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Member Since 02 Jul 2011
Offline Last Active Dec 05 2011 05:10 PM

#749223 Dating A Celiac

Posted by on 20 November 2011 - 04:08 PM

April in KCs response was so good. I think that's one of the trickiest situations, well-meaning friends who are going out of their way to "help" but not being informed enough to avoid cross contamination or gluten containing ingredients, and then the gluten-intolerant person looking ungrateful when he/she can't eat what was offered.

I think it would also be good to find out from her what her reactions to gluten are like and to be aware that for many celiacs, there are emotional responses when they get glutened: depression, anger, anxiety. Knowing upfront about some of those reactions will help both of you deal with them better when they come.
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#748601 The Most Annoying Thing About Celiac Is...

Posted by on 17 November 2011 - 09:19 PM

That we can't even trust the "gluten free" options at most restaurants. Well meaning friends say, "such and such a place has gluten free pizza now!" Not a chance my super-sensitive celiac husband could eat it safely. Stupid cross-contamination.
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#748592 What Does Super Sensitive Mean?

Posted by on 17 November 2011 - 08:41 PM

Wow...thanks for the compassionate responses. This forum has been so theraputic for me. My first night on, I was up most of the night feeling so validated by reading what seemed like our experiences over and over again. It was so nice to feel like we weren't crazy when even loving family members had a hard time masking their disbelief that this is "real."

It really is mourning isn't it? I just grew up watching my mom make pie for my dad. I am surrounded by a culture of women who bake bread for their families. Thanks for the cheesecake suggestion...I had kindof forgotten about that. I had been wanting to try a white chocolate rose cheesecake a few years ago - maybe I'll pull out that ambition again. And will definately try out your recipe. I'll also go looking for holiday ideas. I bet there's lots out there.

I made a pumpkin pie last night and it turned out great. I guess single crust pies are the way to go (since the gluten-free crust is iffy, might as well do pies that don't need too much of it.)...oh, and I'm not a great cook either. That's why I have to rely on my food looking good! :)

I guess I should be thankful that there are the two 100% gluten free restaurants in our city. That's probably more options than some have. It's just frustrating - while I'm thankful that there's so much new awareness I also get discouraged seeing restaurants on the state's celiac organization's website that he's been glutened at.

Could we somehow create an "approved by super sensitive celiacs" restaurant list!?
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#748261 What Does Super Sensitive Mean?

Posted by on 16 November 2011 - 08:40 PM

I'm also trying to figure this out (without health insurance.) Last time we forked out the bucks to go see a gastroenterologist was about 9 months after my husband went gluten free. Within a week of the new diet he said, "I'm never going back!" and in a month he had lost 20 lbs and regained a color, postive mood, and general health that I hadn't seen in him for over a decade. We were thrilled! About four months later, all the old symptoms started coming back: joint pain, insomnia, depression. So we changed to the name brand form of the prescription he takes that we could be sure was gluten free. Once again, feels better. Another four months later, all the old symptoms start coming back. Ok, pay for a doctor's visit. Dr. says he's positive husband has celiac disease, but that he'll have to go back on gluten to have it diagnosed. Husband says, "no way!" He's going to stay gluten free because he knows from first hand experience that it's the right thing for him. So I convince him maybe he's getting cc'd at home and the whole house needs to be gluten free. He hates to inconvenience us, but agrees. Again, feels better.

Now we've spent over two years gluten free. We've learned a lot. The house is gluten free. We know where to look for disguised sources of gluten. We only buy products specifically labled gluten free (i.e. we spend A LOT of money on groceries.) And now all these restaurants are coming out with gluten free menus...but he gets glutened all the time! He's been glutened at PF Changs, horribly glutened eating the "gluten free" pizza at BJs, and by so many other meals ordered off of "gluten free" menues. As a result, we just don't go out hardly ever and if we do, it's to one of the two 100% gluten free restaurants in our area (both expensive, neither filling.) I watch a friend of mine who has celiac disease selecting the "gluten free" items off the buffet at a church party...all surrounded by fried chicken and biscuits and think there is NO WAY my husband could eat anything there without getting totally sick. I see people on these forums recommending pizza joints that now have gluten free pizza. There's no way he could eat a gluten-free pizza from a pizza place that also makes wheat crust and survive it. Traveling is so frustrating. I try to do searches for gluten free restaurants and can't trust any of the results. Are we doing something wrong or is he just that sensitive/different from "normal" celiacs? Yes, I know the response might be that there are reactions to other foods. We've explored that, we know he doesn't do well with too much milk or processed sugar - but would the reactions to other foods be identical to the gluten reaction? The gluten reaction is pretty miserable and pretty consistent (a three day progression of symptoms that we both can almost set our clocks to.)

Way too long of a post. Needed a little rant. Hoping for some encouragement. I think my usually supportive self is being undermined a little by the approaching holidays and the realization (again) that there won't be any apple pie. Dumb thing is, I don't even like apple pie. I just loved making it for him. I'm an artist and I used to make beautiful crusts. You can't make a pretty gluten free pie crust. I can't at least.
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#719863 I Glutened Him!

Posted by on 31 July 2011 - 02:33 PM

I'm about to loose it. We keep a gluten free home to protect my very sensitive celiac husband. We've had a house guest for the last week (who by cooincidence just found out he was celiac and is now learning the ropes - so far he is asymptomatic, so he hasn't dealt w/cc and some of the other issues we do on a regular basis.) The guest was one of several guests and instructors we were hosting this weekend for a cultural arts festival sponsored by our small business. Needless to say it was a crazy weekend that required some eating out, very little sleeping, and ended last night with our house guest winding up in the hospital for an emergency appendix removal and my driving other guests three hours round trip to the airport for return flights in the wee hours of the morning. My husband confessed to me on Friday night that he had been "glutened" and was doing a great job of putting on a good face all day Saturday. I'm crazy exhausted myself, but trying to keep my two small children quiet so my husband can sleep. As soon as I got back from the airport this morning the first thing I did was make my starving husband a sandwhich and chips (we were too busy all evening and night for him to ever eat!) He's gone to bed and I recently looked at the chip bag again to find that they were Frito Lay Mesquite BBQ chips - which I know are NOT gluten free! I don't know who bought the chips and brought them in to my house and when I put them on his plate I didn't even look at the bag in my dazed exhaustion. We buy gluten-free bbq chips all the time and I just assumed they were ours. So now in addition to getting glutened (probably cc at a restaurant) I totally glutened him myself! I could cry. Now I know he's in for hell the next two days and misery for two more. I hate this. Is there any hope that the FDA will eventually require all packages to be clearly labeled? I know what to look for, but so many of our friends and family don't. I also so despirately wish there was something to do to alleviate the symptoms or make them more bearable when this does happen.

Just needed to vent.
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#713851 Severely Glutened...

Posted by on 02 July 2011 - 03:42 PM

I am so sorry. I have felt the same frustration (cried some of the same tears) as I've tried to prevent cross contamination issues from making my gluten-free husband so ill. He's been gluten-free for two years and last year I finally convinced him that the entire house needs to be gluten-free as well. We do great at home, but even when we bring our own food to eat dinner with family he inevitably comes home sick. We're planning a trip to visit family next weekend and I'm already anxious about it. We've never made it through a trip w/o him gettin glutened at least once. So discouraging.
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