and bloods for inflammation are high, but the key diagnostic test can come back negative - thankfully that is well recognised and is now called sero negative RA -

I have been doing a food diary for the last month and this helped to pinpoint a pattern between my rash and the arthritis flares and all the GI issues, definitely helps to show any patterns/trends between symptoms you have and foods that you eat etc.

I hope things continue to improve for you now you are gluten free

In Topic: Help Please!

04 July 2011 - 02:09 PM

I would definitely seek medical advice from your doctor, especially if the pain is unbearable. If anything, they'll hopefully be able to give you something to help ease the pain and discomfort in your abdomen.

I also agree with the post above - this is your body's way of telling you it really doesn't like gluten, especially with the positive bloods etc....you never know what damage is going on internally and what it can lead to in later life...

I'm newly diagnosed and it's a steep learning curve, I'm awaiting a biopsy before I go gluten free and I know it's going to be very difficult.....

Hope you start to feel better soon

In Topic: I'd Expect This From A Non-Coeliac - But Not A Fellow Coeliac!

04 July 2011 - 12:01 PM

Thanks for the replies - so glad I have found this site and found so many wonderful people who truly understand.

Thankfully I have never met this woman and I don't think I'd like to, judging by some of the stories I've heard about her.

Just getting to grips with basics now - I normally reply on the hospital restaurant for my breakfast and lunch (I'm a research scientist working on rheumatoid arthritis) but the realisation that there was nothing gluten free hit me today - even the salad dips etc I can't really be sure of, and the jacket potatoes are right next to things like sausage rolls etc...

Any tips for varying lunch ideas (I'm in the UK btw) would be really great lol...I'm hopeless with cooking and thankfully my hubby does all the cooking. The only things I ever cook are cheese on toast, beans on toast etc haha

In Topic: More Questoins About Possible Rheumatoid...

01 July 2011 - 08:21 AM

Hi there,

I'm a scientist researching RA and even though your bloods are negative it's still possible to have "seronegative" RA. but there is a classification system that rheumatologists follow to aid in a diagnosis. This includes morning stiffness, multiple joint swelling, changes on xrays, presence of nodules, positive rf factor in the blood etc. You have to fulfil so many of the points and been suffering constantly for 6 months at least.

There is another condition that has similar symptoms to RA but doesn't cause the joint damage and it also flares and goes periodically. It's called palindromic rheumatism (a condition I was diagnosed with in January). I get all the joint pain and swelling in flares and I also have visible arthritis on my xrays. I'm now taking anti rheumatic drugs to help