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AVR1962

Member Since 01 Jul 2011
Offline Last Active Dec 28 2013 12:26 PM
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#899040 Keep With The Diet

Posted by AVR1962 on 10 December 2013 - 11:00 AM

To all of the newbies, stick with the diet strickly, it is worth it! I have been gluten-free now for 2 1/2 years. If you read my bio you know I was suffering bad when I first come to this site. It's hard for me to believe now how much pain and how stressed my system was. It took me a good 2 years of recovery, the first year being the hardest. Now I am back in the gym lifting heavy weights and no longer feeling the aches in my tendons, joints or bones!! I can jog again. Not only do I have energy for workouts but I can sleep at night too....I know how rough that was. Stick with it, don't cheat....embrace what you can do and what you can have, it will make the difference!

 

Annette


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#861272 2 Years gluten-free, Feeling Good!

Posted by AVR1962 on 30 March 2013 - 10:55 PM

Just wanted to pop in here, especially for the newbies wondering if they will ever get better, and say it is nice to have my life back! When I look back to that first year when my body was so badly broken it's like looking back at someone else's life. For those who are struggling, keep working for your health, it will all come together.

 

For me- no more itching, no more inflammation, dizziness gone, buzzing in my ears went away, balance is back, I have energy once again. Even my sciatic pain is gone. I am living a normal life once again and it feels great!

 

I did it and you can do it too!


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#827958 Found Something For Inflammation

Posted by AVR1962 on 07 October 2012 - 03:05 AM

Wanted to share this....I have been on a gluten-free diet for 1 1/2 years but for the longest time still having issues.....something in my body was being attacked randomly like a wild fire. I went completely grain free, sugar free 6 months ago and FINALLY after over a year the buzzing in my ears went away. If I did have any corn or rice I noticed my hands would get tight and my feet would hurt. So I tried nettle tea which claimed to help with inflammation.....BINGO, it worked!!!! I drank a cup every day the first week, now I drink a cup every other day and I can now have small amounts of corn and rice without my hands and feet hurting, and no more ringing in my ears!!!!
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#800239 Leg Cramps

Posted by AVR1962 on 02 June 2012 - 11:31 PM

Keep in mind that one needs to get blood labs when taking a high dose of VitaminD..

Yeah, good advise. I am not even taking a multi right now. I was thinking adding my multi back in that has a low dose of D. Right now I think I should be getting enough D from the sun but I may be mistaken.
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#791893 I Can Not Believe I Felt Like This And Functioned For Years!

Posted by AVR1962 on 28 April 2012 - 09:57 PM

I hear ya'! I said something very similiar the other day. It is amazing what the body takes and tries so hard to deal with. I think when we are in the midst of it we don't realize how sick we are as the whole process is gradual. I think it is once we get well and can reflect that we realize just how sick we were. If I look back to where I was a year ago, there is no comparison to what I am today......I am actually enjoying life again......I can work in the yard without having to take breaks or having every muscle in my body sore the next day. We're still going to run into those foods that don't set well with us but at least now those are temporary setbacks. Congrats to you!
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#787710 One Year On Diet

Posted by AVR1962 on 14 April 2012 - 11:03 PM

Been on a gluten-free diet now for a year. The year has been a very hard and challenging one to say the least. So many issues have bore their ugly head and one by one I have stomped out the fire to keep my body going. What I can say, as much as I seem to have taken 2 steps fwd and 1 step back, I have improved. The diet REALLY does help and persistance pays. Once I could get all the gluten out of my diet I regained my balance, had been off-balance for 9 months. Vit supplements were a HUGE help top getting my health back. I am sleeping well again.

I do have some nueropathy issues and still in the process of seeing if there could be any other source for it besides gluten. Recently blood work showed I am pre-diabetic which has been kind of bewildering but thanks to learning the gluten-free diet, the changes I have had to make to exclude more carbs has been quite simple and I am feeling better.

To the newbies, don't doubt it, hand in there. It does take awhile but it is well worth working thru the struggles.
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#777928 Just Got Home From Thailand...

Posted by AVR1962 on 02 March 2012 - 11:54 PM

Wonderful! The squat toilets still exist in Italy as well. Lived there for 2 years and even some of the nice restaurants had squat toilets.

Glad you had a god time. One place that's on my list to visit!!
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#774512 New This & A Little Frustrated

Posted by AVR1962 on 19 February 2012 - 09:07 AM

I believe it was Dr. Tom O'Bryan where I also heard the suggestion to take a fish oil / cod liver oil supplement to assist with reducing inflammation. It'll have natural vitamin A & D, as well. I use a mint-flavored cod liver oil from twinlab. Dr. O'Bryan's site is www.thedr.com -- I listened to all of the mp3's on there, so I don't specifically know which one or more of them mentioned the fish oil.

If you have not asked to have vit levels checked I would highly recommend you do so. A & D are vits that taken in too high amounts can cause toxicity in the body and that will only compound the issues you are currently dealing with. Knowing what your husband needs is really important.
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#773576 Heavily Glutened Thanks To Ignorance

Posted by AVR1962 on 14 February 2012 - 11:45 PM

Thanks for the advice everyone. Drinking as much as I can and eating plenty of fibers.
This incident should be a lesson: Check everything!
It's a little easier in Sweden because I'm familiar with all the gluten-free brands there and they're always in their own section.

One thing worries me though since a lot of people looked at me as if I were a madwoman whenever I asked if their products contained gluten (one of them worked at patchi chocolate store!):
When traveling abroad and going to a restaurant, even if I explain to them what gluten-free is, how would they know that caramel color (for example) could contain gluten, and how would I know they aren't using the same cookery as others to avoid CC?

I do so hear ya! I have had the same issues here in Germany. I really think there generally is more awareness in the US. Where I live there is no such thing as gluten-free menus. When I ask waitresses or waiters they are clueless unless I tell them I have an allergy, that they get. We have BoFrost, not sure how much of Europe has this home delivery, but they ahve a wonderful line of gluten-free products. That's who I buy my pizza thru and it all is very tasty.
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#771474 Need Updated Info... Having Difficulty With Broths, Soups Etc.?

Posted by AVR1962 on 06 February 2012 - 11:06 PM

Thanks! Ahh I know how that goes, it sounds like we are similar :( And after reading your about me I had the same thing, a TON of health problems but never the biopsy, and had the blood tests months after going gluten free but the difference without gluten is like day and night, that's the only thing that makes sense and fits perfectly. It's a defeating feeling, it sucks soo much! Thank you for all the advice, I will definitely have to try those things. How do you get the chicken, how is it packaged and are there certain brands or something that are safe? The only ones I can find here are in the frozen section and they say they have broth added so I don't trust it, but I haven't checked every store in my city. The avocados are a good idea, I make this guacamole I LOVE but I don't make it often, I do know the avocados would be good for the nutrition though so I should do that. Yes actually when I was first healing and first started my gluten free diet I used to drink ensure every day. For some reason I could only drink small amounts of it because it would make me nauseas, but then again I had to force feed myself everything I ate and I made myself eat every hour regardless of whether or not I was hungry, and that helped me heal pretty well, I think. Maybe I should just try the initial healing routine all over again. I've been eating bananas and small fruits here and there and living off of peppermint and ginger tea, and last night I was able to have some rice that actually made my stomach feel AMAZING and it was wonderful. Woke up feeling like crap again but now I'm better than yesterday already and eating a little more. Getting glutened sucks so much it seriously feels like your whole life stops and you can't do anything! :(

I was buying bio chickens but then got real sick from one and cannot stand the smell of them anymore. I switched to corn fed chickens, fresh and have had no problems. I live in Europe so these are not brands names you would get stateside. I couldn't drink peppermint tea or take ginger, both made me nausious. I totally agree with Ensure not setting well, there's just something about it that is yucky. I am not even a real rice lover but if I can cook it down until it is soft and then mix it in with something I can eta it just fine. Peas mke make gag. Cauliflower, cabbage, and white beans create way too much gas in my stomach. I ate quite a bit of eggs and still do. Salads, ate lots, switched from olive oil to canola as it seemed genlter on my system, and I had always loved olive oil before. I am 9 months into the gluten-free diet. It's taken my system alot of time to re-coop. Hang in there. Find what you can eat and stick with it for now.

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#771261 Remember Me? Look What I Found!

Posted by AVR1962 on 06 February 2012 - 12:34 AM

Curious....how are you doing on the gluten-free diet? Are you finding any improvements or changes in your own health? What wonderful support you are offering your boyfriend!!
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#769645 Alcohol...why The Issue Now?

Posted by AVR1962 on 30 January 2012 - 11:46 PM

I'm just saying what my doc said to me. Can't post studies to back it up because I only have his opinion. Which I value because he has helped me more than any other doc out there and has already made a huge improvement in my health. So if he says he thinks it's a bad idea for me in my current state to have a weekly drink, I am just going to go with it, as his judgment thus far has been excellent.

Good for you Aly! I was the girl in my 20's out on the dance floor til 2 a.m. and always loved a party never a heavy drinker but loved my glass of wine with cheese and olives while preparing dinner. When I got real sick though back in Feb, if I would drink any alcohol it felt like it went directly to my bloodstream. I found I was extremely sensitive and I could not understand. If I had a glass of wine I would be just a slight bit off-balance the next day. I did some research online and what I was reading abiout my symptoms fell inline with that of alcoholism but there was no way. One glass a wine a night would not even be considered as alcoholism and yet my body was not tolerating it.

Near as I could figure it had to do with the damaged villa and so when I saw this article I absolutely identified. I wasn't focusing on the parts where they talked about alcoholism but rather the parts where they were tlaking about patients with gastro issues and it makes sense. I know I had alot of foods I could not eat when my system was so damaged, antyhing acidic was out of the question. There may be other benefits in these foods just as there are other benefits in wine but if they are doing damage to the system, the damage out-weighs the benefits.

I am 9 months into my gluten-free diet and I do go out once a week with friends and have a drink with my meal. Even at that I worry as I am still noticing I am being effected by the alcohol. Not as much as before. Last thing I want to do is damage my liver. I have had 2 family members die from alcoholism and I have another that should be gone, and I do not know how she is still living. That's my mom. She has been treated for canncer cells in her stomach. She has had holes burned in her esophagus and takes daily antiacid. She smokes on top of it and I quite honestly do not know why she isn't displaying more damage than she is.
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#769412 Critical Replies

Posted by AVR1962 on 30 January 2012 - 02:39 AM

So what is up with the critcal replies? Is anyone here a doctor or a specialist in gluten-free living? Aren't we here to help one another, to give advise on what worked for us? Relay info that we find informative and helpful?

We are a little different in our own needs and reasons for being here. Just because something doesn't work for one person doesn't mean it won't work for another. So I don't see the point of tearing down other people and the posts put on this forum.

If you don't agree then put your own advise on.
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#769151 Vision Problems Related To Celiac Disease?

Posted by AVR1962 on 29 January 2012 - 12:15 AM

Just want to put this out there, advise given to me by my doc. I had been taking vit A in tablet form rather than in the form of cod liver oil. Doc told me there were too many health risks associated with vit A itself but in cod liver form he was very approving. He's been the only doc I have been able to talk about vits with, most just pass it off. For me, supplementation has been so helpful to improving my health.
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#769023 Hi! New To The Forum!

Posted by AVR1962 on 28 January 2012 - 11:07 AM

As a register dietician I think you could be very helpful in this forum, welcome!
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